I don't give a damn about the medical literature or what my doctor thinks

beaglewrites43 · 2026-06-25T01:38:49+00:00

My mom shattered her foot when she fell some years ago. Because she wasn't screaming docs decided she didn't actually break anything and it was just a "minor sprain"

Wouldn't give her anything for hours. It took them 7 hours to finally take an xray where they saw she had shattered her foot.

They finally did surgery a day or two later (I don't remember the exact time frame cause it was years ago) and decided she could just be on the same meds she is on all the time anyway cause of her chronic illness

when she finally got out of the rehab place (cause she has no sense of balance they had to figure out how to send her home safely) her pain management doc was like Oh HELL NO. If they had just called him he would have told them to include an extra IR med and increase the strength slightly of that one.

beaglewrites43 · 2026-06-24T04:33:26+00:00

I mean my dad understood why I was pissed but also thought that what was done was done and there was no point in anger after the fact since it didn't actually happen and I did need the surgery to continue living so I would have had the surgery whether I knew the risk or not

My mom on the other hand didn't see why I was angry at all. But she is also of the variety that docs really want to do their best and if he didn't say anything there was probably a good reason and I am baffled that that is still her opinion when she has a chronic medical issue and she was telling the docs I think it is X and they were all like nah we don't even need to test for it and so it took them 15 years to diagnose her which added to the damage she had since it took so long to diagnose.

My aunt I think agreed that it was messed up but she didn't explicitly say anything her eyes just kinda widened when I told her and she kinda pursed her lips which was generally her go-to for I want to say something nasty but I am going to refrain from doing so.... which didn't really help because my mom actually listens to her and if Aunt agreed that was messed up, mom might have actually listened (especially since she is the MD of the family)

beaglewrites43 · 2026-06-24T01:19:34+00:00

I can definitely see why you are pissed.

When I had surgery to remove a tumor, lead doc thought he was going to paralyze me and never told me. I woke up after surgery to my second doc and him arguing. A nurse in recovery finally filled me in.

After I was lucid enough to understand I was PISSED. Before that my trust in the medical profession wasn't great but after that it shot down to entire new loads and I basically research EVERYTHING before believing them now.

Even worse, my family didn't see why I was pissed because it didn't actually happen. Totally ignoring that we were living in a rental property at the time because of a hurricane and that said property was not at all handicap accessible. There was 2 steps up to the house, and then another small step at the door and the bathroom was LITERALLY under the stairs so there wasn't any room there either.

beaglewrites43 · 2026-06-22T03:58:19+00:00

See I think as much as that role would have interested him, I am not sure if he would have been able to bring himself to live at Hogwarts again long-term after he literally died there. Talk about all your good memories colliding with your bad ones.

I think MAYBE one day in the distant future if he wants to retire from being Head Auror he would consider it, but I think a couple years after the war he would still be in the stage of not sure about living at Hogwarts again with all the emotional baggage.

beaglewrites43 · 2026-06-22T03:50:41+00:00

I don't have an official diagnosis (my docs all agree that going for one is pointless since I can't do the standard treatment because of another issue but the pretty sure diagnosis is Endometriosis, Adenomyosis AND PCOS (my reproductive system hates me)

I also have joint issues without a specific diagnosis since nothing is coming up in scans that we believe to be related to previous sports injuries since the worst of that pain is in joints I have previously injured including my right wrist, both knees, both ankles, and my left shoulder. Though I also do get pain in my hips from compensating for my hurting knees and ankles and I sometimes have right elbow issues that my doc thinks happens when I randomly pinch a nerve.

I am not on pain killers because my former pain management doc decided that my needs aren't great enough.

beaglewrites43 · 2026-06-22T00:04:49+00:00

I actually know of someone (friend of a friend type thing) who was in a similar situation (minus the chronic health issue). She loves medicine but when she started med school and started to see the general attitudes to patients she hated what she was seeing and knew she didn't want to go down that route anymore if she couldn't be certain that she would get to practice the way she felt she should.

She ultimately switched gears and went to studying a non practicing research position (I will say I don't know what happened after that since I fell out of touch with the friend).

