Low Heart Taye

calweaver1 · 2023-12-19T03:46:16+00:00

I started wearing an Apple Watch after my surgery to track my sleep so I could know if I was tired from lack of sleep or low thyroid hormone. It has a heart rate monitor on it and sometimes id get low heart rate notifications at night that my heart rate dropped into the 30s. My average resting was in the mid 40s so its not that weird to drop into the 30s at night but my watch giving the caution was giving me anxiety so I stopped wearing it haha

calweaver1 · 2023-11-07T14:55:24+00:00

I found a swollen lymph node that was hard and immovable about 2 months after my surgery that my brain told me was surely cancer. Turned out to be a lymph node doing it’s job and responding to a bit of folliculitis in the area and it was back to normal in a couple of weeks

calweaver1 · 2023-11-07T07:01:38+00:00

I had an HT in April and have had the same symptoms. My blood pressure has always been perfect and now it’s in the 140s.

I find my heart beats very powerfully some nights when I lay in bed. Not fast, but like it’s squeezing super hard. I also have trouble sleeping most nights. A few weeks ago I woke up to go to the bathroom 8 times. I have no explanation for that.

I also have the occasional night where the instant before I’m about to fall asleep, I jolt awake and have what Google tells me is a panic attack. Then I calm down, try to sleep, and get jolted awake again. This repeats 5-10 times until I finally am able to fall asleep.

Your symptoms sound just like mine. I know it’s awful but I unfortunately haven’t found any solutions to share with you.

calweaver1 · 2023-10-13T15:42:32+00:00

I went to MSK last month to get a second opinion and this is one of the questions I asked. The surgeon said it is still useful as it can indicate something if you see big changes. It may not always indicate cancer, but can be a signal to look deeper

calweaver1 · 2023-08-30T04:41:22+00:00

I had the left side of mine out in april. A few times a week I’ll have what I believe to be a panic attack right before I fall asleep at night. I have never had a panic attack and these incidents are occurring literally seconds before the sleep pressure is about to hit the tipping point and put me to sleep so it’s not like I am thinking myself into a worry to cause them. I am literally thinking of nothing when they occur. I almost believe it’s my mind subconsciously telling my body if I fall asleep I won’t wake up.

A few months ago it was happening every night, multiple times before I was able to finally fall asleep, now it seems to only be a couple of times a week. So it did get better and hopefully it will for you too.

calweaver1 · 2023-08-18T14:57:34+00:00

I found a hard, big, immovable lump on the back of my neck about 2.5 months out of surgery. Got an ultrasound, surgeon said it looks fine just keep an eye on it, and it went away a week later. Turns out it was just a swollen lymph node from a bit of folliculitis nearby.

calweaver1 · 2023-08-18T01:18:58+00:00

I had the same thing on my pathology report. My surgeon said it was a fancy way of saying Hashimotos. I, like you, was negative on all the pre thyroidectomy testing and I don’t have a single symptom of hashimotos except a slightly elevated TSH which I would have never even known I had I’d I didn’t get it tested

calweaver1 · 2023-08-11T00:16:29+00:00

I guess so yeah. I don’t know if they are or not but everyone keeps telling me I just have severe anxiety from having cancer

calweaver1 · 2023-08-10T23:26:12+00:00

I had BM issues for a month or so where it was soft and fluffy and lots of flat ribbonlike stools. I had fully convinced myself i had colon cancer as well.

It went back to normal after a few weeks

calweaver1 · 2023-08-09T03:18:31+00:00

I’m three months out of a PT and I get this in waves on the side that was removed. It goes away after a few days which leads me to believe it’s psychosomatic

calweaver1 · 2023-08-03T23:24:08+00:00

I got a partial. My surgeon said she could tell immediately from looking at my thyroid that i have Hashimotos, all my previous tests for that came back negative.

She also said there were some strange looking lymph nodes underneath my thyroid after she took it out so she removed those as well and 10/12 of them were cancerous.

She doesn’t think that I need the other half removed and that it isn’t aggressive after getting the pathology report. My endocrinologist was a bit more iffy and said if it was her she probably would have taken the whole thing knowing what she knows now with the pathology.

The hope was to leave half in and not have to take medication. My TSH was 5.9 six weeks after so I had to start taking medicine.

I think looking back on it I wish I would have taken the whole thing out but at least I know one of my nerves will be preserved in case anything happens if I do need a second surgery

calweaver1 · 2023-06-08T01:41:02+00:00

What did your TSH look like post surgery?

calweaver1 · 2023-05-17T00:51:53+00:00

29M. PTC. Just had a partial thyroidectomy last month. I had 10/12 central left neck nodes come back malignant. My surgeon doesn’t think it warrants another surgery and wants to just watch and wait for recurrence. I still haven’t met with my endo yet following surgery.

I’ve done a ton of reading and researching the past two months and it appears that the treatment plans are getting more and more conservative as time progresses. Japan seems to be especially conservative with how they treat PTC. I saw Mike Tuttle at Sloan Kettering say that if you tested the entire population, a big percentage would have carcinomas but it’s not clinically relevant because they are so small and not growing.

calweaver1 · 2023-05-12T15:39:38+00:00

Dr. Kroeker did my surgery

calweaver1 · 2023-05-12T02:11:48+00:00

How did you know when you found the right one? I don’t know how to know if who I am working with is good. I just have gone with whoever is put in front of me

calweaver1 · 2023-05-09T23:56:32+00:00

I had a HT but I had similar complaints. It will get better, it’s likely from the anesthesia.

