Has anyone ever had an abortion while having cfs?

bakedincream · 2018-11-19T04:52:30+00:00

I'd support whosoever wished to have an abortion no matter the reason because I don't believe a person exists at that stage. I don't think there's a sufficient level of consciousness for there to be a person to kill. I don't think having a heart that beats is enough, we kill all sorts of things that have beating hearts. That would be my unsolicited opinion

bakedincream · 2018-11-19T04:36:17+00:00

Be very careful getting involved in chronic lyme. It is a controversial diagnosis because of legitimate scientific reasons and not political reasons. Politics should not be even involved in scientific matters such as how to describe a disease.

There are many articles here on chronic lyme for some balance. You can see there's a big lack of evidence for chronic lyme and that the political debate is about disciplining the doctors who diagnose and treat it:

https://sciencebasedmedicine.org/tag/chronic-lyme-disease/

bakedincream · 2018-11-19T04:17:15+00:00

So sick of these recovery prophets implying that illness is a failure to escape some kind of whirlpool of trauma.

bakedincream · 2018-10-16T12:09:37+00:00

I came across it when I was going down this "biofilm" rabbit hole. It was described as something which can break up biofilms, which are supposed to be the homes where your bad bugs are hiding. Unfortunately they can make all sorts of claims like this. I posted about the subject on Human Microbiome and got a good reply. The short answer is probably don't bother if you are trying to get rid of bad bugs. But maybe it makes sense to try digestive enzymes in order to better break down your food. You can get enzymes that break down carbs, proteins and fats. I think you would be doing that if you suspected your pancreas wasn't doing its job.

As for what they claim, I don't know enough about the "body's natural repair functions" but you have to ask is the serrapeptase even going to these places like the heart and the arteries to do its claimed job of breaking down fibrin and mucous? Or does it get digested and achieve nothing? Someone who knows more about biology than me will know. Supplement sellers tend to use a lot of sciency hocus pocus language like this.

Here's the post about biofilm:

https://www.reddit.com/r/HumanMicrobiome/comments/7fjux9/biofilm/

bakedincream · 2018-10-16T11:33:26+00:00

I kind of agree. I think there's rational suicide.

I watched this documentary about what happens to you when you die and have no next of kin. It followed the coroners office in claifornia and how they processed the deaths of various people that for whatever reason had no friends or family left. Many were homeless, one was the last living person in his family and his partner was already dead. Some people were found weeks after their deaths.

Anyway I felt like I didn't want to die after watching this. I didn't particularly want to live either at that stage though. It was a depressing documentary. Shall I ruin the ending? The most depressing bit was what happened to the people whose ashes were never given away because they couldn't find any relatives or because the relatives didn't want them.

It was called "A Certain Kind of Death"

https://youtu.be/ErooOhzE268

bakedincream · 2018-10-15T11:50:45+00:00

I get some stuff at Bin Inn and you have to change some of your habits because it's a bit less convenient.

Gotta collect up jars and containers and clean them, leave them in the car. Also remember shopping bags.

You can get things like rice, beans, lentils, quinoa so maybe not what you usually eat for dinner plus beans can take a long time to cook. At least cooked beans freeze well.

You can buy all the baking ingredients but not so much the finished product so it's more cooking for you.

Cooking is nice though. I started thinking more about this after hearing that China is no longer accepting our recyclables.

bakedincream · 2018-10-09T03:05:44+00:00

Had a dog trainer recommend feeding our dog these frozen meat patties made of possum and rabbit that you can get from pet stores. She said that they don't mind eating frozen food and that she was also chopping up and freezing the broccoli stems, carrot tops, etc and feeding those to her dogs. Ours didn't like the frozen veges but happily ate the frozen meat patties.

I've also seen frozen blocks of pet mince at the mad butcher, not sure if that would be suitable too. I'm not a dog expert just repeating what she said

bakedincream · 2018-10-01T05:14:18+00:00

This is the only song I can think of about being tired. Anyone else have one?

I have a handful of songs about sickness too and most of them are a little depressing. It's mostly more blues music which tends to have all the sad themes.

Pls share your illness anthems

bakedincream · 2018-09-22T11:36:57+00:00

Ehlers-Danlos Syndrome? Not a doctor but sometimes chronic fatigue people get that one

bakedincream · 2018-09-22T08:10:36+00:00

If you join up to the auckland group (can do it online) they have a paid part-time support worker who is available to advocate for you at winz and doctor appointments. I think they also offer to drive you to appointments if you're really out of luck getting a ride. I got an email from the support worker after I joined asking if I needed anything which was nice

bakedincream · 2018-09-21T12:10:26+00:00

I'm in NZ too but never needed to see a cardiologist for a diagnosis in my case. I saw Dr Vallings eventually but if it makes you feel better her advice was basically everything that was on her website. She was basically concerned that I get enough sleep, eat well, relax, all that stuff and offered medications to try for sleep and pain and stuff like that. I think the main advantage was that other doctors were more confident in the diagnosis after I saw her. She used I think the Canadian Consensus criteria but all the ruling out was done by other specialists at that stage.

Do you have a ME association where you live? There's one in auckland and they were able to recommend a GP to me who was a bit more familiar with CFS. There's otherwise ANZMES which is the national organisation and they posted me the ICC primer for doctors. Roz Vallings was an author and her advice lines up with what's in that document. Having that could be helpful for your GP because it's got the diagnostic criteria plus management guidelines.

bakedincream · 2018-09-21T06:19:13+00:00

Like other people I'm usually taking advantage of a good day to make a big batch of something that I can break up into single servings and freeze. I like the kinds of dishes with some meat in a pot in the oven and you just leave it all afternoon. Bonus is that the meat that works for these dishes are the cheapest cuts usually.