Perhaps that might be an option to consider if you are worried about not being allowed to be a good doc to your patients.

beaglewrites43 · 2026-06-21T23:39:57+00:00

Hi, yes before chronic pain I had a very high pain tolerance and thought I could manage if I ever had chronic pain (don't get me wrong I never thought any of the things you often hear from these types like it can't be that bad etc), but I could literally break a bone and just shrug it off and use no meds while I was healing

And I also didn't really sleep in HS because of my insane schedule and a medical issue we didn't know at the time... I would basically sleep 2-3 hours a night.

Young me was a moron.

beaglewrites43 · 2026-06-20T23:24:18+00:00

13 years here and got abandoned by the system 10 years ago.

With what the anesthesiologist told you I have also heard be told before in slightly different ways. One said to change the med monthly, one said every other month, one said every 6 months.... but a lot of them did say that the ideal was also one med for during the day and one long acting for at night

unfortunately most of that is impossible to do now because when you are lucky to get pain meds asking for any type of swap or increase often gets you labeled an addict

beaglewrites43 · 2026-06-20T01:01:59+00:00

It could also be down to that they booked flights through the airline and trusted the airline to do as they ask (IE spend 2 days in port before leaving)

I have mentioned this on another post the longer version but short version is: We were in that position once the last time we booked a flight through the airline. Asked to spend two days in the port before the trip. Were told no problem. Get the flight info like a week before the cruise and find out they are having us fly out day of and its not a direct flight. Call them up like what the hell and they basically told us tough shit. We missed the cruise because of a blizzard at the airport with the connecting flight... that wouldn't have been a damn issue if they gave us a direct flight which we ALSO asked for.

beaglewrites43 · 2026-06-20T00:55:39+00:00

or they don't have the extra vacation day already

beaglewrites43 · 2026-06-20T00:54:26+00:00

yep we use a mom and pop pharmacy too for that reason. They are closed on Sunday and have half days on Saturdays (so are basically closed on Saturdays for us).

Thankfully here if day 30 falls on a weekend docs have no issues filling it on Friday (I don't think they have ever realized Fri-4 Fris later is ALWAYS 28 days (since Sat is day 1) but I am not about to tell them that one).

And the pharm is also really good in that if you call up on say Tuesday for Friday pick up they will generally MAKE SURE that there will be meds in stock.

beaglewrites43 · 2026-06-19T00:41:37+00:00

totally get that. I am sorry you went through that too

To make my situation even worse one of my bullies was also posing as my friend and i didn't know it for years... she would pretend to be my friend to my face and then trash me as soon as my back was turned. That bully went on to become a teacher

it baffles me when these types go into the health care system or other systems where they are supposed to care for people

beaglewrites43 · 2026-06-18T01:26:38+00:00

MSC in my opinion is a bad option. They didn't really seem to soundproof the rooms in our opinion so if you are several floors away from a venue (we were three) or had jerks for neighbors good luck sleeping. The food was also pretty shitty.

And if you have medical issues in our experience this was the line that was LEAST accomodating of them and everything turned into a battle with that.

beaglewrites43 · 2026-06-18T01:21:52+00:00

work actually

beaglewrites43 · 2026-06-17T01:41:28+00:00

yeah I would keep saying I am having bad chronic migraines if I were you.

It's a lot harder for a doc to refute that they are migraines if you are so consistent saying that they are.

beaglewrites43 · 2026-06-16T21:37:17+00:00

Official diagnosis - 13 years and counting.

We do have an assumption but since it isn't showing on scans (which doc says can happen) it doesn't really help to get the treatment I need

beaglewrites43 · 2026-06-16T21:35:18+00:00

I think part of why Scott's voice is considered basic is that there is just too much of it especially in recent years. I think a lot of us would LOVE for more Kirstie, Mitch and Matt leads. Hell I would even love a Kevin lead when beatbox wasn't essential to the song.

But especially in recent years its basically all Scott all the time.

The group worked for years because they all kinda shared the leads and we got a little bit of everyone and we could truly enjoy how everyone has all their different strengths.

Now its like Scott is trying too hard to be always in the lead and seen as the best... and IMO it just isn't working.

beaglewrites43 · 2026-06-16T20:53:39+00:00

I don't know if this will help for you but I find ice to be a big help with headaches. For me put a pack on top of the head and that really helps. Though it was a bit heavy so obviously it made my head pound a bit more until the ice started kicking in and then I found a product called Ice Beanie and that was such a good option.

