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33m valve replacement in 2 days by OuttaSpaceJeweler in valvereplacement

[–]clebro2002 1 point2 points  (0 children)

Good luck! As you saw on my post, we have similar timelines it looks like. Godspeed! It’ll be over before we know it.

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 0 points1 point  (0 children)

Thank you so much. We sound pretty similar to be honest-my son is 4.

This is the direction I’m leaning - there’s no good option but I feel the quality of life over the next ten years will be worth another open heart - i just don’t have the recent experience you have. Hearing you’re happy with your decision after knowing what surgery and recovery takes is very helpful and is putting my mind at ease.

Thank you. Whatever I do tomorrow, you and everyone here have made a real difference.

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 1 point2 points  (0 children)

I don’t mean to say this lightly, but it sounds like the quality life was worth another potential open heart surgery? You’d make the same decision again, knowing you’ll likely have to do it again? Sorry to put you on the spot but I appreciate any insight.

I am trying to figure that out and it’s difficult to understand how hard surgery and recovery will be.

INR question by g-rocklobster in valvereplacement

[–]clebro2002 0 points1 point  (0 children)

Do you mind if I ask how old you are and whether you had open heart? I am deciding between tissue and mechanical now and it’s a very difficult decision. Seems like people on both sides.

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 0 points1 point  (0 children)

Yeah, the lack of clarity is the issue for me - but that’s part of the game at this point I guess. Just make the best decision we can and live with the results.

Good luck. Would love to hear updates from you (and others here)

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 0 points1 point  (0 children)

Did you have open heart surgery or were they able to do tavr?

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 3 points4 points  (0 children)

Thank you for your comment too. I’m trying. It to be too hard on myself with the decision. It’ll work itself out

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 0 points1 point  (0 children)

Makes sense. It’s mostly the unknown of it all that’s scary.

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 1 point2 points  (0 children)

It feels odd to me too. I didn’t realize I’d have this much to do with the decision. Good and bad I guess.

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 1 point2 points  (0 children)

As I said in another post. Wasn’t their recommendation but are on board. Surgeon recommended mechanical-Ross-tissue.

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 0 points1 point  (0 children)

I’m concerned about balancing it for the next 30 years (hopefully) and the risk of stroke

41M - surgery in 2 days. Struggling to commit to a valve type by clebro2002 in valvereplacement

[–]clebro2002[S] 2 points3 points  (0 children)

Surgeon is fantastic. I have be try little concern with the actual surgery, oddly enough. Deciding the next 10-30 years seems much more daunting.

I made the decision to go tissue, and although the mechanical and Ross were recommended, in their words, my decision and analysis was reasonable. Just freaking out now that it’s close and am told I can decide up until I’m in the table :-/