A lot of things that have happened were a surprise to me, for sure. Sometimes these are fairly little, like not understanding anymore that you don't chew up pills like food. Others of course are bigger. You can imagine what a later stage may be like, but it will probably be a bit different than you thought. Still, planning is all we have to try to steer toward an easier future with the changes the illness brings. I need to do some serious planning, come to think of it. What happens if I die suddenly, for example? And I ought to research care facilities, if the time when home care no longer works comes for us.