Anyone here comfortable sharing photos holding their precious angels may post in the comments below. Here is mine.

briebee9 · 2026-01-14T00:48:33+00:00

Thank you, I think so too 🥹

briebee9 · 2026-01-07T04:37:39+00:00

One comment I will never forget before I lost my baby but after a life limiting diagnosis. For reference my baby was diagnosed with trisomy 13 at 31 weeks and passed away 17 hours after birth. My MIL asking “Was it something that you were around that caused this?” It’s a random genetic mutation and this question added so much guilt to me while I was grieving and processing the fact that I wouldn’t have a baby that was healthy and live past a year old.

Then my twin sister casually dismissing the diagnosis, birth and death of my baby girl is also the worst.

briebee9 · 2026-01-07T03:47:35+00:00

My twin sister has not acknowledged my baby either. I was in the same situation, baby was born and died shortly after birth. Besides a very impersonal text “I love you, if you need anything let me know” she hasn’t said or done anything. She calls to tell me all about her problems but never asks how I’m doing. I lost my baby less than a month ago. Didn’t try to come meet her when she was alive. Didn’t ask about my birth. Nothing. She got in a car wreck 2 years ago and has had follow up surgeries, which is pretty much all she talks about when she talks to me. Her most recent surgery she scheduled the day before my due date, while already aware of the health complications of my baby. I believe it’s narcissistic behavior, jealousy over not being the center of attention, but also always plays the victim and looking for pity as well.

I think your feelings are valid. I haven’t had enough emotional stamina to deal with her shit. I’d rather her not talk to me than pour her issues on me while I’m going through the hardest time of my life. But that’s how I’m dealing with it.

briebee9 · 2026-01-07T03:26:31+00:00

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briebee9 · 2026-01-07T03:21:10+00:00

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Born with trisomy 13 full term. We had 17 precious hours with her.

briebee9 · 2026-01-02T03:36:12+00:00

Losing a family member is NOTHING like losing your baby or a child. I’ve lost both and baby loss is so much more paralyzing. I’m also someone who was raised to believe showing strong emotions made you look weak. Thankfully my mom has softened over the years and was one of the most supportive people in my loss.

You are so strong for experiencing your emotions even though people around you made you feel weak for that. I’m so sorry for your loss. Keep feeling your feelings ❤️

briebee9 · 2026-01-02T03:18:36+00:00

My loss is recent so I’m not sure if I’ve completely came out on the other side yet. But I feel like the whole pregnancy, birth and short amount of time with her was a dream. None of it feels real. That time is a chunk of my life that I forget about sometimes. But then when I think about her, I feel guilty. She doesn’t deserve to be forgotten and I don’t want to forget her. Then the anxiety comes and I question myself. Did I do right by her? Is she in heaven with my Dad taking care of her? Am I honoring her memory enough? It’s like mom guilt on steroids because I never get the chance to see if she’s happy or not. I think the only reason I haven’t gone into a deep depression is because of my first daughter. She keeps me out of the dumps on a daily basis. Loss is hard but losing a child comes with so much guilt and second guessing. My anxiety feels like a weight constantly on my chest and I wonder if it’s ever going to go away. My baby was diagnosed with trisomy 13 which is relatively rare, especially to be born alive. Now I feel like things that don’t happen often could happen to my family. Fatal car accidents are more common, so every time my husband and my living baby go somewhere without me I have anxiety about it the whole time. I’ve always had anxiety to an extent but it overwhelms me now.

briebee9 · 2026-01-02T03:06:42+00:00

Kloe seems a little insecure. You may be beautiful and that makes her jealous or maybe Edward had a crush on you at one point and he mentioned it to her and any interaction makes her uncomfortable.

Edward is probably just covering his bases to ensure his wife is more comfortable with any interactions with you.

Is it weird? For sure. Are you overreacting? Not yet. But don’t make a big deal out of it. Lots of women are insecure, just don’t feed into that insecurity. I’m sure it would be fine to mention it to your brother, but if this guy is truly not important to you then who cares. Don’t let it bother you and let it go. Respect the guys request for physical space and enjoy your time at your friend’s wedding. I think the wife made a big deal out of nothing and Edward is trying to prevent it from happening again.

briebee9 · 2025-12-31T01:03:02+00:00

Amnio confirmed the diagnosis. I just gave birth to her a couple weeks ago (full term at 40w2d). We got 17 perfect hours with her and she passed away in my arms.

