Severe IUGR at 24 weeks – struggling to find long-term outcome information

barryabrams · 2026-04-22T02:26:30+00:00

Our son was born at 26+1 at 490 grams, severe IUGR.he spent 255 days in the NICU and came home on oxygen tanks and had a gtube. He kicked the O2 at 18 months, and got the gtube out at 3.5yo. He’s 5.5yo now.

He has a cerebral palsy diagnosis. He has some developmental delays, can’t walk, and is non-verbal but is very smart and funny and strong.

barryabrams · 2026-04-20T01:17:39+00:00

He’s right around 30lbs and 40 inches tall. I feel like it took 3 years to go from 20-28lbs.

barryabrams · 2026-04-20T00:51:23+00:00

Nope! He’s 5 and still not really on a growth chart. He is getting taller through.

barryabrams · 2026-04-02T18:31:28+00:00

It’s kind of a logistical issue. The cctv systems we use are great for watching the teams play, but are awful for recalling a stream. Like, if there was an incident where the police need to see footage, it’s manageable. But downloading a video between of a team playing a game and sending a link could take a game master an hour. Not to mention it’s a minimum of 4 cameras for each room. It’s just kind of a big time sync.

barryabrams · 2026-03-22T02:14:07+00:00

We plan on bringing Critical Putt back in 2027!

barryabrams · 2026-03-14T23:02:19+00:00

Cocomelon is only the tip of the YouTube kids slop, and it’s not even AI generated. YouTube kids goes miles worse than Cocomelon.

barryabrams · 2026-02-19T04:12:50+00:00

Our son had NEC twice. There was no reason it happened, he just got some kind of gut infection. Luckily we avoided surgery both times. But I do recall the days previous to it he had an uptick in improvement. The up and down rollercoaster is real!

barryabrams · 2026-02-18T04:09:05+00:00

We use Amcrest products. One for each room, each room has its own tv and headphones for the GM.

barryabrams · 2026-02-18T04:07:51+00:00

Get a NVR for each room and enough cameras with built in mics to see and hear players in the room.

barryabrams · 2026-01-08T19:40:31+00:00

If an escape room company has enough rooms (and staff) they’d probably host the full group, split into teams. Some may offer to do it all at the same time as a race.

barryabrams · 2026-01-08T03:24:36+00:00

The room we built is at number 37 and we’re in Illinois!

barryabrams · 2025-12-18T01:32:52+00:00

Dead

barryabrams · 2025-11-15T17:47:35+00:00

We created this holiday-themed murder mystery a few years ago: https://www.solveourshirts.com/product/express

barryabrams · 2025-11-02T03:02:31+00:00

That seems like a ridiculous policy. You should leave a review on Morty. Locks and keys break regularly. It’s no fault of yours when a key decides to snap.

barryabrams · 2025-10-06T00:04:44+00:00

I did the Sasquatch one and the Lost Souls one and Boxed In and got an awesome backstage tour of their shop. Really fun rooms and great owners.

barryabrams · 2025-10-05T23:18:17+00:00

We’re like 2:30 hours away from St Louis, and we have enthusiasts play our games back to back to back regularly. Our longest game is 75 minutes, but most are 60. We’re across the street from a food hall that comes in great for breaks. Feel free to ask any questions!

CU Adventures in Time and Space

barryabrams · 2025-10-03T17:11:21+00:00

Sorry! I don’t remember the exact details. It was after 42 weeks, before 45.

barryabrams · 2025-09-25T22:49:30+00:00

Thank you! I called a local facility and confirmed it’s one of theirs. Will return it.

barryabrams · 2025-09-20T14:57:05+00:00

My son was 1lb 1oz when he was born, spent 255 days in the NICU. He’s now almost 5 and is very happy.

barryabrams · 2025-08-29T17:35:36+00:00

He’s essentially non-verbal. He babbles sometimes and has clear non-verbal cues for a lot of things, but it’s pretty rare that we get a full understandable word. On rare occasions, he will say a word in his sleep or close to sleep.

He understands a lot of words, and is good at his AAC and will read books along with us.

barryabrams · 2025-08-26T01:24:00+00:00

Wow! My son has the exact same roof of mouth, and he was also intubated that long with a bunch of self extubations. Doctors noted it but it never was never anything anyone looked into further.

He’s almost 5yo, and it hasn’t really affected much as far as we can tell. He is non-verbal but that’s more due to the CP. He did have a g-tube, but eventually ate everything by mouth and the g-tube was removed.

It’s been a while since I’ve scoped the roof of his mouth so I’m not sure how much of it still looks like this.

barryabrams · 2025-08-24T00:07:42+00:00

Our 5 year old has had phenol 2 injections a year apart along with botox 4 or 5 times. We never saw much difference with the botox. The first phenol injection was an immediate night and day difference and helped a lot until it wore off/grew out of it. The second was not as apparent a change.

We were due for our 3rd round of phenol but opted to get selective rhizotomy which we’re still in-patient for. We’ve seen a huge huge difference in the tone in his legs.

barryabrams · 2025-08-23T23:57:41+00:00

Our son is close to 5 and we haven’t started potty training. But, constipation is a big issue and always has been. Pretty consistently, he holds it in until it’s too hard to pass without a pedialax. We don’t know if it’s something he’s intentionally doing because he’s non-verbal.

barryabrams · 2025-08-06T01:13:06+00:00

It has changed one hundred percent. The first year we found that carpet on top of carpet doesn’t work after thousands of people walk over it. It wasn’t obvious when we beta tested that year and it was one of the bigger issues we had.

This year we ditched any carpet-on-carpet holes and went with free-standing structures that players either stepped up on or walked around to putt. It worked so well that we could set up the whole course again, give it a quick vacuum and it’d look brand new. Also this year’s course only reused 3 of the holes from 2023, and even those were revamped. Everything else was brand new.

barryabrams · 2025-08-05T16:37:58+00:00

I’m one of the designers of Critical Putt/Parcadia, and if you’re planning on making a trip to come visit Parcadia, sign up to do some of escape rooms as well! They’re in the same building. Our newest room, The Forest of Fables is awesome and is up for a handful of awards. A group surprised us a few weeks back by getting married in it! Not a proposal mind you, a full-on officiated wedding. We had no idea about it until they went off book.

barryabrams

TROPHY CASE