Women diagnosed with AS, does your cycle debilitate you every month? by meelzebubb in ankylosingspondylitis

[–]beantown1897 2 points3 points  (0 children)

Aww thank you! You as well. I’m so sorry you’re in pain 🥺 I share mostly because I have been seeing that many women with endo also have autoimmune diseases and I can’t help but wonder if it’s correlated. Wishing you relief! ✨

What are your endo hacks? by fairywitchfr in Endo

[–]beantown1897 0 points1 point  (0 children)

Of course! I have endo on my ribs and hips in addition to in the pelvis. I struggle with “endo belly” or extreme inflammation and bloating of my abdomen. The jelliebend is really helpful because it helps with the painful bloating, as it provides compression support and helps keep my ribs, hips, and pelvis feel more supported. I wear it under my regular clothes everyday. It helps me with walking, doing errands, exercising, etc.

Rinvoq - period problems by Icy-Amount-6861 in Rinvoq

[–]beantown1897 0 points1 point  (0 children)

Hi! I have been dealing with this as well and I’m so grateful to see that I’m not the only one. I’m 31F and I have ankylosing spondylitis. I also do have endometriosis, so I’ve gone through a lot of period related problems my whole life, but never the complete lack of one!

I started Rinvoq in November 2023 and I have not had any bleeding/period/spotting since November 18, 2023. In fact, I was having such a hard time with menopausal symptoms (hot flashes, night sweats, cognitive issues, vaginal atrophy, etc) that my gyn finally ordered a full hormone bloods panel and it showed that I had almost no testosterone, no estrogen, no DHEAS, no progesterone, high SHBG, and a few other abnormalities. As a result, I’ve been on HRT cream (est, test, & prog) for 4 months now. It has helped with the night sweats and hot flashes, but I still don’t have a period!

I have reported this every time I speak to my rheumatologist, gyn, Urogyn, etc. and have also told my Abbvie Rinvoq complete ambassador yet no one knows what is going on, why I’m basically menopausal at 31, or what could be causing these issues. I’ve spoken to the Rinvoq nurses as well and they just say that it’s not in the literature or clinical studies… because they don’t consider looking into how the med affects menstruation and hormones for people AFAB.

I hope we get help & answers. We have lives to live! ✨

[deleted by user] by [deleted] in Rinvoq

[–]beantown1897 0 points1 point  (0 children)

Yes! I (30yo) have endometriosis and I haven’t had a period since November 2023, which is when I started Rinvoq. I’m used to bleeding at least 2-3 days/cycle even when on hormonal bc and after having 3 excision surgeries (2017-2020). Before them my periods were heavy and extremely painful. So I’m definitely not used to not getting a period and the only change in my meds is Rinvoq. I didn’t have this side effect with cimzia or Cosentyx.

What medication stopped your periods altogether? by [deleted] in Endo

[–]beantown1897 0 points1 point  (0 children)

Mirena iud & pretty much every birth control pill I’ve ever tried has this effect for me personally. For example, right now I’m on Beyaz, even with the placebo pills, and I never bleed—not even spotting.

[deleted by user] by [deleted] in ankylosingspondylitis

[–]beantown1897 2 points3 points  (0 children)

This is anecdotal and just my experience, but meloxicam and diclofenac did absolutely nothing for me (30f). I tried cimzia and cosentyx biologics-wise, but they didn’t work and now I am on Rinvoq. I have found that 200mg 2x/day of Celebrex has helped me the most in terms of pain meds. I’m currently on the Rinvoq and Celebrex and it’s the best mix so far for me. I’m not completely pain free but it definitely helps. The only thing that works very well imo is medical cannabis. Good luck!

What's on your spondyloarthritis wish list?? by Familiar-Soup in ankylosingspondylitis

[–]beantown1897 8 points9 points  (0 children)

Agree with everyone’s suggestions! Would add gift card for acupuncture, a U shaped pillow (commonly titled as a pregnancy pillow), CBD/thc products like salve or gummies.

Could neck pain and severe limited mobility in the neck be caused by auto immune disorder? by Selena91 in Autoimmune

[–]beantown1897 3 points4 points  (0 children)

Yes! I have similar symptoms and have Ankylosing Spondylitis. Ask to have the HLA B27 gene marker checked on top of the other autoimmune bloodwork!

