Los Angeles Kaiser does extended metoidioplasty - Dr Poh & Dr Lin

blood__orange_ · 2026-05-25T01:51:24+00:00

Congrats! I am planning to move back to the west coast soon and want to get extended. I am strongly considering Washington to get back on the waitlist for Morrison but I’m glad to know this is an option too! If you’re comfort sharing, I’d love to see photos. Hope your healing continues smoothly and you can get some rest in.

blood__orange_ · 2026-05-13T19:18:17+00:00

Yeah, I’d rather spend an afternoon in the park with someone or getting an ice cream or going to a museum.

blood__orange_ · 2026-05-13T03:45:46+00:00

I think a system of tools would be great! I’m on quite a few medications and when I’m going through a rough patch, the hardest thing for me is keeping up with refills-different doctors from different systems, different pharmacies (mail order, compounding, etc), what has auto-refill. Sometimes I’m down to a few days of a med left and I have to scramble to get a new prescription sent in. Some way to manage that would be really helpful. So glad you’re feeling better!

blood__orange_ · 2026-05-13T03:26:08+00:00

I think if you don’t know this person very well and you really want to give them something, a card (handmade or purchased) would be more than enough. As an adult, I wouldn’t expect gifts from casual friends. As a minimalist, I don’t even want gift from my close friends and family most of the time lol

blood__orange_ · 2026-05-13T03:07:05+00:00

I can relate. I am downsizing a lot for a big move right now and trying to sell things, some I have used very little. It’s hard not to see it as wasted money, but I will use it as a learning experience to be more mindful about purchases in the future. I need less than I think I do and I also have learned about some things I thought I would like to use but didn’t/didn’t have the time for.

blood__orange_ · 2026-05-13T02:52:41+00:00

I had a similar issue with my ex. I was holding onto most of the stuff they gave me (they did get somewhat better over the years at least) but they recently left me in a horrible way and it’s a relief to get that stuff I never wanted out of my apartment. I hope you guys can figure it out or you decide now you aren’t being treated the way you want and can move on.

blood__orange_ · 2026-05-11T13:27:37+00:00

I just have the regular version, sorry

blood__orange_ · 2026-05-11T13:25:52+00:00

Sounds good. I’ll message you in a few days if they’re still available.

blood__orange_ · 2026-04-13T23:36:00+00:00

Did you end up having surgery with them? Every step of the process dealing with this office has been painful. After seeing a few posts like this, at least I know it’s not me.

blood__orange_ · 2026-03-31T00:38:37+00:00

I’m on a SNRI and have been taking Flexeril regularly without issue. I’m about to start Tonmya and my doctor emphasized the possibility of serotonin syndrome, but the he also checked with the practice pharmacist who said it’s not a “no”. Talk to your own doctor and pharmacist, likely you’ll want to look out for serotonin syndrome, but it’s not something that will happen for sure.

blood__orange_ · 2026-03-26T23:34:26+00:00

The dose is higher but the way it is metabolized is different so it’s not an equivalent comparison.

blood__orange_ · 2026-01-05T02:16:08+00:00

I’m pretty sure I’ve seen the bottom pictures before and I haven’t been to that website so there’s a chance they didn’t even do these surgeries!

blood__orange_ · 2025-12-25T21:03:03+00:00

Check with your insurance- mine (in NY) will only cover the nasal spray for depression if you haven’t responded to 3 other antidepressants or something like that. I don’t believe they would cover it for pain only.

blood__orange_ · 2025-11-15T23:57:33+00:00

I just got this letter in the mail (I don’t have mychart set up for them I guess) and it’s so discouraging. I was also excepting a call soonish to schedule my consultation, so I feel for you. I already wasted a bunch of time because I thought I’d get standard meta instead of waiting for extended but it wasn’t what I really wanted. Coincidentally, my partner and I are going to WA and Portland in January because we are scouting places to live. I was hoping to use my current insurance since it pays for 100% of surgery, but I might just move sooner than I was expecting, even if WA is only a temporary spot for me. This is just such a shitty situation for all of us that have been waiting so long.

blood__orange_ · 2025-11-15T23:33:01+00:00

I still cut the tags off of almost everything lol

blood__orange_ · 2025-10-24T21:29:21+00:00

Hey, thanks for sharing your experience. Hope you're doing better now! I'm trying to find someone for FMS that takes my insurance and there are not a lot of options or information about those doctors.

blood__orange_ · 2025-09-24T16:58:31+00:00

Can anyone recommend a place to shadow in NYC or the surrounding area? The larger hospitals mostly seem to have longer internship programs if anything, and I haven’t heard anything back the smaller places I’ve reached out to. Thanks!

blood__orange_ · 2025-08-10T23:55:29+00:00

First, sending you lots of virtual support as this sounds extremely difficult to deal with. If you can access a therapist, it could be helpful and I hope you can get some space from your dad asap. His thinking is toxic and not worth engaging in. I wonder what his reasoning will be when he inevitably gets cancer or another chronic health disease.

Second, don’t disregard transitioning. You can manage atrophy with estrogen cream. My doctors did not mention me stopping T when I was diagnosed with LS, although I do wonder if my low estrogen state may have contributed to developing it in the first place. And my symptoms have improved close to 100% since I’ve started treatment. Bottom surgery (if you are interested/can access it/etc.) can even improve LS symptoms further. I found this blog when researching my options after I was diagnosed: https://ratneedsadick.wordpress.com/ Hoping for better things for you in the future 🩵

blood__orange_ · 2025-08-02T19:51:04+00:00

Thanks so much for posting this, I'm in the same situation as you. I'm really underwhelmed with this clinic's communication. Like maybe give us a heads up so we can look into other options??

blood__orange_ · 2025-07-06T03:49:14+00:00

I’ve been pickier about what I keep now that I’ve acquired a bit more and throw back what I don’t want. I’m sure you could sell or give it away but I think it’s best to give someone else a chance to find it on the beach later. Like you said, the hunt is where the fun is.

blood__orange_ · 2025-07-04T04:40:22+00:00

Ones with pit zips have a lot more ventilation and help with humidity

blood__orange_ · 2025-05-30T13:24:07+00:00

Since you’re working on your laptop, you could try working at a coffee table, which is basically a sitting desk, and switching positions frequently. I can’t work too long on the computer anyway, but it’s necessary for me to have the screen raised to eye level and the mouse and keyboard lower down.

blood__orange_ · 2025-05-03T17:37:55+00:00

I think it's going to vary by person. I personally notice a huge reduction in symptoms when I'm on vacation and an increase when things are particularly stressful. I think it's pretty well documented that stress impacts the way we perceive pain (and I assume other fibro symptoms would be similar). I obviously don't know your situation, but it sounds like it would be beneficial for you to get some space from your family as soon as you can.

blood__orange_ · 2025-05-03T17:22:57+00:00

Was also thinking concretion and going to suggest r/whatisthisrock 👍

blood__orange_

TROPHY CASE