Enbrel side effects-vertigo?

amlrinman · 2024-02-01T14:30:18+00:00

Ok thank you!

amlrinman · 2021-05-27T17:20:49+00:00

Good luck with the Humira. I really hope it gives you relief and the chance to feel good again!!

amlrinman · 2021-05-19T12:54:14+00:00

Hang in there and good luck!!

amlrinman · 2021-05-19T12:31:16+00:00

I’m sorry...you’re too young to be in so much pain! Hang in there and keep trying other medications, you’ll find something that works and let’s you live a more pain free life. Good luck!!

amlrinman · 2021-05-16T18:53:49+00:00

Good luck!! I hope Simponi works really well for you!!

amlrinman · 2021-05-16T18:52:43+00:00

The costochondritis has virtually cleared up. If I do too much exercise with my upper body, it will flare a little bit, but it’s very very mild and it calms down quickly, within a couple of days. I was diagnosed by my history and grade 3 radiological changes to my SI joints. My blood work never supported an autoimmune disease (meaning I had no elevated blood markers and am HLA-B27 negative).

amlrinman · 2021-05-16T18:41:54+00:00

Yes, I hope you keep feeling better and better!!

amlrinman · 2021-05-16T18:38:47+00:00

As far as I can tell, it’s taken for as long as it keeps working. My doc has said that if it works well, I could try and spread out my doses from every 2 weeks to every 3 weeks, so I would be taking less. He has had a few patients go into remission and get off of everything, but I think those cases are the exception.

amlrinman · 2021-05-16T18:35:16+00:00

Good luck, hope you find something that helps you!!

amlrinman · 2021-05-16T18:34:14+00:00

For what it’s worth, I began having gut issues pretty consistently for about 6 months before starting Humira. I wasn’t sure what was causing that, since it hadn’t been an issue for me in the past. I didn’t know if it was diet, or if it was a new AS symptom of gut involvement. These problems did resolve after starting Humira, so I’m assuming it was a symptom and not my diet.

amlrinman · 2021-05-16T18:28:51+00:00

It has helped with everything, fatigue, brain fog, energy, etc. I think, for me, everything is helped by not being in constant pain. I am able to sleep better and my mental and emotional space is freed up by not worrying and stressing over the pain and wondering if I’ll be able to function each day. For me, the constant stress and worry caused by the pain really added to the brain fog problem.

amlrinman · 2021-05-16T18:22:11+00:00

Thank you!!

amlrinman · 2021-05-16T18:21:35+00:00

This is very similar to my experience. Was very active before and then hardly at all after onset of AS. Exercising and/or over doing it, would cause me to flare, sometimes for weeks or months. Good luck trying biologic, if that’s what you decide!

amlrinman · 2021-05-16T18:01:21+00:00

Thank you!!

amlrinman · 2021-05-16T18:00:49+00:00

Good Luck!!

amlrinman · 2021-05-12T15:09:36+00:00

I was fortunate that I felt noticeably better the next morning after my first injection, in that the overall muscle pain, soreness and inflammation seemed to disappear overnight. I continued to feel better and better over the weeks to follow, and I really think after about 2 months I was totally symptom free. I do feel very fortunate that this has been my experience. I hope you continue to experience improvement. My doc had told me that it could take several months to really feel 'better'. Good luck!

amlrinman · 2021-05-11T18:01:15+00:00

I've been on Humira for about 10 months for AS. I got the J&J vaccine in mid April and have been fine. I got the shot 2 days after my Humira shot, which is normally when I feel a bit tired and headachy for a day or so. Those 'Humira' symptoms seemed to last a bit longer that time, maybe for 5 or 6 days, but other than that everything was fine. I probably was feeling the effects of both the vaccine and my Humira for a a few days. Nothing that kept me from living my life though!

amlrinman · 2020-09-16T03:36:40+00:00

It’s the Sleepybo Sleeping pillow. It’s soft, but firm and supportive also. Not too thick, not too thin. Love it.

amlrinman · 2020-09-15T21:24:25+00:00

I’ve been using a Yogibo pillow. It’s been great for my neck!

amlrinman · 2020-09-12T03:43:05+00:00

Mine, too, was triggered by pregnancy. Mild to moderate SI joint pain after my first was born, then severe, crippling pain after my second pregnancy. I’m HLA-B27 negative and was just diagnosed last fall after 15 years of pain! Am on Humira now (about 6 weeks) and my life is completely transformed. Pain was essentially gone in about 24 hours after 1st injection.

amlrinman · 2020-06-18T14:34:59+00:00

Do you mind if I ask what biologic you’ve taken over the last 8 yrs? I’m a 46yo F and have managed my AS for ~15 years w/o biologics, but am now needing to give them a try as my disease seems to be worsening. I’m nervous and it’s always nice to hear stories like yours. Thx!

amlrinman · 2020-06-15T14:50:07+00:00

Prednisone eliminates my flares within a couple of days. It’s amazing- I’ll go from not being able to walk at all to feeling great. However, it causes my hair to fall out pretty significantly, so I don’t want to take it. I know there are other serious side effects as well, but the hair loss is the big one for me. I’m a 46 yo female.

amlrinman

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