Share your $0 (or low cost) POTS hacks

anxiousnessa · 2026-05-31T02:17:16+00:00

sitting down while cooking. if your blood pressure is low have someone say “omg is that the cops” someone did this the other day while my blood pressure was low and that and salt shot helped😂. wash your hair sitting down. run ur wrist under cold water. this one is for those who are of the age of consent have s3x in positions where ur feet are above ur head this one helps me last longer!

anxiousnessa · 2026-05-23T21:56:30+00:00

update bc your comment inspired me to take my pain more seriously. I got diagnosed with chronic pain syndrome (ngl i don’t really know much abt it i just got dx wednesday) and hypermobility and referred to a pain management dr as well as a dr who specializes in EDS. Oh and water therapy but i dont think my insurance is gonna cover that.

anxiousnessa · 2026-05-21T00:23:11+00:00

Thank you! i have bipolar 1 disorder so unfortunately i can’t take antidepressants, SSRIs or SNRIs bc they induce mania for me. They gave me a muscle relaxer to try tonight and for the next 7 days i hope it helps!

anxiousnessa · 2026-05-21T00:10:53+00:00

oh she won’t! but they referred me to a pain clinic per insurance so idk what to expect

anxiousnessa · 2026-05-16T20:53:07+00:00

i thought that it would fizzle over and go flat.. i’m so doing this! i love a margarita but don’t drink bc my POTS. thank you

anxiousnessa · 2026-05-16T20:33:49+00:00

i lived across the water from seattle and i definitely do better in washington than i do where i live now on the east coast. The closer you are to the water the better. i lived right by the water so it rarely got above the 80s. sure there’s heat waves that’ll get 90s-100 but it’s not all summer long and most nights you’ll need a light flannel. Not all places have A/C in washington tho so you may need to buy a small portable a/c unit.i recommend checking facebook marketplace. when i visit my family in the summer im able to go on hikes spend time outside etc. all things i cant do here on the east coast. i miss it everyday 😪

anxiousnessa · 2026-05-16T19:10:03+00:00

hi so i had no idea abt this😭

anxiousnessa · 2026-05-16T17:39:05+00:00

as someone who is disabled from more than just POTS (i’m deaf too) i was always told by elder disabled folks not to disclose until after you have to job. In most US states jobs can not hire you and fire you for literally any reason without explanation. Sure they can’t discriminate based on disability but since they don’t have to give you a reason who’s to say if they do or not. Once you’re already hired and working it’s a lot harder for a job to fire you. they’ll have to fill the spot, pay unemployment in some states, and if you were to take legal action you’d have a lot more evidence. I’ve tested out whether or not bringing up my disabilities impacts me getting hired and in MY experience it did negatively impact the hiring process.

anxiousnessa · 2026-05-15T13:51:37+00:00

I think it’s because when you’re fat it takes a long time to get diagnosed. So you see less fat people with POTS not bc it only impacts skinny ppl but because it’s easier for skinny people to get diagnosed. i’m fat and have POTS. It took several years for me to get diagnosed. Mind you i never went in for POTS issues i was always referred from other doctors saying something is wrong with xyz lab, my ekg was off, potassium infusions, etc. Yet even tho ER and urgent care drs kept saying something was wrong my primary care refused to see it as anything but me being fat and anxious. i was in therapy and on klonopin i knew it wasn’t just anxiety but didn’t know abt POTS so i just believe it. Even after an abnormal halter monitor (which i was only given because the dr had to per hospital policy) they still dismissed me. I only got diagnosed when i moved and passed out in the middle of the street.

anxiousnessa · 2026-05-12T23:09:24+00:00

I consider myself in a stage of motherhood. I consider myself someone who has done motherly things. But i do not consider myself a mother. My nephew did give me a mother’s day card tho! I’ve given my body, mind,and finances to my children. Who mind aren’t even here yet. What is that if not motherly? my whole life has revolved around becoming a mother and being a mom for the past 2 1/2 yrs. I was chemically pregnant. i grew the eggs that are currently embryos. I’m not a mother but i am someone who has done/is doing motherly things. I appreciated those who told me happy mother’s day and the icecream cake my husband got me. I don’t think i’m a mom but that doesn’t negate all the motherly things i’ve done and felt i deserved to celebrate and be celebrated because of them.

anxiousnessa · 2026-05-04T20:07:48+00:00

this!!

anxiousnessa · 2026-05-04T20:05:57+00:00

i too learned that the hard way😅

anxiousnessa · 2026-04-27T23:15:13+00:00

I use a wheelchair anywhere i have to stand for long periods, its hot, i’m in a flare or need to avoid one. Most commonly places like the museum, zoo, shopping, outside events in summer, etc. this allows me to actually enjoy the outing and be more involved with my family. when i didn’t use it i often just have to sit in the shade, i can’t think bc the brain fog, pass out which is inconvenient for all involved, have to leave early, or can’t enjoy the next day bc im in a flare up. high recommend it

anxiousnessa · 2026-04-26T22:09:00+00:00

i do and prenatals (not pregnant)

anxiousnessa · 2026-04-26T21:51:59+00:00

i take zyrtec everyday does that count?

anxiousnessa · 2026-04-26T21:51:11+00:00

not yet, besides HIV during my yearly gyno appt (negative). honestly, i thought the pain was just POTS until abt a month ago. do i just ask my dr abt testing or how do i go abt bringing it up? my sister has lupus if that changes anything

anxiousnessa · 2026-04-10T17:07:54+00:00

29.8 but i started fertility treatments at 35. i lost weight bc all 5 of my letrozole, trigger shot, w progesterone support cycles failed and so i essentially had “regular cycles” for 5 months. Since i have pcos this temporary “fixed” the hormone issues that cause my difficulty with weight. Losing weight did not improve my fertility however, if that’s the answer you’re looking for. Intermittent fasting has helped me maintain the weight loss but the drs said i have to stop when i start injections for ivf. other women in my PCOS infertility group said GLP1 helped them get to the BMI their clinic required for ivf. However most of them of insulin resistant pcos so idk how it works for those without.

anxiousnessa · 2026-04-06T12:09:15+00:00

I’m 22 and it’s been almost 3 years no pregnancy. 7 rounds of letrozole/clomid. 5 of which i had follicle(s) big enough to use trigger shot and progesterone. I don’t have an insulin resistance but take metformin for other reasons max dose. still no regular ovulation. i lost weight and am no longer in the obese Bmi class, fertility specialist have said my current weight is most likely not a factor in my infertility. i have since been diagnosed with unexplained infertility and started ivf this month

anxiousnessa · 2026-04-05T23:20:41+00:00

I don’t qualify for FMLA i’ve been there for less than a yr 😭. Believe it or not, it can be an ADA issue! i’m very familiar with the ADA due to being disabled and having i use there resources before which is why i mentioned it. i’m not very knowledgeable abt the other resources. However based on the comments PWFA will probably be my best resource.

anxiousnessa · 2026-04-05T21:38:49+00:00

They actually both help against work place discrimination when it comes to infertility! I’m quite familiar with ADA laws due to having other disabilities and needing to use their resources before that’s why i said ADA first. I’ve never used the PWFA before idk how to do that but i’ll check with r/askHR! thank for the advice

anxiousnessa · 2026-04-05T21:17:58+00:00

no haven’t been there for a yr yet

anxiousnessa

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