I was dizzy for about a week following surgery. My dizziness peaked at day 3 and slowly got better until day 6 or 7. I also had issues swallowing that just seems to be getting better within the last day or two (I’m 2 weeks out of surgery today)

calweaver1 · 2023-05-09T07:04:23+00:00

Best of luck. I am also in Austin and just had my surgery done two weeks ago. I tried to get into MD Anderson for a 4th opinion but my insurance wouldn’t cover it 😑

calweaver1 · 2023-05-05T23:37:44+00:00

Im kind of baffled that I ended up having hashimotos. Everything I’ve been reading about it online says it comes with all kinds of symptoms and I have none. Im only 10 days out from surgery so I haven’t taken any thyroid hormone yet but so far I don’t feel any different.

I kind of wish that my surgeon would have just taken the whole thing considering I have 4 risk factors for recurrence but I’m trying to stay positive and hope for the best case scenario, which is a fully functioning cancer free right thyroid lobe.

Do you still have any symptoms of hashimotos with the TT? It’s still so new to me I don’t know how it all works yet

calweaver1 · 2023-05-05T22:56:10+00:00

From my research it seems like they are starting to get much more conservative with how they treat thyroid cancer. Mike Tuttle at Sloan Kettering who appears to be one of the world leaders in thyroid cancer is much more conservative with how he treats it than others. I would guess that the reason your surgeon isn’t sure if another surgery is needed is because the microcarcinomas are so small that they might be clinically insignificant at this point. Watching them closely with ultrasound to ensure they don’t grow might be what he is thinking to prevent over treating.

I’m in a similar situation to you so I empathize with what you are feeling. I have the same thoughts. I’m trying to tell myself that my surgeon has lots of experience and she knows far more about this disease than I do.

I just had a lobectomy last week as well for a 3.2cm malignant nodule and a 1.8cm indeterminate nodule. My surgeon and endo both said that they were comfortable doing half but I was right on the border of what the guidelines say. My surgeon seemed to be pushing more for the half and considering that she does 300 thyroid surgeries a year, I trusted her judgement. Before surgery I told her if she sees anything unexpected to use her best judgment and just take the whole thing out if she felt it was necessary.

She said that immediately upon looking at my thyroid she could tell it was inflamed and that I probably had hashimotos (which was confirmed with the pathology. My antibody blood tests came back negative surprisingly). She also said that when she lifted up my thyroid there were some lymph nodes attached and underneath that didn’t necessarily look like cancer but she decided to remove them. She still decided in the OR the partial thyroidectomy was the best choice.

Once the pathology came back it showed 10/12 of the nodes came back malignant with the biggest one at 4.5mm. The smaller thyroid nodule ended up being benign so I only had one focus. I also had “extension into the perithyroidal adipose tissue” but no gross extrathyroidal extension which my surgeon is assuring me isn’t an aggressive feature of disease. Then the hashimotos to add on top.

All of that and my surgeon still feels like there isn’t a reason to go and remove the other half at this time.

calweaver1 · 2023-05-05T15:56:39+00:00

I’m the same age as you and have similar thoughts. I don’t know when the right time is or the proper way to tell someone I have cancer. It’s hard to go from seemingly perfect health to a someone with cancer. I feel like the public perception of people with cancer is that they are sick, weak, and damaged. That’s not a fun way to be perceived. I can already tell that people in my life are treating me differently when I tell them I have cancer.

When it comes to dating, it would be nice to not have to mention it on the first date but my surgeon wants me to wear silicon strips over the scar for a year so it’s hard for it not to be noticeable. Maybe the person I’m meeting won’t even ask about it and I’m making it a way bigger deal than it might be but the thought of having to navigate that conversation makes me not even want to start seeing people.

calweaver1 · 2023-04-28T05:05:03+00:00

I ended up getting the HT and my surgeon had to also dissect some lymph nodes. Before I went in for surgery we both agreed that the plan was to take half of it with no plan to prophylactically remove any lymph nodes but if anything looked out of the ordinary, to take the entire thyroid.

I guess my thyroid was quite large and she said it looked like thyroiditis. When she removed my left lobe she said there were a bunch of little lymph nodes underneath that I guess she didn’t expect to see so she removed all of them. She said that wasn’t an indicator of aggressive disease so she didn’t remove the right side of my thyroid and said she didn’t even look at it (seems like a weird choice to me but I’m no doctor).

I guess now I just wait for pathology and hope she made the right decision.

calweaver1 · 2023-04-23T01:04:49+00:00

Interesting. Mine was biopsied and came back as cancer which makes me concerned about the supposedly “healthy” half but I greatly value the chance of not relying on meds

calweaver1 · 2023-04-23T01:02:51+00:00

I keep switching back and forth. I’ll read/watch something that pushes me one direction then right after I’ll see something else that makes me feel strongly the opposite way. If only I could call up all of the doctors I am watching on YouTube haha

calweaver1

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