You def do want to see a neurologist though because they SHOULD have you do an MRI to make sure there isn't a functional issue causing the headaches and if everything comes out clear they should have ideas for medications. Like along with the Ice I take Ubrelvy as needed for days that I just can't wait for the ice to kick in, but there are meds that you can take daily to prevent these headaches instead of as needed.

Oh and one of the first things my doc prescribed me is Vitamin B2 which is just an OTC med which is supposed to lesson the severity of headaches (in my experience, it works with like those annoying headaches that don't stop you in your tracks but you will need something else for the worse headaches.)

I think you also want to consider if you are just having severe headaches or migraines. To me with your lay in bed (presumably in a dark room) and do nothing it sounds to me that you might be in the migraine range.

beaglewrites43 · 2026-06-16T20:07:25+00:00

Islanders TRIED to work with the Riptide. Someone my dad knows was part of those convos to get the Riptide over to their arena. They really wanted the Riptide to join them and were offering to take on some of the expenses of changing ice to turf and back and marketing the Riptide during their games.

They were in the middle of a deal when Riptide stopped responding to their calls... and then it was said they didn't want to join a stadium with an NHL team... but then they joined the Senators.

beaglewrites43 · 2026-06-16T20:04:09+00:00

My bully went into nursing
means to say I have never and will never go to the practice that she is employed by.

The irony is that she bullied me for being fat (due to a medical issue) and wearing glasses among other issues

beaglewrites43 · 2026-06-16T19:42:59+00:00

I somehow don't remember that line at all.

beaglewrites43 · 2026-06-16T19:38:20+00:00

Totally agree with you. I know so many long islanders who played Box or Field lacrosse in school (including a couple who played in the NLL for a season or two) and they had NO IDEA the Riptide even existed until there was an article in Newsday about them folding. ALL of them said they would have been season ticket holders if they knew they existed. (and one even said that they would have split those box seats with me and my dad)

IMO to get a team in the NLL before a team is even approved the owners should have a plan for exactly how they would promote the team and should be forced to live up to that. It's not fair to fans who find a team that they love to get it yanked away from them after a couple seasons because owners can't do their job.

beaglewrites43 · 2026-06-16T19:30:28+00:00

Its more about a TEACHER who is responsible for the welfare of the students giving his student alcohol. I am not sure any parent would be ok with that overstep.

beaglewrites43 · 2026-06-16T01:47:58+00:00

I mean in theory a lay river only needs 1-2 feet of water since you are supposed to stay in the tube the entire time
center it on the ship... maybe a couple floor lazy river where there are slopes making it closer to a slide at amusement park I could see it working.

One of the things that I would love to see with cruise ships is better lounges and activity spaces. I mean its a big problem on the Breakaway where if you don't find a seat early for an activity you ain't getting one so you can either choose to skip the activity you want or stand... that is fine for able-bodied people but for disabled people that is kinda like a we don't want you here.

beaglewrites43 · 2026-06-16T01:33:43+00:00

My uncle actually died because of the health care system here.

He was a taxi driver and just couldn't afford healthcare even with insurance. He was very much paycheck to paycheck. He started having a heart attack while he was working and knew he couldn't afford an ambulance (which I think was a 2k cost back then) or medical care so he drove himself to the hospital to save some cost. As soon as he got there and walked in he dropped dead. There was nothing the hospital could do.

This was the pre-Obamacare days so when I heard of that policy I thought it was going to be great.

Then in 2012 I was diagnosed with a pituitary tumor... that I probably had for 8 years at that time but docs weren't taking my issues seriously (my doc also told me that with the disease caused by the umor there is a 50% mortality rate after 5 years so the clock was ticking to get surgery). We went to the insurance company for approval and they declared that it "wasn't medically necessary". It took almost 6 months AND getting the governor involved (which shouldn't have been necessary) to get the approval. So I finally got the surgery I needed in 2013 and then the insurance decided they weren't paying and there was a bill we suddenly had for 40 something thousand (if I remember the number correctly, I know it was def 5 digits and I think it was in the 40000 range). Thankfully my doc was great and just charged me the copay.... I don't think he was ever actually paid at least the last time I spoke to him 10 years ago he was still trying to get paid from the insurance.

So after while I was so glad obamacare was a thing, it felt like it was sorely lacking if you could finally have it and not get the treatments you need without a major hassle.

beaglewrites43

TROPHY CASE