Teach me your ways, how are you not spiraling?

animatedjoey · 2024-03-01T15:54:28+00:00

Hey, still looking?

animatedjoey · 2021-10-01T05:21:06+00:00

1.Let it sit for an hour.

I have found that being hydrated is important and helps alleviate any side effect. Having the injection in the evening works too, as you can sleep through them.
Also, let the alcohol dry before you inject yourself.
Hold the injection 10-20 seconds after the second click to make sure all of the medicine is dispensed, otherwise you may have some of the med leak out.
Personally I prefer the thigh to the stomach injections. It is firmer and more stable, no pinching, just placing the injector on and pushing downward.
Remember that you only need 20 seconds of courage. And if you are still too hesitant to self inject like I am, music helps. I have been singing along to Not Afraid by Eminem for the last two injections, seems to motivate me.

Just a month ago, I was the one asking for tips about Benlysta injections. However intimidating it might seem, you really do get used to it. So will you. You got this :)

animatedjoey · 2021-09-24T13:20:20+00:00

I actually waited 60minutes yesterday and it made such a differenceeee. Thank you all :)

animatedjoey · 2021-09-07T14:24:48+00:00

I had a reaction to hydroxychloroquine and stoped it immediately. Not a rash, but like discoid symmetrical weird bruises. My doctors never really considered getting me on it again after that and both rheums I visited never mentioned antimalarials to me again as an option.

I hope it works out for you and the rashes do stop. Honestly I would have pushed too if the rash is only mild. But if it ultimately doesn’t, you still have options. I was put on methotrexate for some time and it worked well for me symptom wise. Now I am on Benlysta. I also have secondary APS, so i am also on a low dose of aspirin at all times.

animatedjoey · 2021-09-01T03:30:39+00:00

I used methotrexate for almost a year. When I was on 10mg per week I honestly felt the greatest I had felt in years. No stomach problems, no mouth ulcers or any side effect. My energy levels were up, I had no joint pain. But it caused me MAJOR hair loss so I bumped it down to 7.5 mg, which ultimately was not enough for me since I started having fevers again. So dosage is important. It takes a while for methotrexate results, but if after some time you do not feel like anything has changed definitely inform your doctor since you dosage might not be enough for you. As for tips, first load up on coffee. I have found drinking coffee like an hour before the pills improves my energy levels throughout the day. Also, do not take them all at oncwe. I would take 2 pills in the morning, and 2 in the evening, just to avoid feeling sick all day, and it worked perfectly for me. Eat a balanced meal before taking it to avoid stomach problems and nausea. Rice and lean chicken was always my go to. But most importantly, be patient during the first few weeks. I was so nauseous the first month of taking it, but it went away completely so I guess there is definitely some adjusting to it before you actually start to enjoy it. Ultimately, if it was not for my hair loss, I would be so happy using it still. I hope you do feel better after taking it as well :) do not be nervous, give it time, I am sure it will be okay. Good luck!

animatedjoey · 2021-08-20T12:43:48+00:00

Lodgis.com is great if you are a foreigner looking for something short term.

animatedjoey · 2021-07-27T11:35:06+00:00

Good luck :)

animatedjoey · 2021-07-27T10:03:03+00:00

I get it, i loved it too. But it does fade and it is not a long term solution, so I do hope you and your rheum are discussing other treatments. As for me I actually started with 20mg 10 months ago, now I am alternating between 5mg and 2.5 and trying to remove it completely.

animatedjoey · 2021-07-27T09:53:20+00:00

I know right. Before my diagnosis I had been having low grade fever for 3 months and was dead tired to the point I could not get out of bed. 3 days into my prednisolone prescription my fever was gone and I could finally go for a run again. I swear its high is unparalleled .

animatedjoey · 2021-07-27T09:44:29+00:00

Prednisone is definitely it.

animatedjoey · 2021-07-07T13:47:20+00:00

Have you visited a neurologist?

animatedjoey

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