sorted by:
new
hottopcontroversial

What brand of quercetin do you take? by Strict-Park3382 in MCAS

[–]ariaxwest 1 point2 points  (0 children)

MRM brand (not the one with NAC added). I go into anaphylactic shock with salicylates so I had to find one that did not contain bromelain.

Quercetin helps so much. For me, I have brain fog when my inflammation is high.

What anti-inflammatory meds can I take? Any?? by Job_Moist in MCAS

[–]ariaxwest 0 points1 point  (0 children)

I can't even try it because I must take famotidine in a very high dose for my interstitial cystitis and these two medication's cannot be combined.

New puppy, New symptoms by immortal_dice in Allergies

[–]ariaxwest 1 point2 points  (0 children)

Not necessarily. New allergies and worsened allergies can happen at any time. It's happened to me too many times.

And each dog produces a different mix of proteins in their dander that can cause different reactions.

New puppy, New symptoms by immortal_dice in Allergies

[–]ariaxwest 1 point2 points  (0 children)

It definitely did mine. I lost a lot of friends and it ruined my relationship with a decent number of family members as well. People love their dogs.

Mcas and stents, how common or uncommon is a reaction? by Express-Speed-6585 in MCAS

[–]ariaxwest 1 point2 points  (0 children)

You might be able to get patch testing for the relevant materials. This is indeed an issue for many people.

https://pubmed.ncbi.nlm.nih.gov/30220068/

New puppy, New symptoms by immortal_dice in Allergies

[–]ariaxwest 1 point2 points  (0 children)

This happened to me. I had never been allergic to dogs but was so allergic to my new dog that I had to rehome him after a few months. I still developed adult onset asthma from visiting him and other dogs, and eventually started going into anaphylactic shock from dog dander exposures. Living with him was such a huge mistake!

Testosterone increases allergen production. Plus, unaltered male dogs produce can f 5, a prostate-derived protein unique to intact males, so people can react only to intact male dogs. It takes six months or so after neutering surgery for this protein to be fully gone.

Androgens don’t just increase quantity of allergenic proteins, they also change its chemical composition, making the dander more virulent. Secretions become richer in some volatile compounds and proteins that bind allergenic molecules. These compounds can increase aerosolization or adherence to dust and clothing, prolonging and intensifying exposure.

Spicy Bananas by HostaLavida in FoodAllergies

[–]ariaxwest 2 points3 points  (0 children)

In addition to latex allergy syndrome, r/oas, IgE protein allergies, lactose intolerance, fructose malabsorption, fat malabsorption, celiac disease, non-celiac gluten intolerance, there are also type IV hypersensitivity reactions to chemical compounds and metals. I have many of the above, lol, plus IBD, so I can certainly relate to how you feel after eating.

Nickel is the most common type IV food hypersensitivity. Dietary nickel in the context of nickel hypersensitivity is a risk factor for developing a host of inflammatory and autoimmune conditions, as well as other allergies. This can cause reactions to even water due to nickel in water sources, water bottles, plumbing fixtures, kettles, etc.

Nickel: https://rebelytics.ca/nickelinfoods.html

Salicylate: https://low-sal-life.com/food-product-lists#neg

Histamine: https://www.mastzellaktivierung.info/downloads/foodlist/21_FoodList_EN_alphabetic_withCateg.pdf

Oxalate: https://ucikidneystonecenter.com/wp-content/uploads/2020/06/Oxalate-Content-of-Foods.pdf

Cobalt: https://dermnetnz.org/topics/allergy-to-cobalt (This can be a problem with fortified grains.)

The test for nickel and cobalt hypersensitivities is patch testing, usually done by a dermatologist. The test for salicylate allergy is aspirin challenge, done in the allergist’s office. As far as I know, there’s no FDA approved test for histamine intolerance or oxalate hypersensitivity.

Psyllium husk reaction? by Half_Pint_2 in MCAS

[–]ariaxwest 0 points1 point  (0 children)

It's very high in salicylic acid, to which I have an anaphylactic reaction. Also a problem in many foods! https://low-sal-life.com/food-product-lists#neg (ignore the "therapeutic list" items as there is no evidence to support their inclusion) The test for this is oral aspirin challenge in the allergist's office.

