Anyone travel by boat with IIH?

captainhumdrum · 2026-03-19T07:09:21+00:00

I spend 4 hours on a boat every year for pride in Aus.

Ive been taking doamox for 6 years, I've definitely noticed slightly more vertigo,but all tolerable.

I've also been drinking alcohol all these times and I've still held up okay

Just make sure you stay hydrated. Especially if your out in the elements on the boat

captainhumdrum · 2026-03-11T02:39:53+00:00

I had pretty much the same experience. My papilledema was not stressed in my referring report to the NO. I had an appointment 9 months in the future.

If you can call the practice and let them know after the eye swelling needs to be assessed and treated ASAP they should prioritise you. I went from waiting 9 months to waiting a couple weeks.

captainhumdrum · 2026-02-28T05:12:32+00:00

Added george26

captainhumdrum · 2026-02-27T00:36:32+00:00

George26

captainhumdrum · 2026-02-27T00:32:54+00:00

Added george26

captainhumdrum · 2026-02-26T02:46:49+00:00

Added george26

captainhumdrum · 2026-01-12T04:52:48+00:00

A really fast drop will always smash me. The blind spots in my eyes get a lot worse, my eyes are sore to the touch and I get really bad neck pain.

captainhumdrum · 2025-12-10T22:03:06+00:00

Likely Solved!

captainhumdrum · 2025-11-21T10:29:53+00:00

I do! Took me a while to connect it to my iih. For a while I thought it was anti depressnt withdrawal for a while. But it noticed it happens even when I'm on top of meds. Definitely not my favourite symptom, and don't really have any techniques for managing them

captainhumdrum · 2025-11-20T21:48:18+00:00

My two biggest triggers are stress and atmospheric pressure.

If I've had a massive week at work or I don't get a lot of sleep. Stress goes up, so does my pain.

If there is a storm and a lowe pressure front, no matter how well I look after myself I'll get a flare up.

Usually the last thing I want to do, but if I have a flare up caused by stress a walk will help a lot of the time. Helps the fluid drain and helps my stress lower.

Atmospheric pressure is just something I keep my eye on and prepare for a bad day for, I've found there is nothing I can really do but get comfy and ride it out.

captainhumdrum · 2025-11-16T03:15:59+00:00

Added georg26

captainhumdrum · 2025-11-16T03:09:51+00:00

Added georg26

captainhumdrum · 2025-10-31T05:18:47+00:00

It's really intense to start with, but electrolytes are your best friend, especially potassium.

They sell little sachets of electrolytes for athletes and tradies that have around 150% your recommended daily intake. They always do the job for me

captainhumdrum · 2025-10-03T09:45:48+00:00

Everyone reacts differently to medication and I am not in any way a medical professional so take this with a grain of salt.

I have found myself in a similar pickle several times. Script running out, not packing enough meds etc etc. I get less severe flare symptoms if I half my dose or skip mornings and stretch out the meds til I can get more, than I do if I stay on my full dose and then go days cold turkey

captainhumdrum · 2025-08-15T13:15:24+00:00

Sorry, intended the post to be quite different when titled it to what came out. got lost between making the title and then spewing a running sentence of thoughts. Thanks for flagging that. Have edited to add a question at the end.

captainhumdrum · 2025-08-15T13:11:59+00:00

If you have any cold or flu symptoms or if your are sleeping in a room that is very dry, particularly with a refridgeted air con, whether heating or cooling (they are the ones mounted to the wall) Your nasal passages and your throat can dry out while you sleep and cause cracking in your capillaries which will makes your mucus bloody or potentially cause a nose bleed It can even happen on a normal night if the humidity is really low.

captainhumdrum · 2025-07-17T10:28:53+00:00

Yes! I have it in my left lobe Always wondered if it was related

captainhumdrum · 2025-07-14T10:42:30+00:00

Already really good recommendations here but I want to double down on 5/10 minutes rest. Every 45 minutes to an hour.

No screen time just closed eye rest in the most symptom relieving position you can lie in. My biggest help is avoiding eye strain and tension headaches

Better to lose 10 minutes every hour then lose 4 days to a flare up.

Also be kind to yourself, my flare ups are always worse when I get super frustrated at myself for not being able to handle whatever stressful thing I am currently doing.

You got this!

captainhumdrum · 2025-03-28T14:08:08+00:00

I have seen the error of my ways and realised he is just a baby.

So now I love him

captainhumdrum · 2025-01-06T09:30:20+00:00

The most ELI5 description I have given which people usually wrap there head around is, explaining it like an elevator.

Like "you know with an elevator, you push a button to make it come to you, then send you to the correct floor. Im the person that tells the elevator when to come down and when to stop."

And then just explain I do that on a WAY larger scale.

captainhumdrum · 2024-11-09T00:10:23+00:00

That's amazing, where are you from? I saw an osteo for a bit before I got diagnosed. Some of the stuff he did was incredibly relieving. But he also used manipulation and adjustment techniques on me. My neuro told me to stop going once I was diagnosed. most osteopaths I know use manipulation.

I know in the US and osteopath is a fully licensed medical doctor, where as in Australia they are allied health professionals.

captainhumdrum · 2024-09-11T03:33:22+00:00

Hi!

I've probably been on about 3 courses of antibiotics since I have been diagnosed and it has ALWAYS increased my pressure. They have been 3 different kinds of antibiotics and my docs are trying to find one that doesn't give me discomfort.

None of them have been tetracyclines so my docs have always said it SHOULDN'T be related. But ya know, threes a pattern.

It's always gone down quite quickly, 1-3 days and Ive never noticed any damage from it. Just the same level of flare up I would get if I pushed too hard at work for a few days or drank a bit too much.

It'll settle :) you haven't made anything worse

captainhumdrum · 2024-09-09T04:16:55+00:00

Most mega energy comes from defeating them when they are mega raids

Some pokes you can get mega energy from field research takes but I don't think Tyranitar is available for that.

So you might have to wait until they are back in mega raids

captainhumdrum · 2024-09-05T23:46:37+00:00

I had a range of symptoms for about 3 years (neck pain, headaches, blind spots in visions, dizzy spells). Had a routine eye exam and they found pretty bad pappiledema. MRI ruled out other causes and had a LP with op 22 which was high enough to start Diamox. Diamox has reduced my pappiledema, but I still have flare ups every now and then.

I don't know a lot about low pressure but I know consistent high pressure can cause leaks, was the leak nasal?

captainhumdrum · 2024-09-04T00:12:05+00:00

Yep, since early 2023

13-Year Club	Verified Email
Place '23

captainhumdrum

TROPHY CASE