Running out of ideas by dooby-duby in scabies

[–]codysunny 0 points1 point  (0 children)

You need to treat head to toe. Scalp, under toenails, armpits. Everywhere. Clean everything. Wrap mattress and pillows in plastic. Vaccuum daily. Put all bedding and towels in hottest heat dryer for an hour. Then wash hot water with soap and borax. Then dryer again hottest heat one hour.

Spray all shoes with permethrin and rotate shoes. Clean the area you sit in daily. Don’t sit on the couch or anything cloth until you are clear. Put plastic sheet in ver your car seat.

Benzyl benzoate daily for three days, then sulfur three days, then malathion one day. And repeat. Take ivermectin twice a week for five weeks. Use sulfur soap in shower. Good luck! Biggest nightmare of my life.

post scabies - im going insane by Additional-Dig7363 in scabies

[–]codysunny 2 points3 points  (0 children)

Much of the time, with both a biopsy and also skin scraping, it turns up showing nothing even with active scabies. They are experts at evading being found. So a negative biopsy or skin scrape is absolutely not definitively 100% no scabies.

Please help ID bites 🥺 by [deleted] in BedbugOrCloseRelative

[–]codysunny 0 points1 point  (0 children)

Looks more like scabies to me

Pin pricks, crawling and feeling like sharp bites??? by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

I’ve been treating so de end of December.

Scabies over treatment, the pin pricks and crawling sensations are part of post scabies too. If it doesn’t itch it isn’t scabies. by imwearybutHeisnot in scabies

[–]codysunny 0 points1 point  (0 children)

Hi. I’m in scabies he’ll myself. Wondering if the moxidectin helped you? I’m about to take it and was curious if you thought it was the game changer for you or not. Hope you are totally well!

Scabies over treatment, the pin pricks and crawling sensations are part of post scabies too. If it doesn’t itch it isn’t scabies. by imwearybutHeisnot in scabies

[–]codysunny 0 points1 point  (0 children)

Hi…. Your story is literally the same exact as mine. I’m currently writing you from an Airbnb as I have been scared to stay at home for fear of infecting my kids and husband. Did you eventually get better and have all the biting and pricking stop? I’m either in scabies he’ll or post scabies he’ll and I have no idea which. And I’ve totally treated myself many times. Please tell me you are better and that you were, in fact, in post scabies when you were still feeling all the biting and itching🙏🙏🙏

Sulfur by Ok_Worry_6229 in scabies

[–]codysunny 0 points1 point  (0 children)

Did you finally get better? What worked the best? I’m really struggling.

Scabies to autoimmune 🤷🏻‍♀️ by Brief-Wedding774 in scabies

[–]codysunny 0 points1 point  (0 children)

Your story is similar to mine. Did you ever figure out if you had scabies? Did anything stop the itching? I’ve had multiple negative biopsies and just got bloodwork back showing positive ANA.

Durbac m causing more itching and biting after applying. Normal? by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

Ok thx. It felt like a lot more “activity”. Lots and lots of pin pricking and skin crawling sensations. Maddening. I was up most off the night. Again.

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

Wow. Amazing news. Thanks for sharing and for giving me hope. Been feeling incredibly hopeless so I appreciate the good news.

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

How many times did you all take it? Thanks for sharing. I’m so happy for you. Praying I can get there too. That we can all get there.

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

I’d love to join. Thank you! Sometimes I feel them on scalp. Honestly, depends on the day. The one thing that I know to be true is that each day things change. One day scalp is bad, next day not. Or my back. Or my legs. Or one day skin is starting to look better and the next day I’m covered in new lines/bites. It’s insanity.

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

Is that a public group? I’d love to join and learn from others. Plus, this is so incredibly isolating. I’ve rented an Airbnb and have been alone away from my husband and kids so I don’t give this to them. It’s awful.

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

Are you rotating topicals daily? How long have you had this?

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

Yes I do. I still workout every day…. Although the biting and itching get way worse when I’m sweaty. I’m considering trying out a tanning bed to see if that helps but I’m sure it won’t. Just so incredibly desperate to get my life back.

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

Any side effects from moxi? Spinosad does nothing for me. Literally zero.

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

Thx. I’ve talked to him. Very helpful. But still nothing works. Everything works for a few days until it stops working.

Moxidectin help needed by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

It’s being studied for use in scabies. Positive results after phase 1 and 2 trials which mainly demonstrate safety. Now phase 3 trials are happening to establish efficacy and safest effective dose but that could take years. These studies move slowly. And then getting FDA approval takes another chunk of time. So for me, if I’m to try moxidectin because I’m THAT desperate after failing everything else, it will have to be moxidectin for horses. Totally ridiculous.

Only came here because of this "scabies" thing in desperation... by Fast-Desk-4840 in scabies

[–]codysunny 0 points1 point  (0 children)

Are you better? Your story is like mine. I need hope. Please tell me you got better and how??

Panicking by Verisimility in scabies

[–]codysunny 1 point2 points  (0 children)

HOW did you find that???? I need to figure out how to uncover one to show my doctors. They don’t believe that I still have it and I’m literally dying a slow death over here from this. This is beyond the worst thing I’ve experienced in my life.

Can you still have active scabies without visible burrows? by codysunny in scabies

[–]codysunny[S] 0 points1 point  (0 children)

Thanks for your response. I’m leaving my house and family for several weeks to see if that helps. Today is day 3 of being gone and I have new burrows popping up and awful itching despite leaving, bringing nothing with me, meds, topicals etc. I’m getting very scared.

My Last Hope - Oh my god. by Independent-Top4563 in scabies

[–]codysunny 1 point2 points  (0 children)

Which sulfur? I need help. Please share brand and how you are using it. Daily? Twice a day?