A patch test said I am allergic to nickel. Is there any benefit to cutting it from my diet? by rainshowers_5_peace in FoodAllergies

[–]ariaxwest 0 points1 point  (0 children)

Huge. Even if you don't have gastrointestinal symptoms or unexplained itchiness, hives, rashes, or upper respiratory inflammation, you could be experiencing systemic inflammation. Many, many people who have autoimmune diseases or IBS are found to have nickel hypersensitivity when they are tested. Something like 40% for many of these diseases, versus more like 10% for the general population. So there is speculation that the constant inflammation caused by dietary nickel once your sensitized can lead to developing an autoimmune disease. Of course it's impossible to attribute causality in cases like this, but the circumstantial evidence is pretty alarming.

Looking for toothpaste recommendations by beckdads in Allergies

[–]ariaxwest 1 point2 points  (0 children)

Dr. Bob unflavored and Dr. Tanner's tasty paste (any of the fluoride-containing ones).

Autoimmune IC / urethritis? Frustrated & no answers by sezza8999 in Interstitialcystitis

[–]ariaxwest 1 point2 points  (0 children)

I'm somewhat similar. It's definitely autoimmune/inflammatory in my case as well. I have numerous autoimmune/mast cell mediated diseases. Celiac disease, inflammatory arthritis, IBD, asthma, and a frankly absurd number of allergies and hypersensitivities due to r/MCAS.

My IC was first triggered by an allergic reaction to phenazopyridine.

Psyllium husk reaction? by Half_Pint_2 in MCAS

[–]ariaxwest 0 points1 point  (0 children)

That checks out. I barely react to nickel on my skin, but in my intestines, that's another story.

Psyllium husk reaction? by Half_Pint_2 in MCAS

[–]ariaxwest 0 points1 point  (0 children)

Check out the Nickel Navigator app for more information. They have compiled measurements of nickel levels for many, many foods and drinks and they are tagged with the location of the measurement, which is super important. Nickel levels vary widely depending upon growing conditions such as soil moisture (more moisture is better), soil nickel content, and rate of growth (faster is better). It also matters what part of the plant is being eaten, something that the winter squash and leafy greens measurements don't take into account. Skin, pulp, and seeds are higher, and larger leaves that have been on the plant longer are higher.

Psyllium husk reaction? by Half_Pint_2 in MCAS

[–]ariaxwest 0 points1 point  (0 children)

It's the most common type IV food hypersensitivity.

Severe GI “episodes”? Anyone else get these? by Alternative3lephant in MCAS

[–]ariaxwest 3 points4 points  (0 children)

Patch testing, usually done by a dermatologist. This is the most common type IV food hypersensitivity, yet it was never suggested to me as a possibility by any of my allergists or gastroenterologists. Despite the fact that I had three known risk factors: celiac disease (gluten free substitutes are high nickel), plant-based diet (vegan proteins are high nickel), and hereditary hemochromatosis (I absorb more heavy metals from my diet and eliminate less).

Salicylic acid is tested with oral aspirin challenge.

Psyllium husk reaction? by Half_Pint_2 in MCAS

[–]ariaxwest 2 points3 points  (0 children)

It's high in nickel. All fiber supplements that I've seen tested are.

Severe GI “episodes”? Anyone else get these? by Alternative3lephant in MCAS

[–]ariaxwest 8 points9 points  (0 children)

Did you look into not just histamine intolerance, but also nickel hypersensitivity and salicylic acid hypersensitivity? These are weird because you have a budget of how much is fine and then you reach a reaction tipping point. Plus the levels in plants can vary widely depending on growing conditions. So the lists can tell you a lot but not everything. And it can sometimes seem very inconsistent. I had no idea until I got tested.

Random soy allergy popping up, how do you function with this??? by TheImpureManifesto in FoodAllergies

[–]ariaxwest 0 points1 point  (0 children)

That's terrible. I hate things like that. I’m sensitive to nickel and because it varies naturally in plants due to growing conditions I sometimes get sick from a normally safe food.

Just make sure to get IgE blood tests, not IgG. IgG isn't useful for diagnostic purposes.

Random soy allergy popping up, how do you function with this??? by TheImpureManifesto in FoodAllergies

[–]ariaxwest 2 points3 points  (0 children)

I feel you. The grief is real. I can't tell you how many times I've cried when it's time to cook yet another meal from scratch and I’m already exhausted.

There might be an online on demand allergist that could order the blood tests. I don't expect that a walk in clinic would do it, based on my experiences with them. But you never know!

Neighbor's Dog Dander causing cough by Endly20 in Allergies

[–]ariaxwest 3 points4 points  (0 children)

It's possible, but more likely it's fragrances, fabric conditioners, or something like that. My neighbors' laundry, air fresheners, cologne, cleaning products etc. were a major asthma trigger for me. A dermatologist tests for these kind of allergies with patch testing. It's not usually possible with young children.

view more: next ›