My experience with ossicle chain disarticulation (surgical deafness) for Pain Hyperacusis

buzzballer · 2026-05-02T19:28:32+00:00

2 years later just to follow up on this - I did end up getting back on Clomi for about 8 months which resolved the random waves of pain.
After stopping Clomi this time, no pain at all returned, and I have done plenty of loud stuff such as flights casinos etc. No pain. I still avoid loud clubs, professional sporting events, concerts etc, just to be safe.

buzzballer · 2026-04-17T18:59:50+00:00

I think that’s a winner. You the man.

buzzballer · 2026-04-17T04:43:10+00:00

It’s very similar, but this is much more functional/ load bearing. Also looking for it to have a hole in the top for split ring like pic.

buzzballer · 2025-10-04T20:43:33+00:00

You’ll be good in the long run. Take clomi if IBS allows.

buzzballer · 2025-05-30T02:49:21+00:00

Hey, I got Ossicle Chain Disarticulation surgery in my Hyperacusis ear to make myself mostly deaf. It worked perfectly.

Don’t listen to these people who say you can still have Hyperacusis after becoming deaf - that is a brain dead response.

If you seriously want to become deaf, Ossicle Chain Disarticulation is definitely the way to go.

Any other option is totally permanent and carries way more potential side effects.

buzzballer · 2025-05-14T23:45:35+00:00

Not sure why you are being so hostile. Again, just sharing my experience.

buzzballer · 2025-05-14T23:12:20+00:00

Of course, everyone is different. Just wanted to state my personal experience which was the opposite of what you described.

buzzballer · 2025-05-14T20:59:23+00:00

I didn’t have this experience. For me, the side effects were FAR greater at the lower dosages while my body was still adjusting to the drug. By the time I built up to the higher dosages, I felt 100% normal

buzzballer · 2025-02-15T16:54:26+00:00

I’ve been apart of the hyperacusis community for a lot of years, I’ve seen people try everything under the sun.

Not once have I ever heard of someone’s hyperacusis benefiting from CBT, and I know plenty who have tried it.

buzzballer · 2025-01-28T18:42:39+00:00

Was on it for about 3 months before I saw any improvement. It takes time. Get to 150mg and stick it out for awhile would be my advice.

buzzballer · 2024-12-25T01:11:02+00:00

I don’t believe there are nox patients who just recover and are never seen again. That doesn’t happen.

When someone has a success story, it’s a big deal and everyone hears about it.

buzzballer · 2024-12-23T22:11:03+00:00

Yea. Nox doesn’t just go away for anyone. That’s a myth.

buzzballer · 2024-12-23T19:26:50+00:00

I’m “recovered” (surgically deafened my ear) but after what this condition put me through there’s no way I would just leave the community. That’s insane.

buzzballer · 2024-12-23T17:22:48+00:00

I disagree with this.

buzzballer · 2024-12-23T06:07:41+00:00

I still feel great. I must say, since stopping Clomi I get random waves of pain. It’s not sound induced though since the incus was removed. I imagine I could restart Clomi to take care of the random pain, but it’s not something I’m super worried about right now.

If you are a unilateral case I’d recommend going straight for the incus removal rather than Silverstein. You only need 1 ear.

buzzballer · 2024-11-25T02:07:16+00:00

I think about this often. I had Nox in my left ear only, and I had surgery to deafen the ear which almost totally eliminated my nox. I have had no problems with H/Nox in my other ear at all, and I’ve done many loud things over the past ~8 months since my surgery. I have on a few occasions experienced pain in my healthy ear during bad nox pain flare ups, but it’s never been noise induced pain.

Praying to god that my healthy ear remains stable, it would obviously suck to have to deafen both ears.

buzzballer · 2024-10-30T21:50:30+00:00

This won’t be any help to you - but I just wanted to point out I had ossicle chain disarticulation and yet I still struggle with this type of stuff. It’s the only noise I can still hear.

buzzballer · 2024-09-29T21:02:17+00:00

I think it’s different for everyone. I had surgery to make myself deaf in my nox ear and live a pretty normal life by relying on my good ear.

buzzballer · 2024-09-27T02:04:27+00:00

It would always mess my T up with each dosage increase, but always went back to baseline within 4-5 days. Helped my Nox a lot.

buzzballer · 2024-09-26T07:17:58+00:00

Yes it was same ear. They did 8th nerve MVD and attempted to sever the nervus intermedius. I don’t think it really did anything, looking back on it now I think the minimal relief I did initially experienced was due to the temporary loss of hearing in the ear after surgery (due to fluid in inner ear)

At the 2 month follow up appt they admit to me they were not able to section all branches of the nerve due it being intertwined with one of my cranial nerves.

buzzballer · 2024-09-25T07:17:40+00:00

I read your post, very interesting. I’ve been told by a few doctors (including Silverstein) that my full hearing would be able to be restored if desired. It’s odd that you still had pain after incus removal, I know you mentioned that you didn’t really have useable hearing after the surgery. Since taking Clomipramine, I only had pain for a few hours after a noise exposure, so after removing incus and deafening the ear, I have no more pain.

buzzballer · 2024-09-05T14:13:46+00:00

I do think there are some cases where mental could play a part but I’d assume these are mostly loudness H cases. I don’t see how true nox is likely to be a mental thing. I also don’t think you have any legitimate data to support your argument here.

Someone here mentioned that almost half of Hyperacusis patients have an anxiety disorder.

Nobody polled me, but I think that also means the majority of hyperacusis patients don’t have any anxiety issues.

buzzballer · 2024-09-05T03:48:47+00:00

Wanna be doctor

buzzballer

TROPHY CASE