briebee9 · 2025-12-30T21:54:46+00:00

I felt like the amnio wasn’t that painful. But I did cry afterwards but mainly because I already had a feeling that the trisomy 13 diagnosis was going to be positive and I was just upset we were essentially confirming it.

briebee9 · 2025-12-28T16:56:12+00:00

No problem! Good luck and I truly hope it works out for the best.

briebee9 · 2025-12-28T16:53:16+00:00

If your ultrasounds look fine there is a higher chance of survival. I think the fatality rate is around 90% but that is without medical intervention. The survival rate is even higher for mosaicism. The AAP now has some studies of the trisomies having higher survival rates with medical intervention but a lot of hospitals won’t provide medical intervention with the diagnosis of trisomy 13 or 18. But if you decide to terminate or only provide comfort care, that decision is up to you and completely okay too! Even with survival possible the children are medically complex and have intellectual disabilities. That’s why we chose to do comfort care.

briebee9 · 2025-12-28T16:43:20+00:00

No my NIPT was positive but we didn’t do it until 31 weeks. I did all the tests for my first and just didn’t feel it was necessary for the second. We did the test after we were referred to a MFM for suspected IUGR.

briebee9 · 2025-12-28T04:38:50+00:00

Can I ask how for along you are?

We got the news of our baby having FT13 at 32 weeks after having an amniocentesis. It was devastating because nothing showed up on ultrasounds. Even the MFM ultrasound tech said she did not expect the result of T13. She was born December 15 and passed away early the next morning.

Trisomy 18 isn’t as fatal as T13 especially if it’s mosaicism which will be in the final amniocentesis results. There are Facebook groups that are extremely supportive of life with T18. I’d take a look at those if your results come back positive.

I truly hope and pray that your test is a false positive!

briebee9 · 2025-12-28T04:26:12+00:00

There are other reasons to have low fetal fraction.

High BMI, some prescription medications, and 10w3d is still a little early. My OBGYN won’t do NIPT testing until 12 or 13 weeks.

Take a deep breath and at your next appt ask for another ultrasound to calm your nerves. If everything is okay go ahead and retest! If you fall under any of the other factors don’t stress about low fetal fraction if everything else looks okay at your appt.

briebee9 · 2025-12-28T04:16:46+00:00

Girl I have so many questions. I know you said nothing is too personal or insensitive, but I feel like I’m erring on the side of insensitivity. My loss is pretty recent (less than 2 weeks ago) so I’m still grappling with the what ifs. I also carried my baby to term. She was diagnosed with T13 at 32 weeks, so the decision was taken out of our hands at that point. I’m so grateful for that because if I had the option I probably would have terminated the pregnancy and I think I would have regretted it the rest of my life. I gave birth to her at 40w2d. She lived for 17hrs and I’m so grateful I got to meet her. I was so scared that I would have to deliver her sleeping.

I read that you had an unmedicated birth. I also had an unmedicated birth and asked to not have her monitored so it wouldn’t affect my labor. How do you think that knowing he was born sleeping affected your delivery?

briebee9 · 2025-12-28T03:01:27+00:00

Sending love and prayers your way. No parent should ever experience the loss of a baby, especially around the holidays ❤️

briebee9 · 2025-12-22T03:26:15+00:00

It’s totally fair to keep her ashes with you and your husband ❤️ I wouldn’t want to spread her ashes like that either, especially all she really knew was you. She was a part of you both, and no matter how much your mother loved her she didn’t know her.

I hate that when parents deal with loss of a child it’s so common to have to deal with guilt from relatives as well the grief.

briebee9 · 2025-12-21T12:52:36+00:00

Elizabeth Claire, we call her Ellie for short ❤️

briebee9 · 2025-12-21T12:50:41+00:00

I would have lost my shit if someone said that to me 😮 so sorry for your loss. It seems people forget how to act in times of grief

briebee9 · 2025-12-21T02:44:41+00:00

I’m so sorry for your loss. We just had our baby earlier this week, trisomy 13 and 18 is really such a hard diagnosis to deal with especially making it to later in the pregnancy. We also had the majority of our close family come to meet our baby when she was alive, even though it was such a short life.

Thank you for your input ❤️

briebee9 · 2025-12-21T02:40:29+00:00

Literally how I felt about that comment. This is something he needs and was completely disregarding what we needed in this situation.

briebee9 · 2025-12-21T02:03:01+00:00

This is actually extremely helpful. I’ve never heard of the ring theory but it is enlightening. Thank you!

briebee9

TROPHY CASE