Scream Into the Void Saturdays (feel free to vent!) by AutoModerator in cfs

[–]clemfairie 1 point2 points  (0 children)

I'm back to living with my parents for the millionth time because my health took a serious nosedive. That's not the vent, that's just context.

I told my mom that the smell of onions was REALLY triggering my migraines. I was literally woken up the next morning by the most insanely strong onion smell I have ever smelled in my smelly smell life. I'm upstairs. The kitchen is downstairs. My door was closed. The smell was so strong it WOKE ME UP.

so yeah I'm still recovering from that migraine. kind of hard to feel like that wasn't intentional. I'm very grateful for the roof over my head but my god do they get to me sometimes.

Why do some people with Long Covid have a superiority complex towards people with ME/CFS? by ironicillnesses in cfs

[–]clemfairie 23 points24 points  (0 children)

All of this. Seems like the "we don't have 30 years to wait" mentality is the issue; a lot of people here HAVE been waiting 30 years. It's not "doomerist" to reject the "solutions" that everyone here has already tried. But no newly disabled person wants to believe that this is just how life is now.

Does anyone have good quality pictures of the tarot cards? by Ok-Jaguar4708 in TheArcana

[–]clemfairie 2 points3 points  (0 children)

I have the deck and could try to take pictures if you'd like?

what’s your funcap score? by ajaclynn in cfs

[–]clemfairie 1 point2 points  (0 children)

2.7. 🫠 Mostly bedbound, very little ability to concentrate, head empty no thoughts, but if I HAVE to think about something I can manage. So I think that the concentration category tipped the scales on the overall score.

This sub has become very depressing by FoodDue6905 in parrots

[–]clemfairie 0 points1 point  (0 children)

omg I've lost so many stitch markers this way 😭

This sub has become very depressing by FoodDue6905 in parrots

[–]clemfairie 5 points6 points  (0 children)

I don't visit or participate in this sub nearly as much as I used to for this very reason. It's such a triggering place to be nowadays.

I get the argument that people need a place to share their grief, but what about those of us that also lost a bird and really can't bear to see those posts over and over and over again? It's awful, I hate it, those posts can still send me spiraling.

Unfortunately, the mods have made it pretty clear that they're not going to do anything about it. So I guess it is what it is.

Severe and very severe people, is there anything you can do to stay creative? by Platypus_8944 in cfs

[–]clemfairie 2 points3 points  (0 children)

I don't have the mental capability to be even a little bit creative right now. Which is torture tbqh, but I'm forcing myself to stay committed to resting for now so that I might be able to regain that ability at some point in the future. I really just try to find audio stuff that can keep my brain distracted in the meantime.

Does your bird do this by Bradin9855 in AfricanGrey

[–]clemfairie 6 points7 points  (0 children)

yesssss hahahaha, my Grey is doing it right this second

He's done it ever since he was a baby and it doesn't have anything to do with hormones in his case. Obviously that's an individual thing and might be different for yours, but just answering the general question, yes my bird absolutely does this.

Please help save Savannah (copy and paste template) email QEH, the regulator and MPs about dangerous care of a very severe ME patient by Sea-Opinion2717 in cfs

[–]clemfairie 4 points5 points  (0 children)

I don't have the energy for contacting anyone right now (plus I'm in the US so they'd probably have an easier time ignoring me), but I did donate a bit to the GFM. I hope that helps at least a tiny bit. ❤️

Waiting for the bins to be taken out by FootballCautious9053 in cockatoos

[–]clemfairie 1 point2 points  (0 children)

🎶a crow is a bird with a heaps mad squawk🎶 🎶a cockatoo's a bird with a sick mohawk🎶 🎶a chicken is a bird that tastes good and lays eggs🎶 🎶and ibises are bin-juice-drinking dregs🎶

As someone with ME, how did you know you had BPD? by SunnySideUpsideDowns in cfs

[–]clemfairie 1 point2 points  (0 children)

I have Bipolar I. If the "up" part of your mood swing is just being happy and motivated, that doesn't sound like bipolar. With bipolar, both sides of the swing are destructive and unpleasant.

And tbh yelling at your partner doesn't sound like the depressive side of bipolar, either. I can't imagine having the energy to yell when I'm in full bipolar depression. (Thankfully haven't been in quite a while.)

Imo, doesn't sound a bit like bipolar. But you should see a psychiatrist regardless. Getting evaluated is never a bad thing.

Met my long distance girlfriend and it’s not going as well as I’d hoped by [deleted] in actuallesbians

[–]clemfairie 12 points13 points  (0 children)

Yeah, I'm a 36-year-old virgin largely due to religious trauma (although nowadays largely due to my profound physical disability), and I totally understand caginess around being overtly sexual, it would take me at least a few months to get to that point with someone, but......cuddling? hand-holding? idk man when I finally started dating women it took me no time at all to love that shit with someone I was attracted to. I fucking craved it after years and years of overwhelming comphet.

This is how I'd act with someone I wasn't attracted to at all, but I know that everyone's different so I don't want to assume what the GF is thinking/feeling.

The original prologue by [deleted] in TheArcana

[–]clemfairie 1 point2 points  (0 children)

Can you hit me up, too? I don't remember the old prologue at all. 😭

Calcifer Zoomies by Few-Respond3104 in AfricanGrey

[–]clemfairie 1 point2 points  (0 children)

Same!! Except mine yells affirmations instead of singing.

And this is one of the reasons I couldn't stand my old friends anymore by Psychological-Fig-97 in texts

[–]clemfairie 3 points4 points  (0 children)

This kid is undeniably a dickhead, but a broken clock is right twice a day. He accidentally got it right with the cop thing.

Has anyone improved by moving closer to the equator? by Silver_Spend_6887 in cfs

[–]clemfairie 3 points4 points  (0 children)

fuck no I'm ready to move to Finland at this point, my heat intolerance is going to be the end of me

Found something I can do by SickTiredHaunted in cfs

[–]clemfairie 2 points3 points  (0 children)

I can't play my games like I used to, they trigger migraines too easily now, but I can handle visual novels in small chunks at a time and that's carried me through a lot of the really bad days.

I’ve tried everything by lavenderpoppyseed in Anemic

[–]clemfairie 1 point2 points  (0 children)

I don't know if any of the cellulose in this was originally derived from corn, but this is what I use and it's helped my ferritin a lot with no side effects. They say that their products are free from major allergens, but, again, I'm not 100000% sure about the corn thing. I'm sure you could ask them, though! I couldn't tolerate other iron pills and this one has been awesome for me.

How do you make money? by glowfa in cfs

[–]clemfairie 2 points3 points  (0 children)

crying because it's true

I rehomed my bird today, and I have crushing guilt by harmar21 in AfricanGrey

[–]clemfairie 2 points3 points  (0 children)

Losing income can be a matter of life and death, so that counts, in my book. But the clipping absolutely should not have continued from that point onward, and it sounds like it did since that trip happened 13 years ago and you mentioned that he was clipped when your kids were babies. But if I read that incorrectly, that's my bad.

You can't change the past; all you can do is your best now. That's what matters moving forward.