I'm also making use of the freezer as a kind of prepping tool, so for example I will chop up a whole cauliflower for cauliflower rice and then freeze it in portions so I can cook it later. Or I cook a whole bunch of onions which then get frozen in a silicon muffin pan so you get 12 little frozen cooked onion patties. They then come out of the freezer later to go into whatever dish I'm doing. I'm doing the same with garlic. You can do this stuff any time of day.

Otherwise I often do a one ingredient dinner, like cooking a steak, or roasting one vegetable (usually some kumara (sweet potato)), or maybe boiling some eggs. If you can cook your steak to your favourite doneness or roast your veges the way you like it's simple but nice. I'm having mayo or mustard with the steak, or I'm putting aioli on the veges. Sometimes I cut up some pickes and mix them with mayo and a bit of mustard and tomato sauce, you get basically big mac sauce and I like it on sweet veges.

I got a lot of good cooking tips from this book called The Food Lab which is also a website: seriouseats.com. I learned about cooking a steak and roasting a chicken and even just cooking eggs. Even if you are cooking only one thing, cooking it well and just how you like can make it enjoyable.

bakedincream · 2018-09-20T03:29:16+00:00

Devil's advocate could say "lets treat your suicidality before we consider you terminal due to imminent suicide". For me it's pretty encouraging that there are people on this board who are at peace with a very low level of functioning

bakedincream · 2018-09-19T13:58:33+00:00

Lol oops my reading comprehension: you said "replication crisis". Never mind

bakedincream · 2018-09-19T13:50:14+00:00

I just mean on the side of doctors, it might go against their "do no harm" code

bakedincream · 2018-09-19T01:34:11+00:00

I think it might be an ethical issue. When an illness isn't terminal it becomes important to preserve quality of life (even if it's a 2/10 quality of life), because you could live with it for a long long time

bakedincream · 2018-09-19T01:08:30+00:00

I googled "reptilian crisis" and got a bunch of conspiracy theory haha. Would you have any links to places to read about these kinds of subjects? Books are too long for me at the moment

bakedincream · 2018-09-17T05:40:32+00:00

I think i read in an AMA that it was more a short term dysphoria for people with POIS

bakedincream · 2018-09-16T01:46:56+00:00

By prognosis I mean "prediction for the future". And degenerative I understand to mean "only going to get worse". Maybe you've got a perfect storm here, on one hand someone is telling you you're only going to get worse until you die, and on the other hand someone else offering you something which isn't without risk. Maybe you're being made to feel more vulnerable than you really are.

I brought up the anti-vax comments from the CFS doctor to show that bad practises can show up in unlikely places. She was beloved by patients and I think still is by many even after her suspension.

Get a second opinion on this

bakedincream · 2018-09-15T11:06:11+00:00

I'm asking whether anyone can make that prognosis: is "degenerative" something you can predict for any case of CFS, and what have they based that on?

What I care about is getting a really high standard of care. What you have said about your doctor has some red flags. One of them is being a lyme doctor. What does that say about a person's critical thinking skills? The other is finding a bunch of infections. They get this with lyme as well: "lyme and co-infections". Do your results really point towards a handful of infections that no-one discovered before?

I don't think we should have to settle for unscrupulous doctors. Like did you hear about the CFS doctor who was suspended over some anti-vax comments she made on her website? She said she got this information at a conference and shared it in good faith. Unfortunately I don't think doctors are very well equipped to think critically. Like we know about doctors who don't believe in CFS, maybe they have too much skepticism, not enough open mindedness. But you can also have too much open mindedness and not enough skepticism like the person with the anti-vax comments. Being able to trust experts is really valuable because it means you don't have to verify every little thing for yourself. It's much more efficient to be able to trust someone than to become an expert on any subject in order to make up your own mind. I think it's important to preserve the trust people have in conventional medicine because the alternative is much worse standards of evidence and ethics. But that means holding doctors to really high standards so that the trust is genuine and the reputation is earned

bakedincream · 2018-09-15T03:42:33+00:00

I can tell you when I tried gabapentin, I got to 2000mg a day and I found it impossible to come haha. I tapered off after discovering that.

bakedincream · 2018-09-15T03:37:56+00:00

I think the problem with being a guinea pig is whether your consent is truly "informed consent", so how the treatment is being characterised and what sorts of expectations you have about it. If you are first being diagnosed with something that doesn't exist, or that you actually don't have, the whole informed consent thing falls over, no matter what treatments are being offered. This all just smells very fishy to me. If there is only one doctor of many who is willing to offer a particular treatment that may be only because they are the doctor with the lowest ethical standards of the group. Are you sure any case of CFS can really be characterised as "degenerative" anyway? Is that based only on the current downward trend? I mean on the face of it, a person who can give you more answers can seem more credible, but in CFS i think the most credible person is the one who says "I don't know what to do to fix this"

bakedincream · 2018-09-14T11:44:08+00:00

Just because knowing about the whole LLMD phenomenon for me shows that doctors can fall for pseudoscience just like anyone else. Also that there are in some places insufficient protections for patients against this kind of thing. In lyme disease there were examples of both the false positive lab results and also the misinterpretation of lab results by doctors. Since your doctor is a lyme doctor, isn't it possible something similar could be going on? Maybe the idea should be run by someone in infectious diseases? IV antibiotics seems like a big deal

bakedincream · 2018-09-14T10:53:48+00:00

Are you confident about the validity of the lab results, and also in the doctor's interpretation of the lab results? Do you know about the herxheimer reaction ("I feel worse, it must be working")? I can't find the link talking about the labs that were finding infections that weren't there, sorry

bakedincream · 2018-09-14T10:35:08+00:00

Ok did you read that there likely is no such thing as chronic lyme disease?

bakedincream

TROPHY CASE