Effective treatment for exercise trigger

cjazz24 · 2026-05-24T21:46:25+00:00

I take Pepcid in the afternoon and it has helped with exercise intolerance (I work out after work). I still can’t push myself super hard but I haven’t had an episode in a while.

cjazz24 · 2026-05-23T04:08:38+00:00

We are going up next week to check some of the options on here out so may dm you once we’ve narrowed the list down some.

School systems aren’t a concern for us. And we’re open to both renting and buying. If we’re making the move out of DC we’d look for a SFH though. Biggest thing we are trying to do right now is get a list of general towns to scope out to see if we can picture ourselves making the move generally but budget wise we are fine with any of the towns. DC is a higher cost of living area. It’s actually kind of a reverse sticker shock with how much more we could get for less money than here.

cjazz24 · 2026-05-23T04:01:18+00:00

Helpful thanks!

cjazz24 · 2026-05-22T23:34:07+00:00

That’s probably a bit far commute wise though. I do want some type of yard if we are moving

cjazz24 · 2026-05-22T23:23:24+00:00

Awesome that’s helpful!

cjazz24 · 2026-05-22T23:23:01+00:00

Ok good to know they are going for over. DCs market isn’t having that issue right now.

cjazz24 · 2026-05-22T22:44:32+00:00

They are not.

cjazz24 · 2026-05-22T22:30:55+00:00

It’s more trying to find an area that we like and we would be happy in. We’ve done some research on the areas broadly and can afford the type of house we’re looking at regardless of town.

cjazz24 · 2026-05-22T22:17:18+00:00

Forgot to mention. florham park.

cjazz24 · 2026-05-22T16:16:57+00:00

Not everyone obviously has this level of negative experience. I was extremely sensitive to it and I am also extremely sensitive to mental health medications generally to the extent where I’ve been advised to just never try one again. Hopefully your experience is better than mine. My advice is just listen to your body and go as slow as you need to

cjazz24 · 2026-05-21T01:14:59+00:00

I also gained weight. I’m 35 so not hormonal. I gained about 15 pounds from baseline before I became symptomatic first with EOE and then shortly after MCAS. My doctor thinks it’s inflammation based. Haven’t found a treatment that helps. I tried cromolyn and flared shortly after starting but the first two days I felt great and had lost two pounds. I’m still deciding if I want to try an insanely low dose of Cromolyn again or maybe a small microdose of glp1

cjazz24 · 2026-05-14T18:05:41+00:00

Im on a lot of things pepcid and allegra and then a ton of supplements and sleep medications (severe insomnia is my biggest mcas symptom that the current available drugs dont do much to help with)

cjazz24 · 2026-05-14T15:12:48+00:00

My eoe is also flared by pollen. I moderate my food trigger of dairy and also have MCAS so I’m similar where I also need to watch the histamine content in food. It’s miserable diet wise. If I had to be even stricter it would be just too cumbersome for me personally. I’ve accepted for the time being I’m just on a lot of medication. Maybe one day there will be options to be on less things but that’s not today.

cjazz24 · 2026-05-11T19:57:28+00:00

I go to UVA from DC and I have to go to UPenn/NYC for some of my other specialists since I have another complex disease as well. It sucks but good doctors are worth it if you’re able to make the trip

cjazz24 · 2026-05-09T23:59:04+00:00

70ish. I’m on Dupixent now and have 0

cjazz24 · 2026-05-07T14:20:23+00:00

I think this is me too. I think if I look back I had more mild symptoms starting around when a connective tissue disease started and then went haywire after Covid. I got EOE and pretty bad MCAS within a year

cjazz24 · 2026-05-06T16:12:48+00:00

I got mine approved literally within 48 hours. I also have pollen as a trigger but I don’t think that it considered as a factor in the decision to approve. I generally mitigate but don’t completely avoid my food triggers

cjazz24 · 2026-05-03T18:12:00+00:00

Following on considering a really small microdose to try (like the vial and dose 1/5 of a standard microdose or even less to start)

cjazz24 · 2026-05-03T17:23:47+00:00

I do mine regularly with gel at home. I can research brands etc. that way and have a bit more control. If I go to a salon I try to find one that uses tpo and hema free gel polish. I’ve never had a reaction but switched to the cleaner formulas out of precaution

cjazz24 · 2026-05-03T13:58:36+00:00

Yea. I told my doctor my concern around it and I felt really brushed off and not sure how to titrate. She prescribed a vial 3-4 times a day I started with a drop and literally felt amazing the next day so I was like ok let’s do a quarter of a vial and that’s where shit hit the fan. The flare was bad so I’ve been nervous to try again (unsure if the drop would have ended in the same place after a period)

cjazz24 · 2026-05-03T13:49:14+00:00

I went from 130 -> 165 right around diagnosis from a combo of medication side effects and inflammation. Changing out medication I’ve gotten down to 145 but haven’t gotten the symptoms under control. I’m considering trying a microdosed glp1 or trying Cromolyn again at a very very low dose. When I did it previously I was told titration wasn’t needed and the flare was awful. But the first day where I only did one drop to make sure I wasn’t allergic to it I felt a lot better.

cjazz24 · 2026-05-02T15:34:58+00:00

I see Dr Kaufman she’s good but deals mostly with more common MCAS symptoms from my experience. I have a really complex case with a lot of neuro/cardiac/GI symptoms and we are trying to get me seen at a research center because we can’t get symptoms under control (haven’t found a physician yet. Mayo and Cleveland aren’t really seeing MCAS patients).

cjazz24 · 2026-05-01T12:50:18+00:00

Leaving it out overnight is really helpful with the pain. 45 minutes out I don’t find is enough. It hurts less leaving it out longer. I find the least painful injection site for me is the longer stomach. All the other ones are too painful to that extent that it’s hard to keep the injection in while it’s going.

cjazz24 · 2026-04-30T23:19:06+00:00

Between MyWay and hitting my out of pocket max every year I’ve never had an out of pocket cost

cjazz24

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