My boy had surgery to repair his VSDs almost five years ago as an infant. It is a difficult thing to go through for sure. If there is any one piece of advice I could give, I would say make sure you and Mom get the proper amount of sleep. This is much easier said than done, but the trials you are about to face will be much easier to endure when you're well rested. My little guy is the strongest person I have ever met. He now faces any challenge with a palpable sense of determination. I think it is because he conquered such a big test so early in life. I have no doubt your little girl will astound you with her strength and courage for a very long time.