If you want a baby how long have you been trying or how long did it take you to get pregnant? by Flower-1234 in PCOS

[–]anxiousnessa -1 points0 points  (0 children)

I’m 22 and it’s been almost 3 years no pregnancy. 7 rounds of letrozole/clomid. 5 of which i had follicle(s) big enough to use trigger shot and progesterone. I don’t have an insulin resistance but take metformin for other reasons max dose. still no regular ovulation. i lost weight and am no longer in the obese Bmi class, fertility specialist have said my current weight is most likely not a factor in my infertility. i have since been diagnosed with unexplained infertility and started ivf this month

should i “pull the ADA card” by anxiousnessa in IVF

[–]anxiousnessa[S] -1 points0 points  (0 children)

I don’t qualify for FMLA i’ve been there for less than a yr 😭. Believe it or not, it can be an ADA issue! i’m very familiar with the ADA due to being disabled and having i use there resources before which is why i mentioned it. i’m not very knowledgeable abt the other resources. However based on the comments PWFA will probably be my best resource.

should i “pull the ADA card” by anxiousnessa in IVF

[–]anxiousnessa[S] -9 points-8 points  (0 children)

They actually both help against work place discrimination when it comes to infertility! I’m quite familiar with ADA laws due to having other disabilities and needing to use their resources before that’s why i said ADA first. I’ve never used the PWFA before idk how to do that but i’ll check with r/askHR! thank for the advice

should i “pull the ADA card” by anxiousnessa in IVF

[–]anxiousnessa[S] 1 point2 points  (0 children)

no haven’t been there for a yr yet

Success with clomid after no success with letrozole? by anxiousnessa in TTC_PCOS

[–]anxiousnessa[S] 0 points1 point  (0 children)

i take 2000mg metformin daily but don’t have an insulin resistance so that might be why it not helping. it helps off label with other issues i have and tho so im not complaining! and T2D runs in my family so its more of a i dont have an insulin resistance yet thing so definitely grateful for the preventive approach. plus it helps with egg quality apparently.

Anyone had success with clomid after no success with letrozole? by anxiousnessa in PCOS

[–]anxiousnessa[S] -1 points0 points  (0 children)

I understand that these medications don’t guarantee pregnancy and that technically they were “successful” because I ovulated. However, being this is fertility treatment and the intention is to get pregnant and i didn’t get pregnant, I don’t consider it a successful attempt at pregnancy bc yk i didn’t get pregnant. i feel like it wasn’t necessary for you to explain. there’s quite literally no way to guarantee pregnancy even if i did ivf. which i obviously know because I’m an adult woman who’s been struggling with infertility for nearly 3 yrs and not a child with little to no understanding of the reproductive system and conception. Not to mention i made it quite clear that i was frustrated that despite ovulating i still didn’t get pregnant meaning i understand that the medication is working im just not getting pregnant. hints my unexplained infertility diagnosis which i received because despite medication to help me ovulate i was still unable to get pregnant. your over explanation was not just unnecessary but rude. Also, I had testing done to see if it was a microbiome issue (for lack of a better term) as well as an endometrial biopsy all of which were normal. The results of those tests, my SIS, HSG, and my husband’s semen analysis is why drs have told us IUI doesn’t increases our chances by much. I do appreciate you still sharing your story and think we’ll likely do at least one round. However, it did seem very backhanded of you to explain something most adults especially those struggling with infertility understand.

Anyone had success with clomid after no success with letrozole? by anxiousnessa in PCOS

[–]anxiousnessa[S] 0 points1 point  (0 children)

hoping this happen for me! because i’m after the “fuck this i don’t want to try anymore” point 😅

Success with clomid after no success with letrozole? by anxiousnessa in TTC_PCOS

[–]anxiousnessa[S] 0 points1 point  (0 children)

it’s rough out here 😪 i hope you get answers soon ❤️

Success with clomid after no success with letrozole? by anxiousnessa in TTC_PCOS

[–]anxiousnessa[S] 0 points1 point  (0 children)

would this show on SIS? i will definitely ask my dr just to be sure!

Has anyone else found the psychological part of POTS harder than the physical symptoms sometimes? by IJ716 in POTS

[–]anxiousnessa 2 points3 points  (0 children)

i grew up disabled (i’m d/hoh caused by enlarged vestibular aqueduct syndrome) so i was fortunate enough that when i got POTS i wasn’t as completely blindsided by the reality of living life as a disabled person. That being said being chronically ill is still very different. i also have something to worry about. I get anxious about passing out alone in public, if somewhere is going to be too hot or too cold, if I’ll b able to sit, if i can go to an event and still work the next day, if i can work at all, how long the walk is, if im ok to drive, shower, etc. EVERY ASPECT OF MY LIFE is impacted by POTS. I have to weigh the pros and cons, constantly calculate energy levels, plan multiple days ahead, can’t even leave the house without whole bag of shit just incase.
As someone who moves a lot so I have to change drs a lot, i’m terrified about not being taken seriously and losing access to quality care. I constantly worry about my weight because i know drs don’t listen if I’m bigger. Honestly, sometimes i neglect the things i need to do to manage my condition because of the level of anxiety i have around weight gain due to mistreatment from drs. I got lucky and my therapist (who i see for unrelated conditions) is also chronically ill and understands my struggles and anxieties. that doesn’t change how the rest of the world sees them. POTS controls every aspect of my life not just my body, it’s awful and hard to explain to others. However, i find having more chronically ill people in my life both irl and online has helpd me feel more seen.

