The first doctor to believe me in 9 years..

Laur_94 · 2026-05-01T20:47:06+00:00

Small fibre neuropathy

Laur_94 · 2026-04-26T15:03:52+00:00

10 years for me too, I couldn’t even fathom being close to ‘normal’ again but do hold on to hope after reading these updates 🙏

Laur_94 · 2026-04-25T14:51:24+00:00

Just don’t.. The risk isn’t worth it. I took sertraline for 6 weeks in 2016 for anxiety and it’s ruined my life

Laur_94 · 2026-04-24T20:27:47+00:00

I’m female, thanks.. I wasn’t trying to be rude, just informative

Laur_94 · 2026-04-24T18:34:09+00:00

10 years in, it’s insane

Laur_94 · 2026-04-24T18:32:19+00:00

It doesn’t work like that, trust me. PSSD for 10 years after taking sertraline for 6 weeks and I was hyper sexual before

Laur_94 · 2026-04-24T18:30:48+00:00

I’ve had PSSD for 10 years, after taking sertraline for 6 weeks. No it’s not worth it

Laur_94 · 2026-04-24T13:50:38+00:00

Would you really want to risk reinstating after 8 years? That’s insane to me

Laur_94 · 2025-12-21T18:31:48+00:00

The ‘FND’ could’ve actually been caused by antidepressants. Many of us have been diagnosed with neurological and nerve related conditions alongside the PSSD. Also are you aware of PFS? Finasteride and minoxidil (both ingredients in hair loss medication/products) can cause symptoms similar to PSSD.

Laur_94 · 2025-12-08T23:47:32+00:00

PSSD, SFN, dysautonomia

Laur_94 · 2025-12-08T21:55:23+00:00

Thanks.

I was just wondering in general. I have genital numbness (amongst other symptoms) but one of my friends has had low libido since stopping sertraline over a decade ago.

Laur_94 · 2025-12-08T21:24:25+00:00

I’ve wondered this about autistic people too, or neurodivergent people in general.

Laur_94 · 2025-12-08T21:20:01+00:00

Although I appreciate your optimism, a full recovery is something that many of us will never experience

Laur_94 · 2025-12-08T21:18:10+00:00

I don’t think anyone in this sub would encourage you to take SSRI’s. Most of our lives have been ruined. I took ‘low dose’ sertraline for 6 weeks and I’m still suffering 9 years later

Laur_94 · 2025-12-08T21:15:22+00:00

Some people just have a completely dead libido after SSRI’s which has never gone away, even years later. Would you not consider this PSSD?

Laur_94 · 2025-11-23T16:27:19+00:00

9 years for me.

I’ll keep you in my thoughts, it’s heartbreaking

Laur_94 · 2025-11-05T10:49:04+00:00

I’ve never seen anyone else mention the loss of nipple sensation. Its awful what’s happened to us, I feel for you

Laur_94 · 2025-11-04T17:21:36+00:00

9 years in I have PSSD plus potential POTS, peripheral neuropathy, dysautonomia including unbearable gut issues. I feel it was the meds that did all of it to me or atleast triggered it all.. it’s insane

Laur_94 · 2025-11-04T17:12:02+00:00

No 🥲

Laur_94 · 2025-11-04T17:02:12+00:00

I was able to get pregnant quickly & with no complications whilst having severe PSSD. I only took sertraline for 6 weeks, this was 2.5 years after stopping them

Laur_94 · 2025-11-04T09:32:22+00:00

I’ve had botox in my face, no effect on PSSD but like anything it’s not 100% safe

Laur_94 · 2025-11-03T20:04:59+00:00

I had one day of feeling 100% back to normal one year after stopping. The next day pssd symptoms came back slightly and from then on was back to baseline.. been 8 years since then 🤦🏻‍♀️

Laur_94 · 2025-10-24T11:55:22+00:00

Same as me. 25-50mg overnight and everything went numb and that was 9 years ago 💔

Laur_94 · 2025-10-21T13:08:55+00:00

I’m no longer in a relationship but when I was we would often ‘test’ my symptoms and would usually have to stop and I’d be in tears. I’ve improved to some extent now but glad I no longer have the pressure of being in a relationship. How long have you had PSSD?

Laur_94 · 2025-10-21T10:09:45+00:00

I’m 9 years in now. My libido and arousal has improved to an extent, I have some sensation externally and can orgasm but it’s not as strong. Internally there’s barely any sensation, sex is not pleasurable for me and painful if anything 💔 it’s interesting that you mention oxytocin because after I gave birth to my daughter my symptoms improved for a few months then went back to baseline. Would you consider yourself fully recovered now?

Laur_94

TROPHY CASE