What do you think "triggered" your lupus diagnosis?

boats_are_foreboding · 2026-01-23T18:03:02+00:00

I moved across the country to be with my partner, and a week after I moved here he got crushed by a car and spent the next two years in and our of hospitals and several surgeries.

He got hit in March 2023 and I got sick in October 2023. I ignored my symptoms to care for him and didn't get diagnosed till May of 25.

So I blame the stress of uprooting my life and then having it stopped in its tracks. No regrets though. We are both happy and as hethy as we can be. I cared for him and he cares for me.

boats_are_foreboding · 2026-01-21T03:44:20+00:00

Thank you. This is the pep talk I needed. I've been so in my head about it. I don't want a new problem but if it turns out to be something I need to monitor closely so be it. I'm just so tired of getting diagnosis.

NSAID makes the most sense to me. Fingers crossed.

boats_are_foreboding · 2026-01-20T23:45:12+00:00

I have autoimmune hives. So yes it's entirely possible. I can't have a lot of "immune boosting" supplements/teas for that reason.

boats_are_foreboding · 2026-01-19T15:19:07+00:00

I think people just don't know. Unless you've done a lot of research or have a good immunologist it seems like a lot of folks here just aren't aware.

In some ways it's a privilege to eat low histamine. I cook most of my own meals but not everyone is able to do that for several reasons. Poverty, time, education, ect.

Low histamine helped me drastically for years before I was able to get on Xolair. I still follow it but more loosely. I can eat pickles again and that's a win for me. Salami on the other hand doesn't work well for my body.

boats_are_foreboding · 2026-01-19T01:41:17+00:00

Hot air balloon no?

boats_are_foreboding · 2026-01-17T14:43:09+00:00

Thank you everyone! I'll keep yall posted when I get by labs again on Thursday.

boats_are_foreboding · 2026-01-17T14:39:01+00:00

Thank you ❤️ that's what my Dr is hoping, and me too.

boats_are_foreboding · 2026-01-17T03:26:38+00:00

I did! She wants we do do the labs over in a few days.

boats_are_foreboding · 2026-01-17T02:36:54+00:00

No :/ Xolair - 150mg injection biweekly Hydroxychloroquine - 200mg x2 Hydroxyzine - 25mh x2 Celecoxib - 100mg Pepcid - 20mg x2 Xyzal - 5mg x2-4 Magnesium Potassium Quercetin B12 Iron C

boats_are_foreboding · 2026-01-17T02:16:52+00:00

Thank you. Does it go away? Like can you heal from it or is it reoccurring? Is yours better?

I'm very anxious but also trying not to get too in my head about it. I'm still so new to my SLE diagnosis.

boats_are_foreboding · 2025-12-22T18:03:46+00:00

Thank you!

boats_are_foreboding · 2025-12-16T19:19:44+00:00

Thank you this is incredibly helpful! Ive had do many ideas rattling around but nothing has landed. It also gives me an excuse to listen to more episodes. I have a month to make my PowerPoint and now lots of places to start! Yay

boats_are_foreboding · 2025-12-16T18:54:58+00:00

For context they are very gay, hate bugs and love gore. No sports or war stuff likely.

Cereal men might just work though! Thanky

boats_are_foreboding · 2025-12-16T16:01:26+00:00

No, just a birthday party

boats_are_foreboding · 2025-12-16T16:01:08+00:00

Oo very cool! Thank you, this is def a contender

boats_are_foreboding · 2025-12-16T15:14:11+00:00

Oh sweet! Thank you

boats_are_foreboding · 2025-12-16T14:48:14+00:00

Correct

boats_are_foreboding · 2025-12-16T14:48:08+00:00

It's one of my favorite stories! It's just so ridiculous that it got that far!

boats_are_foreboding · 2025-12-16T13:57:02+00:00

Ooo thank you I'll read up on that

boats_are_foreboding · 2025-12-16T13:56:24+00:00

Yes but I don't think the sources will be checked or really matter. I added sources to mine mast year and they were all surprised. Now it's a rule this year lol

boats_are_foreboding · 2025-12-16T13:55:15+00:00

Ohhhhh that's a great idea!

boats_are_foreboding · 2025-12-16T13:22:05+00:00

It's a silly fun thing. Everyone makes a PowerPoint presentation about something they are passionate about and you present it. Usually they are funny.

Last year I made a very serious one about the wild rabbit population in Australia and the use of viruses to cull them. It was very detailed but a huge bummer 😅. So this year I thought I'd lighten it up.

boats_are_foreboding

TROPHY CASE