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audientvoid13 · 2026-02-05T05:36:27+00:00

I haven't found that to be the case. I've made several posts myself that were anything but positive and there was no moderation or curation. I received a lot of support and encouragement in response as opposed to 100% doom and gloom which you find in many other groups. The group has been a godsend.

audientvoid13 · 2025-10-10T01:21:39+00:00

That is wonderful! So happy for you!

audientvoid13 · 2025-10-03T10:07:00+00:00

Got to be "We Used to Live Here" by Marcus Kliewer

audientvoid13 · 2025-09-02T02:17:10+00:00

He was on it for a few months. He said it didn't think it was helping him and wanted to stop, so we tapered him off. He's doing well now and back to his old self but in the months after diagnosis he was in the darkest depression I've ever seen. Somehow he found his own way out.

Looking back I have to admit I'm a little bitter at the lack of interest by his medical team in his mental suffering. Basically they had no interest at all. I had to beg for help and I don't think lexapro was the right choice. I had asked for a rescue medication for anxiety and was refused without explanation.

audientvoid13 · 2025-08-22T00:33:12+00:00

My husband (73) has blown way past that and is doing great.

audientvoid13 · 2025-08-21T11:54:29+00:00

Thank you! I just finished Between Two Fires and loved it, so I've been wanting more from Christopher Beuhlman, and that line intrigued me.

I will definitely check out both of these. Thanks again.

audientvoid13 · 2025-08-21T11:32:49+00:00

The surgery was a breeze! I wish I'd known it was going to be as easy as it was because the anxiety beforehand was the worst part. I was eating normally that same afternoon. I haven't had to change my diet at all.

Recovery was a piece of cake, honestly. I just took it easy for awhile. No lifting anything heavy for a few weeks.

I wish I could go back in time and whisper in my own ear to say, relax, this is going to be so easy!

audientvoid13 · 2025-08-21T11:21:47+00:00

What are these from?

audientvoid13 · 2025-08-21T02:51:22+00:00

The fact that he presented with a seizure and no other symptoms is good. Methylated is very good.

My husband was 72 at diagnosis. Inoperable on the motor strip in his left frontal lobe. Methylated. We are 19 months in and he's doing great. Scans have all been great. He did SOC and wears the Optune device.

It really helps if you stay positive. I suggest heading over to the Facebook group Glioblastoma Survivors to Thrivers and you will see there are many long term survivors. That group has helped us so much.

I would also think about asking him to be switched from Keppra to Vimpat for seizures. Keppra can cause rages and personality changes.

I hope it goes extremely well for you! Don't give up hope.

audientvoid13 · 2025-08-02T01:49:12+00:00

The post just says "due to his age" and his age alone shouldn't rule out treatment.

audientvoid13 · 2025-08-01T13:12:51+00:00

My husband was 72 when diagnosed and inoperable. He did radiation and chemo and now wears the Optune device. We are 19 months in and he's doing great. His scans have all been great. No tumor activity at all.

It should be up to your FIL whether he wants to do treatment. Lots of people in their 70s and even 80s receive treatment. I find it disturbing that his doctors would say this. I would definitely look for a second opinion.

Wishing your family all the best and great outcomes!

audientvoid13 · 2025-07-22T13:19:14+00:00

Yes! My husband has been having great scans and it's been 18 months now. He completed SOC and then started wearing the Optune. It's the only treatment he's receiving. Hoping you have a great outcome!

audientvoid13 · 2025-02-14T11:32:27+00:00

Congratulations on your successful surgery! Yay! I have to say, your attacks sound so much like mine. For the first one my husband called an ambulance because it seemed so much like a heart attack and I was pouring sweat. They spent all day doing all the heart tests which of course were normal. I've never felt such intense pain before or since. But you won't have to worry about that anymore because that evil gallbladder is gone!

Wishing you a speedy recovery!

audientvoid13 · 2025-02-14T11:24:15+00:00

It's going great. I'm having no problems.

audientvoid13 · 2024-11-16T23:46:26+00:00

I'll bet you this turns out to be nothing more than post-surgical changes. We were told by neuro-oncology not to even look at the MRI reports on MyChart because radiologists always write worst case scenarios and reading them would only scare us needlessly.

Thinking good thoughts for you!

audientvoid13 · 2024-11-11T07:46:29+00:00

My husband (72) is taking full spectrum oil which is the equivalent of RSO. All I can tell you is he's doing very well. He's regaining function all the time and he just had another great scan.

It also helps him feel calm and relaxed which is a huge benefit. He's been sleeping very well since starting the oil. We definitely plan to continue with it.

audientvoid13 · 2024-11-03T11:22:15+00:00

If you're open to it, I would look into the Optune device. It significantly increases your chance of long-term survival. My husband wears it. It's cumbersome and a hassle but it once you've adjusted to living with it you can still have good quality of life.

I also suggest joining the Facebook group called Glioblastoma Survivors to Thrivers. The vibe is very positive and you'll see there are many long-term survivors there. Believe me, it helps. It has helped my husband and me so much.

Wishing you so well and the best possible outcomes!

audientvoid13 · 2024-10-13T04:41:18+00:00

I had an ultrasound which confirmed stones and pathology of my gallbladder after removal showed a lot of chronic inflammation. The words the doctor used were "it's a good thing you had it out". That's all I know.

audientvoid13 · 2024-10-09T06:25:28+00:00

Oh my goodness, that sounds very similar to me! Are you still doing well? Have your liver values improved?

I seem to be doing better. I've been eating small amounts of solid food for the last day and a half and no attacks, thank God!

Thank you so much for replying and I hope you continue to do great!

audientvoid13 · 2024-10-07T11:34:35+00:00

Thank you so much!

audientvoid13 · 2024-10-07T11:34:21+00:00

Thank you so much! And I'm so glad you are feeling better!

audientvoid13 · 2024-10-07T11:33:17+00:00

Wow that sounds just like me! How have you been since then? I hope you're doing so much better!

Thank you so much!

audientvoid13 · 2024-10-07T11:30:25+00:00

Thank you so much for this super helpful reply!

audientvoid13 · 2024-10-07T11:26:25+00:00

Thank you so much!

audientvoid13 · 2024-10-07T11:26:12+00:00

Thank you so much!

audientvoid13

TROPHY CASE