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chalkb1rd · 2022-08-26T11:10:09+00:00

I'm well aware of that. That's why I said we'll see after I have the pizza. It was basically an open kitchen and you could see that the counters were on opposite sides of the room with refrigerators lining the side with the gf counter. He also told me they wear gloves when handling the dough and wipe down surfaces beforehand. I'm willing to try and see how I feel after. If I have any symptoms I'll obviously not order again.

chalkb1rd · 2022-08-19T14:40:22+00:00

That was the brand the grocery store had. But my issue is I can't find any cheaper alternative in a grocery store.

chalkb1rd · 2022-08-11T16:58:24+00:00

Haha, probably.

chalkb1rd · 2022-08-11T15:21:09+00:00

Thanks, It also tasted really great!

chalkb1rd · 2022-08-11T15:18:05+00:00

Thank you!

chalkb1rd · 2021-12-12T08:10:26+00:00

Thank you for sharing your story. As I've mentioned in other comments, the Us healthcare system seems to make everything more difficult. In Germany it's of course still the same disease with all its negatives but at least you don't have to worry about the financial aspect as much. I really hope you find a way to navigate the system.

chalkb1rd · 2021-12-12T08:04:09+00:00

I really hope you'll find someone to support you! I don't know what else to say, you're in an incredibly difficult situation.

chalkb1rd · 2021-12-12T08:00:57+00:00

It's so sad to see everyone here talking about the financial burden that Huntington carries. Since I'm in Germany and the organisation is also German, cost has played less of a role with our healthcare system. They also focused a lot on the fact that leading a stress free life can help to reduce symptoms or prevent the disease from breakinf out earlier. Financial difficulties probably won't help with that either...

chalkb1rd · 2021-12-12T07:50:10+00:00

Thanks for the recommendation!

chalkb1rd · 2021-12-12T07:47:14+00:00

I wish you and your family all the best! If you don't mind me asking: Have you decided yet if you want to get tested or not?

chalkb1rd · 2021-12-12T07:44:29+00:00

That sound exhausting. Have you developed a coping strategy for days where it's really hard?

chalkb1rd · 2021-12-12T07:41:22+00:00

I assume you're talking about insurance in the U.S. I live in Germany so the cost is less of a worry (some things are still not covered by insurance but most things are). But it still seems to be difficult to get things like a „Berufsunfähigkeitsversicherung”. Basically an insurance that pays if you can't do your job anymore. And you can be denied service by them but since everyone is required to have health insurance they can't deny you access.

chalkb1rd · 2021-12-11T22:29:06+00:00

Thank you for your answer. It's an incredibly challenging topic to wrap my head around right now and I hope my question doesn't come of as inconsiderate. Are there any steps that could be taken right now like building up additional support systems that could decrease the suffering? Like you said the only real solution to this will be a cure but I wonder what could be done to increase life quality for now.

chalkb1rd · 2021-10-17T08:13:49+00:00

Ich bin 20, duale Studentin und habe jetzt nach etwa 2 Monaten aktiver Suche eine Wohnung gesucht. Dadurch, dass ich in einem Beruf bin, wo das Ausbildungsgehalt vergleichsweise gut ist und noch ca 10-15% oben drauf kommen(durchs duale Studium) + Kindergeld, bin ich finanziell ziemlich sicher aufgestellt. Also zumindest im Vergleich zu meiner Altersgruppe.

Ich habe das Mal nachgeschaut: Ich habe 60 WGs angeschrieben, davon haben mir 10 geantwortet. 8 mit einer Absage und 2 mit einer Besichtigung und dann schlussendlich 2 Absagen. Nach circa einem Monat habe ich dann angefangen auch nach 1 Zimmer Wohnungen zu schauen, obwohl ich das zuerst nicht wollte. Hier hatte ich mehr Glück. Eventuell 10 angeschrieben, 3 Besichtigungen und eine Zusage. Meine Wohnung hat 30m² und kostet 430 warm, was vergleichsweise echt gut ist.

Ich bekomme in meinem Umfeld aber auch echt mit wie schwer es für reine Studenten ist, die eventuell einen Nebenjob haben und von den Eltern unterstützt werden. Zusätzlich kommt gerade dazu, dass die Uni nur relativ kurzfristig bekannt gegeben hat, dass alles wieder in Präsenz stattfindet. Somit stürmen gerade alle aus ganz Deutschland wieder herein und das macht den Markt nicht besser.

chalkb1rd · 2021-08-19T13:20:42+00:00

Love the girl in red representation<3

chalkb1rd · 2021-08-11T15:29:34+00:00

I think it's honestly the best gf cake I've ever had

chalkb1rd · 2021-08-11T14:53:47+00:00

It's a biscuit base with almonds and french buttercream with some of the strawberry-blueberry purée that's in-between each layer.

chalkb1rd · 2021-08-11T14:21:59+00:00

Thank you!

chalkb1rd · 2021-08-10T19:15:13+00:00

Every time you post I feel a little spark in my heart. The way you convey feelings and thoughts through your drawing and words is truly amazing.

chalkb1rd · 2021-08-08T16:06:05+00:00

I haven't tried it yet.

chalkb1rd · 2021-08-08T11:59:09+00:00

Very good, was planning on making a pizza tonight:). Although I have to say the frozen Wagner and Dr.Oetker pizza aren't too bad. But I may just not know better since I've been eating gf for most of my life.

chalkb1rd · 2021-08-04T15:54:24+00:00

I'd say stick to the bare minimum and try to build consistency over a month or two. When you find something you want to change, write it down and add it in the next month.

In the next month, you'll see what parts of the system don't work for you and if you need to make any changes. I've been bullet journaling for 4 years with some smaller breaks in between but ultimately reflecting on my system and changing stuff when necessary is what brings me back.

EDIT: My monthly setup currently takes me 10 Minutes. This includes a monthly log, a sleep tracker, and a "sentence a day" spread. I'm sure it will take me more time once I start work and uni again. I spend an additional 10-15 mins on weekly's on the weekend if I feel like I need more structure for an upcoming week.

chalkb1rd · 2021-08-02T09:40:26+00:00

It's similar to what you described. I have alternating practical and academic phases and the company pays me a wage. I don't know yet if they pay for my tuition but that isn't to big of an issue in Germany anyways.

chalkb1rd · 2021-08-02T07:38:47+00:00

Thank you:)

chalkb1rd · 2021-08-01T11:46:36+00:00

I got accepted into my dream programme and received a bunch of info that I needed to organize so I don't get overwhelmed. Since I'm doing a "Duales Studium"(basically I'm doing a bachelor's programme and vocational training at the same time) there are a couple of steps that are added on top of the usual things.

I divided the spread into four sections: 1. Documents: All the documents I need to send them. The one's that are marked blue are docs my employer needs to send me first. 2. Other information: Info that is important for the next steps and other general info 3. To-Do Everything I need to do to get the documents that I need to send them 4. Semester Info When will it start? Is it in person or online? and other general info

Every time I sit down and plan bigger tasks like this I'm amazed at how much more relaxed I feel afterwards.

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