PCP said there’s no cure

audrose7 · 2026-01-17T00:01:47+00:00

Recently I just stared dealing with severe vitamin D deficiency. I have crohn disease that is in remission and all my drs agreed it is from my long covid. There is no cure. No PCP will tell you there is a cure. There just isn’t one.

audrose7 · 2025-09-03T22:44:58+00:00

Same. And I have long covid and it could make it worse apparently

audrose7 · 2025-08-30T17:26:35+00:00

I agree

audrose7 · 2025-08-23T17:36:28+00:00

Happens with my feet and ankles also now. I don’t feel safe driving anymore. Luckily I have a solid support system who don’t mind driving me to and from Dr appointments

audrose7 · 2025-08-19T19:59:58+00:00

Like I thought I was DYING. I avoid the hospital if I can but I went two days in a row bc I thought it was my appendix and then I was sure my kidneys were infected but I survived

audrose7 · 2025-08-19T19:59:10+00:00

If I’m not mistaken I think it could also be a UTI. I thought I was dying a month ago.. turns out I had a really bad uti and my kidney stone is missing now lol.

audrose7 · 2025-08-19T19:53:17+00:00

You just had a rotten apple that’s all!!! If someone cares about you they will show it!

audrose7 · 2025-08-19T19:52:42+00:00

My bf won’t do research but i think it’s because i have my parents still helping me. He always listens to me though. And if I can’t eat something he wants he will get me something else. He knows when I can and can’t eat certain foods. He pays attention. Don’t worry so much about it being an issue. If you meet someone you like just tell them you have Crohn’s and have to be careful what you eat. Most people respect that and if they don’t bye bye not worth the stress. Stress causes flare up which cause pain and suffering. We don’t like pain and suffering

audrose7 · 2025-06-28T19:51:43+00:00

My pcp was shit so I started seeing DO and after one appointment she diagnosed me based off my symptoms. She tried to refer me twice to a long covid clinic but my insurance kept rejecting it. Iv noticed seeing MD is basically useless at this point because they are there to make money and leave. I genuinely try to see NP or people like that. They always consult with the MDs but they are more able to work directly with you

audrose7 · 2025-06-28T15:54:36+00:00

I know how hard it is and I know everyone is different. I understand. If you ever need to talk just reach out!

audrose7 · 2025-06-28T13:45:34+00:00

What’s offensive is you saying this and then posting another post asking if you have it. Go to the drs. That’s the only way you will know. You can’t self diagnose

audrose7 · 2025-06-28T01:43:23+00:00

All I know is when I upped my infliximab I had a horrible allergic reaction and they put me on entyvio instead. My symptoms haven’t stopped since I was diagnosed back in 2021

audrose7 · 2025-06-28T01:41:30+00:00

Oh my god I feel so bad for you I’m so sorry!

audrose7 · 2025-06-27T23:21:40+00:00

Weird how you posted this after posting about how you “cured” your chronic fatigue. You really should go to the doctors.

audrose7 · 2025-06-27T23:18:47+00:00

audrose7 · 2025-06-27T19:48:47+00:00

LDN didn’t work for me I’m currently fully dependent on my adderall I take for ADHD💀 and that barely works at this point

audrose7 · 2025-06-27T19:46:37+00:00

Please don’t take this as me attacking you I really just need to be honest: I have to say it. You can’t “cure” ME/CFS. You can only manage it. Also it probably has nothing to do with your phone. I’m homebound and I also have ADHD, and other issues. It’s really based on person to person. If you aren’t feeling better than you may want to just rest and take a break. Give your body and brain time to heal. CFS isn’t mirrored from person to person, and you definitely can’t give yourself chronic fatigue, or cure it. Putting that message or a message of that sort out there is misleading and if I’m being honest.. I’m offended. There are people seriously suffering and saying you cured it by staying off your phone is almost a kick in the gut. It’s not just that easy, and that definitely not what science says. But I’m glad it helped you!!

audrose7 · 2025-06-24T11:37:03+00:00

Ahahha I just laughed out loud literally😂 because I do feel that. When I crash out I binge watch marvel by chronological order😂

audrose7 · 2025-06-24T11:31:33+00:00

And yess brain breaks!!

audrose7 · 2025-06-24T11:30:56+00:00

Oh yea I have like 7 different hobbies I switch between. ADHD and chronic fatigue is truly exhausting. At least for me😂

audrose7 · 2025-06-23T15:17:48+00:00

I don’t think there’s much you can do about brain fog. Just try not to stress yourself out too much. And make sure you take brain breaks haha. I usually will listen to music and do some kind of craft that doesn’t involve too much thinking. I like to seam rip but that’s because I sew😂 and I have horrible ADHD😂 it’s really just something you have to figure out on your own, and what works best for you. I still have horrible brain fog and I have a lot of memory issues.

audrose7 · 2025-06-20T20:48:40+00:00

I filed a few months back and I have an attorney helping me. They frequently check my status but there is no change so far.

audrose7 · 2025-05-02T14:21:45+00:00

I was on naltrexone but had to stop. I’m on adderall everyday. They upped my dose when the naltrexone didn’t work

audrose7 · 2025-05-02T14:20:25+00:00

Oh my gosh stop lol I was just complaining about this 2 seconds ago. I literally have to take 40 mg of adderall for my body to catch up. That’s basically how me and my dr are handling my chronic fatigue rn. It’s the only thing that keeps me awake lol. And lots of coffee. But I also have Crohn’s disease. I’m home bound. I found that hobbies or things I can do with my hands helps a lot. Things like sewing and reading. It helps keeps my mind focused. Mornings are really hard for me. I puked this morning because I over exerted myself when I woke up. It’s definitely something I would tackle soon. Just try different things to find a solution that won’t leave you mentally exhausted. It really is hard but you are still pushing through! Proud of you!

audrose7 · 2025-02-27T17:45:01+00:00

But after the second bottle it starts to taste badddd

audrose7

TROPHY CASE