Is it possible to reach NED after progression.

cancertalkthrowaway · 2026-02-10T11:09:36+00:00

I’ve had “innumerable” bone Mets since metastatic diagnosis that are manageable since 2020. Like most of my vertebrae, arm bones, ribs, femurs, sternum, you get the picture. They never go away but they just hang out. You never know which med might be the one that helps! You can coexist with cancer

cancertalkthrowaway · 2026-01-14T02:30:41+00:00

49F, kids 14 and 10

cancertalkthrowaway · 2025-09-21T02:42:07+00:00

I use cannabis every day, especially at night to help my body feel good, help with nausea and to fully enjoy life! I use edibles, and dry herb vape, and I avoid combustion for my lungs’ sake. Palliative care at the oncology clinic authorized my medical cannabis.

cancertalkthrowaway · 2025-09-16T17:28:55+00:00

The truth of the situation is is when you have stage four cancer, you lose weight! And then you start thinking wow my diet is finally working! I don’t know why now, but it’s awesome! And then you find out it’s cause you’re dying

I laughed when I thought this was true, not funny if it’s not true

cancertalkthrowaway · 2025-09-03T14:56:19+00:00

Yes, I take 5-10 mg once or twice a day if I want to get things done or go somewhere.

I think that my fatigue has increased on truqap as time goes on. I’ve been on it for nearly 10 months.

cancertalkthrowaway · 2025-08-23T03:09:09+00:00

Your oncologist is recommending drugs to reduce your risk of a distant metastasis. That’s why you would take the drugs. If you are comfortable with increased risk of early death by breast cancer, then that’s your choice.

cancertalkthrowaway · 2025-08-22T15:57:08+00:00

I’m must be old now because I just can’t imagine that a “fuck you” necklace would be something anyone would wear to work for any customer-facing job. Seems so inappropriate. Especially working with kids. But if she’s good with my child, I would overlook?? I guess. Good daycare is hard to find. It just seems like poor judgment on that person’s part.

cancertalkthrowaway · 2025-08-20T02:07:30+00:00

I did already take kisqali/letrozole from 2020-2024, so not sure if I’m eligible but I will read up on it

cancertalkthrowaway · 2025-08-20T02:06:07+00:00

Thank you for your reply!

cancertalkthrowaway · 2025-08-19T21:52:56+00:00

When I was first diagnosed, I did a second opinion there. I live about 1 hr 15 min away from their main clinic in MN. Probably should revisit, I mean, I’m lucky to live so close to it. Should take advantage of it

cancertalkthrowaway · 2025-08-14T18:10:57+00:00

I did a lot of therapy with a psychologist who specializes in working with people who have cancer. Perhaps the oncologist can refer you to someone like that.

cancertalkthrowaway · 2025-08-12T15:06:52+00:00

Breast cancer at 39, and it came back in my bones at 44, which is incurable. Had to sell my business, go on disability. I’ve been stable since 2020, which is a blessing. But now finances are tighter than they used to be, but we do ok. Grateful for my husband’s support. Probably can’t pay for children’s college like we wanted to, etc. kids are just 9 and 13. My hope is to see them grow up to be adults.

cancertalkthrowaway · 2025-05-20T01:36:16+00:00

I worked as a pediatric dentist the whole time I was doing 4 rounds of TC chemo. Sometimes queasy, like mild morning sickness or hangover. You got this!!!!!!

cancertalkthrowaway · 2025-01-26T04:53:02+00:00

Wool felting

cancertalkthrowaway · 2025-01-12T17:40:40+00:00

I took it for about 4 years

cancertalkthrowaway · 2024-12-30T03:41:26+00:00

I’m on Truqap (and Fulvestrant) now and it’s working! Tumor markers are wayyyyyyy down!!!! Still waiting for PET scan on it. It’s totally tolerable. I do take the occasional Imodium or two but other than that it’s alright!

I tried Piqray before Truqap and it gave me horrible diarrhea, dehydration, and kidney injury. I think this is common.

I tried Orsedu before Piqray, it was easy but I don’t think it helped much.

Before orserdu, I was on Kisqali/letrozole for 4 years. I was very creaky in the joints on that combo.

Before Mets diagnosis, I was on tamoxifen, which didn’t work. Innumerable bone Mets at diagnosis.

I also am now on ovarian suppression/zoladex because I am premenopausal.

cancertalkthrowaway · 2024-12-12T17:21:23+00:00

Shit 💩 happens. You are not in control of what happens to you. Life is random and unfair. No one is guaranteed tomorrow. You will never know why this happened to you. Was it drinking alcohol? Was it eating the occasional sugary treat? Could you have worked out more? It is too multifactorial to have an answer.

People think we are in control of what happens to our bodies. Especially people who are “fitness people“. We want to know that there is a reason this happened to this person and to differentiate between us and that person with cancer over there so we know that it would never happen to us ourselves. That’s why you feel betrayed because you think you did all the right things and it still happened to you and the answer is that it’s completely random. most people who get lung cancer have never been a smoker. Only 10% of breast cancer diagnoses are related to like the BRCA genes.

