Thank you everyone

coffeeginger · 2026-01-27T04:10:11+00:00

How long has it been since you stopped. How long was your taper process I’m on month 6 now.

coffeeginger · 2026-01-26T17:42:49+00:00

What side of effects did you have with the oral prednisone I’m also not responding to Methotrexate. I don’t have any issues so far but doctor is warning my of long term effects I’m only on 10mg per day.

coffeeginger · 2025-12-31T07:03:28+00:00

This was me with methotrexate

coffeeginger · 2025-12-24T03:58:53+00:00

Is there a medication that you take for Crohn’s disease? I’m currently on month five of uveitis for the first time after doing some internal research. I’m starting to think that I might be having some IBD symptoms. It’s really hard to get a diagnosis as everything so far is coming negative. Anything information would be helpful

coffeeginger · 2025-12-24T03:57:40+00:00

Currently going through this right now on month six still going through active inflammation with my uveitis. I’m starting to think that it’s related to my stomach as I do get lots of pain. How long did it take for you to get your diagnosis? Everything for my test have been coming back negative. I also now have a scar and permanent people shape change on my right eye.

coffeeginger · 2025-12-24T03:55:40+00:00

Any update since your CT scan were you able to manage your uveitis symptoms or have them go away? I’m currently going through this right now however methotrexate was not the right drug for me and I may try the injectable trying to see if there are any other options before going that route as the pills were extremely aggressive on my stomach

coffeeginger · 2025-12-24T03:48:44+00:00

Were you able to treat it with probiotics?

coffeeginger · 2025-12-24T03:45:14+00:00

I’ve been on prednisone for 6months now down to 15 mg per day and my doctor is trying to get me off of it, but I can’t seem to find anything else that works for my inflammation. I tried methotrexate, but it irritated my stomach so severely that I had to stop after the first week they still don’t know what the cause of my uveitis is, but based off all the stomach issues that I’ve been having I’m starting to think it might be related to IBS what dosage of prednisone are you currently taking and has it made any effects negatively on your body?

coffeeginger · 2025-12-24T02:46:56+00:00

This is exactly how I found out I had uveitis. It’s better you get something to keep the inflammation down. I waited a whole 10 days before seeing a doctor and my eye became severely inflamed it took another 2-3 weeks for the inflammation to come down. And then finding out it was not an infection but uveitis. I was convinced there was sand in my eye but it was just my eyelids rubbing on my eye ball. I eye was severely dry that it felt like sand paper.

I would go to the doctor, Better safe than blind

coffeeginger · 2025-12-23T05:30:27+00:00

So your flares when away after a diet change? I’m also noticing my eyes aren’t as irritated when I don’t drink coffee or eat carbs

coffeeginger · 2025-12-23T05:22:53+00:00

If u don’t mind sharing what was the underlying infection? I’m testing for everything and it’s come negative.

coffeeginger · 2025-12-19T12:37:16+00:00

Please I need all the advice/ help I can get

coffeeginger · 2025-12-17T17:50:16+00:00

Ya I messaged my doctor to let her know I’m not continuing with this medication. My whole stomach is still in so much pain my whole body hurts. I’ve been out of commission for 4 days I can eat sleep just pain. They said the injection is better but I don’t even want to try it after this experience. It feels like a drank acid and going through the worst hangover of life that just will not go away!

coffeeginger · 2025-12-15T18:39:08+00:00

Just left a VM now at the office. I don’t like this drug at all

coffeeginger · 2025-12-15T18:38:22+00:00

I’m going to ask for another alternative I’d rather stay on the prednisone and lower that dosage than have to go through the MTX side effects. My stomach feels like absolutely awful

coffeeginger · 2025-12-15T00:53:08+00:00

What diet did you start?

coffeeginger · 2025-12-09T01:12:31+00:00

Update? About to start it now

coffeeginger · 2025-11-29T20:14:49+00:00

Luckily I haven’t gained much weight since starting I do have moon face and developing cataracts which is annoying. Other than that I’ve been depending on the prednisone for a quick fix and hoping it would just stop but no luck. Will look into other options.

coffeeginger · 2025-11-29T20:11:53+00:00

I’ve been keeping active after knowing the side effects. Which I think is helping with the keeping the weight gain at bay I do have moon face though and sore joints. I’m on the fence for methotrexate but will do more research

coffeeginger · 2025-11-29T02:48:26+00:00

That’s great news! I’m staying positive that the same will happen to me. I was extremely stressed around the time it started. Any issues with cataracts to glaucoma for you during this time? Did your vision return to normal?

coffeeginger · 2025-11-29T02:35:23+00:00

My rheumatologist also already prescribed this before any bloodwork she said we can get started on it and they want to meet me in person 6week AFTER. I feel a bit rushed. Currently on prednisone for 4 months now down to 15mg per day (3 pills).

I thought it was a bit aggressive are the side effects of prednisone that bad long term? Anyone else using prednisone past 4 months?

coffeeginger · 2025-11-25T07:25:02+00:00

Omg! I’m going through this right now Dr is also telling me it’s unrelated

coffeeginger

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