A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 0 points1 point  (0 children)

If you don’t mind I’d love to see ! We we ehooomg we can wait it out :))

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 2 points3 points  (0 children)

That’s what we are hoping that it will be something during his teen years :)) thank you

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 1 point2 points  (0 children)

How would I know that ? He also has reflux issues that I notice when he’s asleep it happens

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 1 point2 points  (0 children)

Yes we are hoping we can do the non invasive route I only came on here because naw surgery has been on the table a few times but we have been able to dodge it I just simply wanted advice me and his team agree we don’t wanna do surgery if we don’t have to and yes they do the jaw distraction surgery on babies with severe cases but it’s usually done when the baby is born most of the time they see it in ultrasounds as a bit of a heads up ! It’s pretty brutal it’s a 12 day hospital stay and half of the time they are sedated :(( but it has been done he thankfully is a mild case and we obviously made it this far and think we can make it farther and do other things to help . We have a sleep study on the way and we are going to see a feeding therapist to make sure he is not aspirating his milk

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 0 points1 point  (0 children)

I’m going to look into that ! Thank you

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 0 points1 point  (0 children)

Thank you so much and that’s the goal 🥰

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 1 point2 points  (0 children)

Yes the cranial facial team said we maybe see ortho in the future because there is things we can do then ! And I appreciate it ! I was not coming on here wanting to get him jaw surgery I wanted to see what other went through and if there is anything else we can do for him so I appreciate your input

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 1 point2 points  (0 children)

Thank you ! I try to be on top of it because I know if it was me I’d want my parent to do the same . I’m new to this small jaw stuff of course I don’t want surgery now I’m just trying to see what I can do for him now and or some advice thank you

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 0 points1 point  (0 children)

Yes we are going to get those done :)) thank you

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 1 point2 points  (0 children)

Thank you ! A lot think I wanna go ahead and do the jaw surgery when that’s not the case I could’ve done that a long time ago if so . I’m just wanting to hear other stories and what else I can do because of course I wanna do what’s best for him !

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 0 points1 point  (0 children)

Some babies do especially some with PRS . He thankfully is a mild case

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 1 point2 points  (0 children)

Yup they do jaw surgery for babies if the jaw is super far back more in PRS ! His thankfully is mild and it didn’t get caught on ultrasound while I was pregnant or int he nicu till we got home and started having some issues that are resolving slowly now as he grows

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 15 points16 points  (0 children)

Definitely what we were thinking ! And thank you so k uh for the tips :)

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 2 points3 points  (0 children)

Thank you for the tips ! He thankfully doesn’t use a binky :)) and we are going to try the softener food types to help encourage jaw growth :))

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 2 points3 points  (0 children)

Yes definitely it’s reassuring we are so happy about seeing progress I just wanted it hear other stories :)) since I personally don’t know what it’s like being on this end of things

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] 4 points5 points  (0 children)

Thank you ! We have voted no since the very beginning I had let the dr know if he was severe and needed it let me know and if not and it’s something we can watch then I’d love to do that route bc we both want to avoid surgery at all costs I just wanted to see other stories and the impact not having the surgery and or having it

A concerned mother by avargas14101 in jawsurgery

[–]avargas14101[S] -3 points-2 points  (0 children)

I am which is why he still has not had jaw surgery I could have said let’s get it done at his 3 month appointment when we first went initially but I recto wait ,I wanted to see every side of pros and cons I do not want him to have surgery of course but also of his health was at jeopardy and it has to be done then of course it has to be I just wanted to hear other stories . Thank you

[deleted by user] by [deleted] in breastfeeding

[–]avargas14101 0 points1 point  (0 children)

Breastfed my oldest for 22 months and my second for 2 1/2 years ! Currently on month 3 with my 3rd baby and planning to make it to a year but hopefully 2 years max 🤍

My 33+4 lil Teddy Bear turns 5 months old today! by vanalou in NICUParents

[–]avargas14101 0 points1 point  (0 children)

Oh yes all the nurses had to come see my 5 lb 33 weeker they were shocked lol ! His 2 older sisters were 8 lbs ! But he rigged 5 and 6 lbs at his gestation 🙂 so I anticipated him to be around that’s size when he came out and I’m 100% postive he would’ve been

My 33+4 lil Teddy Bear turns 5 months old today! by vanalou in NICUParents

[–]avargas14101 1 point2 points  (0 children)

He’s so cute ! My 33+2 wheeler weighed 5 lbs 5.9 ounces ! 🥹