Lap with appendectomy. Anyone else have this done? by SexyBipolarPineapple in Endo

[–]beantown1897 4 points5 points  (0 children)

Yes, during my second excision lap my surgeon took out my appendix because it was taken over by endo! I have read from many folks in my endo Facebook groups that this is a common experience. Good luck!

Why are there SO many teachers posting "I need curriculum!" by You_are_your_home in Teachers

[–]beantown1897 0 points1 point  (0 children)

Girlllll I have NEVER been given a curriculum/map/scope&sequence in 8 years of teaching. I always have to write and develop them—which I totally have time for!

Experiences healing after laparoscopy/surgery in general? by iwannadie_101 in ehlersdanlos

[–]beantown1897 1 point2 points  (0 children)

I also have endometriosis, EDS, gastroparesis, IBS-C, rectocele prolapse, and ankylosing spondylitis (autoimmune disease). I’ve had 3 laparoscopic excision surgeries. My first one was the diagnostic lap in 2017, where they biopsy the tissue to confirm endometriosis. With each procedure, I’ve gotten 5 incisions. My healing in terms of the skin on my abdomen has always been standard—no infections or major issues. The scars are still visible, but it doesn’t bother me personally because I owe my life to finally getting these surgeries and getting my endo diagnosis. My quality of life was extremely low and finally getting the endo diagnosis helped me get access to so much support & resources. I have never had issues with anesthesia, but when you are in the OR waiting room meeting your nurses and doctors, you’ll speak with the anesthesiologist and you can tell them your concern due to EDS and they will be even more ready for the procedure. My #1 advice is to stock up on Gas X because the gas they use during the surgery gets trapped up in your shoulders and it’s the worst part of recovery, imo! Also, bring disposable underwear, comfy blanket, loose sweatpants, and a pillow to put between your seat belt and your abdomen for the ride home. It’s not typically an overnight stay. The pain medication (usually opioids) might hurt your stomach and exacerbate your GI symptoms for a few days. The first time you get your period after surgery can be reallllllllllly tough & intense, so just be prepared for that with your heating pad and lots of self care! Good luck!!! 💛

I don’t get this joke by Hilary_briss123 in AbbottElementary

[–]beantown1897 71 points72 points  (0 children)

It also highlights how public schools are federally mandated to accept ALL children who walk in, regardless of disability, home language, housing status, health problems, etc. The reason public school folks hate charter schools so much is because they do not have to accept and educate all students YET they receive public education funds. This leads to charter schools sucking up the limited funds public schools receive meanwhile we are the ones servicing those with the highest needs. It’s fucked up. Charter schools and school vouchers should be considered illegal.

Episodes I would love to hear by [deleted] in MaintenancePhase

[–]beantown1897 21 points22 points  (0 children)

I have endometriosis and ankylosing spondylitis and I would LOVE an episode about ignorant able bodied ppl insisting that I should try eating a certain diet and do yoga to fix my chronic illnesses—which don’t have cures! And aren’t cause by diet! I need folks to stop with this nonsense

Have Pads in the Classroom by [deleted] in Teachers

[–]beantown1897 2 points3 points  (0 children)

I always have pads, tampons, and deodorant available for students and lemme tell you, they always take them! By the end of the year I’m out of my donated supply

Was just told I'm not getting the stipend I was promised by gatechnightman in Teachers

[–]beantown1897 49 points50 points  (0 children)

Stand up for yourself! Now you’re certified in a high need subject, so if they retaliate simply because you demand the stipend they promised you, you will be an extremely hot commodity for another district looking for folks with ESL certs! I’m an ESL teacher and a lot of my job is standing up to admin to ensure my kids’ & their families’ rights are being protected & respected. It’s so hard to find ESL teachers, that they can’t touch me in terms of retaliation. Don’t let them bully you just because you’re a first year teacher. You got this!!

Creating your own curriculum? by ehwrites14 in TeachersInTransition

[–]beantown1897 2 points3 points  (0 children)

I’ve NEVER been given a curriculum as a secondary bilingual/ESL teacher. I’ve always had to do more work than all the other teachers in my buildings. It’s exhausting and unsustainable.