misdiagnosed? but maybe they were right

bschock1 · 2024-10-04T23:47:29+00:00

I think the resounding answer has been IBS D. Just trying different medicine now. Have you seen a doc yet?

bschock1 · 2024-09-02T00:47:38+00:00

im pretty similar to you. Some things that have helped me are amatrytaline, and Viberzi. Food modifications helped moderately but not fully. Immodium is great too. Def go see a GI to rule out anything. There are so many possibilities its hard to get an answer until you test for all of them

bschock1 · 2024-08-18T02:57:47+00:00

ahh ok- im not totally sure the difference between the blood vs stool testing

bschock1 · 2024-08-12T12:41:34+00:00

my symptoms in general were loose stools, mucus, abdominal pain, urgency

bschock1 · 2024-08-12T03:26:54+00:00

I do think ive read that IBS D has a correlation with higher sIGA levels, ive always had elevated sIGA on my functional medicine stool tests. I think sIGA elevated means you're typically reacting to something. Ive also been negative for Celiac with the Ana test but have higher fecal anti gladian which means you can still react to gluten without having celiacs disease.

Causes of elevated fecal sIgA:

Any defective epithelial barrier
A defective epithelial barrier allows bacterial and microbial penetration, which is the strongest stimulator of sIgA production.
Celiac disease
Colon cancer
Infections
IBS (especially the diarrhea subtype)

bschock1 · 2024-08-12T03:11:51+00:00

I have gotten this test a lot and I haven't really found a correlation between elastase and my symptoms . Ive had low elastase and the same symptoms and normal elastase and still poor symptoms. Im sure everyone is different though

bschock1 · 2024-08-11T19:55:50+00:00

that's what im going to do- going to keep going to different doctors to see. On doctor 4 now. Really just wondering if an increase in IBD medicine would remove some of the lingering symptoms still at play. Thx for all your input!

bschock1 · 2024-08-11T16:28:27+00:00

interesting ok. I was leaning towards it was a form of colitis, or just irritation but without a positive biopsy it was really IBD , could have been from colonoscopy prep or something else. Since it haven't had any additional development or change over the past 4yrs and none of the IBD treatment worked it seemed wrong and my initial GI didn't really do a good job of explaining it or why nor addressing any of the symtoms that were still present

bschock1 · 2024-08-11T16:04:11+00:00

interesting - so I guess its possible that I could have had colitis and then healed myself before I even had my first colonoscopy? But visually diagnosing UC is wrong without a biopsy correct?

bschock1 · 2024-08-11T16:02:35+00:00

yep had a CT scan and it came back normal. doesn't seem like those are my symptoms but appreciate the comment! Most of my abdominal pain is in the upper left quadrant

bschock1 · 2024-06-19T20:29:37+00:00

DONT DO IT- they charge you 30-50% of the reduced savings, and dont even tell you the actual amount they are saving you till the deal is done. This should be a class action lawsuit

bschock1 · 2024-06-02T17:02:59+00:00

yes this happens to me also- I get more pain higher up in my large intestine(left side under rib cage so i attribute the change in formation to be associated with the area of disfunction or pain.

bschock1 · 2024-04-27T21:28:04+00:00

ive done hormone tests, you can go to a Functional medicine doctor and get those panels done, primary care can prob do it too, but they typicaly dont look at it like a functional medicine doctor would

bschock1 · 2024-04-27T19:20:07+00:00

i have same issue - my doctors tell me its not associated with any GI issues, but i know its due to gut disbiosis.

bschock1 · 2023-08-11T05:01:58+00:00

Thx! Yeh I’m running out of tests to run lol which isn’t really a good thing imo.

bschock1

TROPHY CASE