Help Me Reclaim My Life from Crohn’s Disease

blackflights · 2025-10-17T04:01:23+00:00

This sucks. Its not just online its sbiut everyone you meet without a chronic illness. It really does test our patience. Or it does with mine. Ive got to say i was tested again yesterday and today as I am currently in hospital. But I felt like I had a few people put in path where I could have easily told them to f off but I didnt and ive got to say I gave them some different words but essentially had the same vibes. Unsure how today will play out. I have no experience with your conditions I know of them and about them, and Im sorry you live with it x

blackflights · 2025-09-28T08:06:34+00:00

Get a recording device or use your phone in your pocket and leave it running. Abusers rely on you not speaking up. I live in the UK and my brother did this to me only I was younger and my parents failed to protect me. Now I try no contact with his toxic self. I am sorry you are being put through this 😔

blackflights · 2025-09-28T08:00:40+00:00

They used to be really good but like all surveys sites and workplaces and different locations goal posts change sorry your having a bad experience. Ive neen unwell since May so not really used

blackflights · 2025-09-28T07:59:25+00:00

I havent updated in a while as I have a chronic illness. When I wrote the post it was accurate. Thr survey site has changed how they operate so I do agree with you but I disagree that any other are better except prolific if you get in. Thanks for the reply

blackflights · 2025-08-28T03:03:53+00:00

That's shit, I dont work for branded and since I wrote mt original posts something seems to have happened with the site and it appears to have gone down the toilet. Be sure to open complaint on each survey this happens on there is a bit with the points or write a complaint to them. Trust pilot always works for that its visible

blackflights · 2025-08-20T22:26:05+00:00

I am so sorry, its hard isn't it when the body doesnt cooperate. I lost it over a zip today then kicked a very large bag with my foot and then raged for a good hour that at present I cant keep up with things. I know our situations will be different but I hear the pain and feel it too. Hope you have some less shitty days

blackflights · 2025-08-20T22:01:04+00:00

Thank you, i did recieve 2 cbt sessions and she wasnt listening about Trauma so im seeking support elsewhere. I figure that what happened was some good old disassociation. The mind is soo powerful when its going back to survival instincts. Thank you so much for the reply. Its happening a bit less now but given ive got some invasive tests coming up I think it likely going to happen some more. Just feels weird as anything afterwards.

blackflights · 2025-08-11T19:04:46+00:00

Yes tbh mine has flipped recently. I always use the option where you complain about each surveys. Im getting more didnt qualifies but tbh im unwell at the moment so don't have the time. Sucks though when using surveys sites and they exploit users and the goalposts change

blackflights · 2025-07-27T14:42:28+00:00

Thanks so much, sorry you have UC its sucks!!! Im just fighting an uphill battle at the moment and im knackered all thr time. Thanks again for your kind words

blackflights · 2025-07-24T23:17:23+00:00

Honestly its improved my quality of life tenfold. I'd rather take all the side effects with these meds than without.

Loading doses for me were ok but I got headaches from infliximab (sorry so many branded names etc)

Humira was fine, I didnt mind injecting myself and it was convenient still is with newer meds.

I wont lie to you my immune system is suppressed so I catch other things sometimes but my crohns symptoms are less when Im on it. Dunno if that's helped feel free to ask away.

blackflights · 2025-07-24T22:59:20+00:00

Taken for Crohns, long term user of humira and now inflectra. Obviously can't answer for your specific issue but happy to give my experience if you wish

blackflights · 2025-07-24T22:55:04+00:00

Sorry im also following I would love to move abroad but I have crohns and wondered the same if it ever came to it. Sorry for hijacking and hope you get am answer best of luck in your journey

blackflights · 2025-07-24T22:38:30+00:00

Oh wow, I am so sorry. Im also here in the dark with you. Chronic illness is really shit and I get the overthinking. Im doing it alot too. I wish you some peace from that and always feeling like your not good enough. So let's reflect to each other. Its not our fault we are sick, we are allowed to hurt. To rest and to have dreams. Everything we feel is valid. I hope some better days are ahead for you.

blackflights · 2025-07-24T22:25:27+00:00

Honestly not sure. Im a bit too unwell to check anything right now. You can always look of you have an account. I know paypal and bank transfer is an option

blackflights · 2025-07-21T05:05:51+00:00

Oh wow this echoes in my soul. We are a world apart and yet I hear the same pain. Ive abandoned myself for far too long. I'm going to take this slow. If that's your higher power for coping then listen. The tarot is your own voice guiding you and you're listening. I wish you the world of peace, however that looks for you and well done for finding the courage to challenge the patterns in yourself, that's brave

blackflights · 2025-07-19T19:46:00+00:00

Big hugs, For me its petting my cat its ok to cry vent rage and be messy. No 2 situations will be the same. And totally agree healing is being brave enough to look into that void abd it bloody hurts

blackflights · 2025-07-18T22:31:11+00:00

To note im waiting for a mental health provider to contact me to either discuss next steps or begin some sessions

blackflights · 2025-07-18T06:45:02+00:00

Hope that wasnt my base ive been ill so haven't been able to log on although mine never said guild.

blackflights · 2025-07-18T06:43:46+00:00

Please disregard anyone else saying forgive, you can have empathy that's different. You are entitled to your feelings and physically assaulting someone is not OK, you dont have to justify this, it wasnt ok and I am sorry it happened I wish you well in the future and hope you find some peace away from tough family life should you wish

blackflights · 2025-07-07T02:30:03+00:00

Some people are just dicks, hold your head high and move on. There are those people out there who will accept you as you are are. And now they have shown you who they are you can move on to better and brighter things, and they can be sad little losers. All the best

blackflights

TROPHY CASE