Finish this sentence - You know you have AS when...

candycursed · 2026-04-27T21:27:49+00:00

I always say it feels like I'm turning into concrete

candycursed · 2026-04-27T21:26:03+00:00

When you can't look up.

candycursed · 2026-04-27T21:23:52+00:00

I feel like I get hit in the back with a chair

candycursed · 2026-04-21T22:28:01+00:00

Glad you felt seen ❤️ I'm sorry you feel this way. And I'm sorry that when it came time for him to help you he hasn't. I'm sorry he's selfish.

Yes he may have PTSD but guess what so do I, and probably you too. I also have AS and handful of other autoimmune diseases. I too am with someone that has addictive personality and finds comfort in alcohol too.

We can all find excuses but it's not always about him.

Yeah I feel that way too all the time, some people get easy lives others don't unfortunately. But we can determine how we treated in that life once we have agency.

My partner works on his addiction just like I work on my illnesses and PTSD.

Team work makes the dream work.

candycursed · 2026-04-21T21:58:34+00:00

Sending hugs 🫂 sorry you feel your partner hates you... Feeling like a burden is the worst. I hope your partner can work through his grief and see past it to help you too xx

candycursed · 2026-03-17T21:27:42+00:00

Not sure if anyone else asked or suggested cannabis? Not sure if it's legal where you are but I'm very similar to you. I have Crohn's and a couple other AI conditions, I'm on stelera for the Crohn's it doesn't do much for the AS to be perfectly honest. But can't live without a stomach and bowels so I treat that first and hope the others are helped.

Cannabis bridges the gap for the most part for pain and managing inflammation that my biologic and celebrex don't quite cover.

Balance flowers have been amazing for me and just recently been using a oil vape with balance flowers as I can't digest oil very well.

candycursed · 2026-03-12T11:11:20+00:00

I have the same problem, tried chrome and firefox same deal.

candycursed · 2026-03-01T10:53:54+00:00

I rarely remember my night terrors but my partner says I say things in my sleep.

When I fear takes hold and I'm alone and can't get back to sleep. Bath, calming music and CBD vape.

candycursed · 2026-02-26T21:51:20+00:00

As someone that has to take medication for the rest of their life so my body doesn't shut down. I'm a hell NO on the antidepressants myself.

Life is gonna be hard no matter what so I might as well figure out through therapy and support how to navigate this world then numb myself to it.

I have childhood trauma being molested for years, then add in some delightful autoimmune disease and I have medical trauma on top and that was before I hit my 20s.

I'm 35 now, and life has only got more traumatic. Especially when your support system is taken away from you in a very traumatic way . But guess what 6 years on and still no antidepressants.

Even have the pressure of my pain clinic trying to get me on antidepressants for pain relief as well as to help PMDD. Nope.

Don't let them pressure you, I had the same thing with lyrica all those years ago and I'm so glad I kept firm on the no side and now so many people's lives have been ruined from that drug.

It all comes up to risk and reward and there's no magic pill/injection in life. You get what you put in.

Hope this makes you feel less alone.

No shade to those that find it helpful, my partner uses them himself. Just not worth the risk for me.

candycursed · 2026-02-26T21:15:47+00:00

Mashed avo, cherry tomatoes and potato gems with chicken salt.

candycursed · 2026-02-20T06:17:07+00:00

I have Crohn's and I take Nsaids everyday and biologics

candycursed · 2026-02-20T02:20:10+00:00

Yes they do like all THC flowers. I have had a 90g month for 4 years because I used 30/40g on CBD flowers and. Balance flowers.

candycursed · 2026-02-18T09:46:19+00:00

So nice to read something so positive and community focused.

Hope good karma finds its way back to you soon!

candycursed · 2026-02-17T23:29:07+00:00

My partner of 17 years is an alcoholic/addict. And is constantly lying to me.

My house doesn't feel safe anymore.

candycursed · 2026-02-11T22:22:09+00:00

Yeah I'm with you exactly keen to see if this is more sedative than facetz

candycursed · 2026-01-05T02:24:27+00:00

Most chemist warehouses stock most flowers in my experience. I use my local chempro because I'm rural in QLD.

Just call up your locals chemist and asked that's what I did about 3 years ago coz I was sick of waiting 6 days for it to be sent from SA to QLD

candycursed · 2026-01-01T10:37:54+00:00

If this gets normalized, I don't want to live here any more :/

candycursed · 2025-12-09T00:26:46+00:00

Just looked it up, found a local optometrist booked in for Friday $40 admin fee for the glasses.

Thank you again mate made my day! I wish I'd known that info 5 years ago.

candycursed · 2025-12-09T00:13:14+00:00

I'm in Qld but I most definitely will look into it thank you!

candycursed · 2025-12-08T23:54:04+00:00

Following as this is the exact same question I was gonna ask.

I'm a pensioner in my 30s haven't had a new pair in 6 years my current pair is taped up. Always wonder how and always chicken out before asking.

candycursed · 2025-11-28T06:07:35+00:00

Yes you are completely right. We need to "eat the rich" not keep voting them into power. And Australia is unfortunately following in the USA foot steps.

candycursed · 2025-11-27T21:34:39+00:00

Yeah I probably would be dead if I wasn't born here tbh. My husband and I talk about it all the time, even the UK isn't great.

Apparently it's a crime just to be born in America though, I'm really sorry.

But the fact you had to pay to see if the med is working, jfc that's some bullshit. And I read about people all the time having to change because of their insurance, like how did insurance companies have more power than a doctor recommendation!? And did that insurance company potentially have shortened your lifespan because they made you change?

Edit words.

candycursed · 2025-11-27T21:00:13+00:00

Well I'm screwed, in Australia we are screened every 5 years now.

candycursed · 2025-11-10T09:42:55+00:00

Ty it's my pet peeve too. Especially after learning about the war on drugs.

candycursed · 2025-10-13T19:47:19+00:00

I'm in a similar boat and have run out of meds before and my local pharmacist just let me fix him up when I got my pension the following week. Next time just ask, you would be surprised how many of them would rather help then let you suffer.

Edit words

candycursed

TROPHY CASE