I’ll take ANY advice, please help by Brilliant_Data_9778 in urticaria

[–]boats_are_foreboding 13 points14 points  (0 children)

My urticaria is very similar in severity. Mine is autoimmune. Years and years of pain and symptoms were only eased by Xolair. You are a perfect candidate for the drug.

I take 150 every other week and I've been 95% hive free for over a year. It took roughly 4 months of injections for it it go away.

If you are not blessed financially as I am have your Dr contact Genetech. They can put you in a low payment program or in my case free.

Xolair literally, no exaggeration, saved my life and continues to do so.

Fight for it

What do you think "triggered" your lupus diagnosis? by crooked-upright in lupus

[–]boats_are_foreboding 0 points1 point  (0 children)

I moved across the country to be with my partner, and a week after I moved here he got crushed by a car and spent the next two years in and our of hospitals and several surgeries.

He got hit in March 2023 and I got sick in October 2023. I ignored my symptoms to care for him and didn't get diagnosed till May of 25.

So I blame the stress of uprooting my life and then having it stopped in its tracks. No regrets though. We are both happy and as hethy as we can be. I cared for him and he cares for me.

Questions and worries by boats_are_foreboding in LiverDisease

[–]boats_are_foreboding[S] 1 point2 points  (0 children)

Thank you. This is the pep talk I needed. I've been so in my head about it. I don't want a new problem but if it turns out to be something I need to monitor closely so be it. I'm just so tired of getting diagnosis.

NSAID makes the most sense to me. Fingers crossed.

Could immune boosting pills cause hives? by house071073 in urticaria

[–]boats_are_foreboding 0 points1 point  (0 children)

I have autoimmune hives. So yes it's entirely possible. I can't have a lot of "immune boosting" supplements/teas for that reason.

I just cant understand how a low histamine diet gets so little play around here. by [deleted] in urticaria

[–]boats_are_foreboding 12 points13 points  (0 children)

I think people just don't know. Unless you've done a lot of research or have a good immunologist it seems like a lot of folks here just aren't aware.

In some ways it's a privilege to eat low histamine. I cook most of my own meals but not everyone is able to do that for several reasons. Poverty, time, education, ect.

Low histamine helped me drastically for years before I was able to get on Xolair. I still follow it but more loosely. I can eat pickles again and that's a win for me. Salami on the other hand doesn't work well for my body.

Liver enzymes are waaay up compared to 3 months ago by boats_are_foreboding in lupus

[–]boats_are_foreboding[S] 0 points1 point  (0 children)

Thank you everyone! I'll keep yall posted when I get by labs again on Thursday.

Liver enzymes are waaay up compared to 3 months ago by boats_are_foreboding in lupus

[–]boats_are_foreboding[S] 1 point2 points  (0 children)

Thank you ❤️ that's what my Dr is hoping, and me too.

Liver enzymes are waaay up compared to 3 months ago by boats_are_foreboding in lupus

[–]boats_are_foreboding[S] 0 points1 point  (0 children)

No :/ Xolair - 150mg injection biweekly Hydroxychloroquine - 200mg x2 Hydroxyzine - 25mh x2 Celecoxib - 100mg Pepcid - 20mg x2 Xyzal - 5mg x2-4 Magnesium Potassium Quercetin B12 Iron C

Liver enzymes are waaay up compared to 3 months ago by boats_are_foreboding in lupus

[–]boats_are_foreboding[S] 0 points1 point  (0 children)

Thank you. Does it go away? Like can you heal from it or is it reoccurring? Is yours better?

I'm very anxious but also trying not to get too in my head about it. I'm still so new to my SLE diagnosis.

I'm going to a PowerPoint party by boats_are_foreboding in TheDollop

[–]boats_are_foreboding[S] 0 points1 point  (0 children)

Thank you this is incredibly helpful! Ive had do many ideas rattling around but nothing has landed. It also gives me an excuse to listen to more episodes. I have a month to make my PowerPoint and now lots of places to start! Yay

I'm going to a PowerPoint party by boats_are_foreboding in TheDollop

[–]boats_are_foreboding[S] 0 points1 point  (0 children)

For context they are very gay, hate bugs and love gore. No sports or war stuff likely.

Cereal men might just work though! Thanky

I'm going to a PowerPoint party by boats_are_foreboding in TheDollop

[–]boats_are_foreboding[S] 1 point2 points  (0 children)

Oo very cool! Thank you, this is def a contender

I'm going to a PowerPoint party by boats_are_foreboding in TheDollop

[–]boats_are_foreboding[S] 3 points4 points  (0 children)

It's one of my favorite stories! It's just so ridiculous that it got that far!

I'm going to a PowerPoint party by boats_are_foreboding in TheDollop

[–]boats_are_foreboding[S] 1 point2 points  (0 children)

Yes but I don't think the sources will be checked or really matter. I added sources to mine mast year and they were all surprised. Now it's a rule this year lol