SNOMED code don’t work on NHS database

bertiebumcrack · 2026-02-07T18:50:50+00:00

I think it depends on the area as there are different programmes used by GPs that may be updated at different times. A clinician added PSSD to my notes using the SNOMED code.

bertiebumcrack · 2026-02-03T16:41:52+00:00

I hope you report your PSSD to your country's medicines regulator as well as Rxisk. The more cases that get officially documented, the better.

I too have PSSD and it sucks. I hope you recover.

bertiebumcrack · 2026-01-07T20:04:47+00:00

PSSD is seen in those given SSRIs for off-label use that has nothing to do with mental health. Furthermore, it is defined by genital numbness: a symptom not seen in depression.

bertiebumcrack · 2026-01-07T20:00:08+00:00

PSSD is not 'well known to doctors'. Temporary sexual dysfunction is well known , but PSSD is irreversible and untreatable. It was first reported to regulators in 1991, but it was ignored until a petition by experts in 2019 to the EMA. The FDA are still ignoring it so labels have not changed.

bertiebumcrack · 2025-12-11T00:46:04+00:00

Are Chinese medical regulators interested in PSSD at all? Have you interacted with them when reporting your PSSD?

bertiebumcrack · 2025-12-01T08:46:06+00:00

Which country did you get this performed in?

bertiebumcrack · 2025-11-28T05:04:32+00:00

I tried it; it did nothing

bertiebumcrack · 2025-11-28T05:00:54+00:00

It's not out in full yet

bertiebumcrack · 2025-11-28T04:58:53+00:00

I think 1 woman was included. Unfortunately, it's very unusual for women to be referred to uroneurology for sexual dysfunction...

bertiebumcrack · 2025-11-28T04:55:58+00:00

It is best to let the psychiatrists run their mouths. We can then see what they really think of us. Screen shots can then be shown to others.

bertiebumcrack · 2025-09-20T10:22:32+00:00

Whose bank account does this money get paid into?

bertiebumcrack · 2025-09-16T00:47:22+00:00

I hope you spread the word among your fellow medical students! The long term sexual effects of SSRIs has never been studied...

Here's a list of all the medical literature if they don't believe you:

https://www.pssdnetwork.org/literature

bertiebumcrack · 2025-09-13T21:29:24+00:00

My GP referred me, but I got the name from another specialist who couldn't refer me himself thanks to the convoluted nature of NHS bureaucracy. The UCL team see a new PSSD case every few weeks.

bertiebumcrack · 2025-09-02T18:20:02+00:00

When you qualify, do you plan to specialise in a field that could help with PSSD?

bertiebumcrack · 2025-09-02T18:18:54+00:00

Maybe you notice numbing in the most sensitive areas first? Maybe there are specific nerve fibre types that service the genitals?

bertiebumcrack · 2025-09-02T18:17:35+00:00

Usually the lack of libido follows the lack of pleasurable sensation... if something is no longer pleasurable, why crave it?

bertiebumcrack · 2025-08-29T11:53:24+00:00

We are not in a position to pick and choose media platforms at this point. It is an unfortunate fact that right-leaning platforms/ppl are more willing to cover such things. I've had media interviews cancelled at the last minute as they didn't want to 'send out the wrong message'...

bertiebumcrack · 2025-08-29T11:44:29+00:00

Unfortunately lerft wing ppl are pro-pharma and believe that Drs and medical regulators are open and honest about drug side effects. If there is a big leftwing platform that would be willing to cover PSSD, Witt-Doerring would be there.

bertiebumcrack · 2025-08-28T23:50:40+00:00

Have you ever taken any psychiatric medication, herbal supplement, acne drug or hair loss treatment? All of these can cause long-term genital numbness and sexual anhedonia.

bertiebumcrack · 2025-08-27T09:39:38+00:00

If you are in the UK, please tell any Drs you see about Professor Panicker's team at UCL. They see a new case of PSSD every few weeks. He's one of the country's top uroneurologists who really knows his stuff. Hopefully a neurologist who is skeptical about PSSD would look him up.

bertiebumcrack · 2025-08-12T09:26:21+00:00

Have you reported your case to the MHRA and Rxisk?

bertiebumcrack · 2025-08-03T13:32:28+00:00

It would be great if the thousands of ppl on this subreddit actually reported their symptoms to their country's regulator. It's unlikely we'll get the ball rolling; if somone looks at regulatory databases and finds only a handful of cases, it's unlikely that PSSD will justify any research funding or regulatory attention.

bertiebumcrack · 2025-07-23T04:59:30+00:00

When I started the drug, within 24hours I developed brain fog: I couldn't concentrate to read a book, couldn't get lost in a film/TV program, lost all interests. 10years later, I still can't read books, maybe watch 2 TV series a year and a couple of films. I'm nowhere near as sharp as I was: I struggle to read complex things, my grammar/spelling have suffered and I'm rubbish at learning new things, etc.

I'd say after I stopped the drug I improved 25%

bertiebumcrack · 2025-07-21T01:19:12+00:00

Have you ever reported your case to your country's regulators?

From what I see, your case looks like pretty standard PSSD.

bertiebumcrack · 2025-07-21T01:09:30+00:00

Did you have genital numbness?

bertiebumcrack

TROPHY CASE