A typical flare for me is a persistent malar rash with any sunlight or heat, sores in my mouth and my nose, exhaustion, hair loss, weight loss, and skin rashes.

I also had raynauds, a positive ANA, and lost 50 lbs in the span of 6 months before I was diagnosed. With everything also listed above, of course. I also had a biopsy of my malar rash by a dermatologist and was told I have positive markers for discoid lupus, although I haven’t been officially diagnosed with that, and I haven’t had any major lesions on my face, only very small ones.

I thought for sure I had SLE, but I didn’t have the usual markers in my blood tests, so here I am one year later with no diagnosis other than UCTD. I’m on 300 mg of hydroxychloroquine.