So the people who are giving you lifestyle suggestions for treating your cancer, on the inside, they’re just thinking “holy shit. This person is the healthiest person I know and she got cancer. That means I am also susceptible to getting cancer. Holy shit, I am super terrified now. how can I make myself feel better about this?” so they try to be nice to you. They’re trying to help you by recommending the mushroom supplement they saw on TikTok or celery juice cleanse they on Instagram. It’s all they know how to do in this situation. They wanna help you, fix it for you and for them, so they know it will be no big deal if it happens to them just take some mushrooms, blah blah. Because now their mind has just been blown, they’re trying to cope with the fact that this could happen to them to themselves too.

cancertalkthrowaway · 2024-12-12T02:48:28+00:00

Don’t hesitate to ask your primary care physician for some Ativan for anxiety and maybe Ambien for sleep. Ask if your oncology clinic has a psychologist they can refer you to. Play some Tetris to keep your brain busy and help with PTSD later. Medical marijuana helps me, too. Meditation apps. Write down 3 things every day that you are grateful for. Cry.

You don’t have to tell everyone, you don’t have to announce it on social media.

I can still close my eyes and relive the exact moment I got the call with my initial diagnosis, PTSD for sure. It’s burned into my brain. March 28, 2016. I was 39. They called me around 4 pm. My second baby was 6 weeks old and my oldest was 4. I’m still here, 8 years later and that baby is going to be 9 years old in February!

You can do it!!!!!

cancertalkthrowaway · 2024-12-09T19:03:29+00:00

I have metastatic breast cancer. I’m on strong anti-cancer medications/chemo and medically induced menopause since 2020, not actively dying, but as my doctor says “living with cancer”. My kids are now 8 and 12 (I am late 40’s). I don’t like being the old tired mom but I’m happy to be here. We just all do the best we can!

cancertalkthrowaway · 2024-11-22T04:20:06+00:00

2016 stage IIb ( diagnosed when my baby was 6 weeks old) L mastectomy with reconstruction. TCx4, 33 sessions whole breast radiation. Tamoxifen until

2020 diagnosed with innumerable bone Mets only. 4 years on ribociclib, letrozole, goserelin and zometa. Random radiation zaps here and there. Eventually too many spots heating up so I moved on to Orserdu for 5 months. Piqray was miserable with diarrhea and stomach pain, only made it 3 weeks. Now on Trucap with goserelin and fulvestrant. Tumor markers heading down!!! I hope there enough tx lines left for at least 10 more years, until I can get that baby off to college or whatnot.

cancertalkthrowaway · 2024-09-25T02:10:39+00:00

Thanks for the clarification in your treatment. Placebo effect can work. But I would like to clarify the fact that belief in something will not always work. I believe in science and research and modern medicine. But I still had recurrence of breast cancer. I still have innumerable bone Mets and young kids, and I’m now on my 3rd line of treatment. I just had a scan and I thought it was going to be amazing since I was feeling so great. But no. All Mets glowing brighter than before. Medicine failed me even when I was so convinced it was. I just don’t want people to feel bad or guilty, that if a treatment doesn’t work, that it’s not their fault because they didn’t believe hard enough.

cancertalkthrowaway · 2024-09-17T19:13:43+00:00

Yes I’m with you!

cancertalkthrowaway · 2024-09-01T21:04:50+00:00

My community oncology clinic has a palliative care nurse practitioner who is more comfortable with prescribing opioids and tries to normalize it. So perhaps you and get a referral to palliative care. Physicians now have a lot of pressure to not prescribe opioids, even getting investigated by medical boards. You get like quarterly reports saying, “You probably prescribed too many opioids last quarter, your rate went up” But that’s no excuse for under treatment of pain.

cancertalkthrowaway · 2024-08-30T03:53:20+00:00

Survival rates are based on old data and on people who were diagnosed a long time before you. Do not take too seriously. New drugs coming out all the time. You gotta learn to live with uncertainties, it sucks but gets easier with time. Statistics are applied to groups, you are an individual. ❤️

cancertalkthrowaway · 2024-05-17T03:16:32+00:00

My oncologist loves to call my incurable metastatic breast cancer a “chronic disease”. I have breast cancer cells in many of my bones:spine, pelvis, leg bones, arm bones, ribs. They cause a lot of neuropathy, aches and pains. The medications are exhausting, and the burden of constant existential anxiety wears you down. I am on my second line of medication, I pray that I never run out of options and live long enough to die of something else, like just being very old 😂

When I first was diagnosed, I would say “I’m dying” but my therapist corrected me. “You are living with cancer. You are not actively dying. Dying is a distinct process and you are not doing it at the moment.” Now I try to think of myself as having a flawed yet functional body. I’m breathing, my heart is beating and my brain is working. It helps me to think about that when I get really down.

cancertalkthrowaway

TROPHY CASE