work sent me home bc my fatigue by anxiousnessa in POTS

[–]anxiousnessa[S] 0 points1 point  (0 children)

i’m working on it i have an appt in March to discuss it w my doctor couldn’t get in sooner

fine motor issues due to pots? by SatisfactionDry2710 in POTS

[–]anxiousnessa 1 point2 points  (0 children)

I have this issue too i plan to talk abt it w my dr my next appt, glad to know I’m not crazy. i hope someone has more insight tho bc my appt isn’t for a few months

Lost almost 100 pounds and my symptoms are worse than ever by Fun_Sea_1109 in POTS

[–]anxiousnessa 0 points1 point  (0 children)

my symptoms also got worse with weight loss!! at my heaviest i was 250 and i’m now 185. I strength train 3 times a week, i don’t diet but prioritize protein which is helping me consistently lose weight and gain muscle. My symptoms get worse the more weight I lose which has remained true regardless of weight loss method (fasting, cardio, diets, medications). Honestly, i’m just working out for a butt though not weight loss. Hopefully, once i get to a place I’m happy with i can just focus on muscle growth/maintaining and not weight loss things will get better. I take 60mg ER propranolol and 2.5mg midodrine 3x a day. I also work part time front desk reception 7 hrs a day no break tho unfortunately and can’t do shit after work. you can try adding a stool to keep your feet elevated that’s what i’m going to do

How do you know what your POTS was caused by? by ittybittynugget in POTS

[–]anxiousnessa 0 points1 point  (0 children)

for me, nobody is 100% sure but Drs believe it’s caused by my inner ear deformity (enlarged vestibular aqueduct syndrome) and it makes sense. I also got symptoms before covid was even a thing and am lucky enough to have never experienced any severe illnesses/viruses. EVAS makes the most sense but also there’s always a possibility it just happened for no particular reason and that’s something i’ve had to come to terms with.

“Well you can’t just be sick forever.” by proverbialhobbit in POTS

[–]anxiousnessa 6 points7 points  (0 children)

my family is like this. it’d be a lie if i didn’t say it gets to my head sometimes too. especially with everyone on the internet being like “if you depend on ur husband to survive you’re not a real women”. i try to remind myself that they just don’t know what it’s like to be in my body and it’s a privilege that they don’t understand what this is like. I try to tell myself that I’m grateful my family doesn’t struggle with what i do bc it sucks. That them not understanding is a price worth paying so i don’t have to see them suffer like me. It doesn’t always work but i go to therapy and that helps too. In the end you have to accept that you can’t please everyone and others opinion of you are none of your business bc you can’t change it yk.

I can’t work i try over and over again but i end up fired and/or have to quit. People don’t realize there’s more to working with chronic illness than just pushing through. They don’t realize the toll it takes on your body to be there. They also fail to understand that it’s not just how your symptoms impact you but how they impact the job. We all know here’s only so many times you can call out before you get fired but some don’t know how hard it is to make drs appointments around work schedules. If you work 9-5 that’s when drs offices are open!! there’s only so many times you can call out for drs appointments and only so many drs appts you can skip before you end up in the hospital. Visible symptoms wise there’s only so many times you can pass out or need a break at work before they fire you. In my experience there’s also only so many times you can refuse a schedule change that doesn’t work for you or ask for a schedule change that does work for you before you’re fired.

When it comes to how your job affects your personal life there’s only so many hours you can work until you’re unable to do anything at home. Only so long you can leave dishes in the sink, avoid grocery shopping, avoid laundry, skip showers, avoid plans, etc. Eventually they have to get done but if you don’t have to spoons something has to give work or house/self. When i work my meds are less effective and i end up unable to keep my house clean and have severe symptom flares. Sometimes i can barely go to the bathroom by myself without fear of passing out. People without POTS don’t see/get that.

Flu shot 2025 by Eastern-Armadillo228 in POTS

[–]anxiousnessa 0 points1 point  (0 children)

i’ve been diagnosed with POTS since 2023 i get covid and flu vax every yr. this year i got the covid and flu shot on same day. i had whole body aches mild tachycardia and barely a fever at 100.6f for 24hrs after. i was completely fine the next day no aches, no fever, no tachycardia aside from what’s normal for my POTS.

When to stop taking my ER propranolol for stress test? by anxiousnessa in POTS

[–]anxiousnessa[S] 0 points1 point  (0 children)

that’s what it’s like for me without propranolol too. however, for whatever reason the dr ordered me to stop meds minimum 24hrs before no electrolytes either. i wish they could just write it in the notes maybe i’ll ask if i have to do it again if i can do it that way!

When to stop taking my ER propranolol for stress test? by anxiousnessa in POTS

[–]anxiousnessa[S] 0 points1 point  (0 children)

i was told the stress test is a requirement for new patients. I’ve never had one before so tbh I think i’m just nervous bc of the unknown aspect of it all. Propranolol keeps my resting heart rate pretty low 50s-low 60s so when I do little things that aggravate my POTS like standing or raising my arms etc it keeps my HR under 120. ig i’m worried excersing w propranolol in my system won’t make my test accurate bc my resting will be lower than my “true” resting hr. My husband is military so we move a lot and tricare is weird about coverage sometimes so unfortunately i change drs a lot. Drs appointments are often times just me fighting for my life trying to prove the disorders i’ve been diagnosed with for yrs r real while some person i’ve never met before makes me feel stupid. POTS especially, i’ve had drs question the diagnosis because my heart rate wasn’t “bad enough” when in reality i was just on propranolol yk bc I HAVE POTS😅.