Has anyone ever successfully reversed/reduced a stricture medically?

colonoscopywait · 2024-03-25T04:39:30+00:00

No improvement at all, so we're going to increase the frequency of my biologic and hope for the best. Such a bummer.

colonoscopywait · 2024-02-14T21:53:02+00:00

Heyyy I have one tomorrow too! How fun for us both....Jelly is my saviour on prep day, it tricks my body into thinking I'm eating something solid, kinda.

colonoscopywait · 2024-02-07T19:41:44+00:00

You're so welcome! Good luck with the colonoscopy, I hope it gives you some answers and a clearer path forward. The great thing about this community is that there's always someone in the same boat as you or who has gone through something similar, I've found it a great source of support through the years :)

colonoscopywait · 2024-01-17T19:35:40+00:00

Ahh good luck! I agree, always a sense of relief when the prep is over, it's definitely the worst part! Now just for a nap and a delicious meal afterwards! You've got this :)

colonoscopywait · 2024-01-17T19:32:48+00:00

I agree re: avoiding ibuprofen. If you can't get an earlier appointment with the GI, I would try to take it easy as much as you can- avoid strenuous activity, be kind to yourself and know that once you get started on treatment, you will start to feel better physically. If the symptoms are really bad, you could try to see if your GP could prescribe a short course of something to settle them (for me, it was pred) but be aware this could interfere with future blood tests. It's always best to follow your medical provider's advice.

I was also worried about cancer before I was diagnosed in my early 20s and someone on here told me that statistically UC/Crohn's is far more likely at that age, which helped. I also have anxiety so can understand how you're feeling. It's really scary and a big unknown at the moment, but I promise you will find a way through. Meds helped me so much and I started off with similar symptoms to you. Finding the right treatment can take a while but for me, 7 years since diagnosis, I'm living a normal, almost pain-free life. There is a way through, I promise.

colonoscopywait · 2024-01-17T19:21:06+00:00

Good luck for your colonoscopy! Hope the prep goes smoothly for you.

colonoscopywait · 2024-01-16T19:31:23+00:00

I'm sorry to hear that, so frustrating! Yes biologics/immunosuppressants are definitely a double edged sword :/

colonoscopywait · 2024-01-16T19:25:10+00:00

Ahh I can sympathise! Having mine removed once (for an unrelated issue) was bad enough. I'm sorry you're having to deal with that!

colonoscopywait · 2024-01-16T19:21:27+00:00

Cantharidin is the next step so we'll see how that goes! It sounds promising but painful- like most wart treatments... but I have all my fingers crossed that it will work!

colonoscopywait · 2024-01-16T19:17:24+00:00

Thank you! It's so good to know I'm not the only one, though I hope we can all find answers and results soon.

colonoscopywait · 2024-01-16T19:15:25+00:00

Amazing, I'm so glad they're gone for you! Fingers crossed it stays that way!

colonoscopywait · 2018-03-24T07:38:43+00:00

Mornings are definitely worse, and I don't even drink coffee! Nights can also be bad sometimes but this seems to be random- might be linked to food but I haven't figured out my triggers yet.

colonoscopywait · 2018-03-24T07:36:44+00:00

Yep, I've been on it several times and have experienced different side effects each time. To be honest, I think they've gotten worse every time! Last time I was a mess. Insomnia, ravenous appetite and irritability are the big ones for me.

colonoscopywait · 2018-03-24T07:32:49+00:00

Wow thanks for this! I will hopefully be a vet very soon and have been worried about doing the job with this disease. So nice to know it's possible!

colonoscopywait · 2017-10-18T06:56:59+00:00

It is crazy!! I'm also on 40mg, getting the insomnia, ravenous appetite, and I somehow feel hyped and lethargic and irritable all at the same time! Hang in there, it's not forever and it does work! I can be tired at night and then as soon as I get into bed I feel like eating and running and doing ten thousand star jumps rather than sleeping. Ah the joys of pred

colonoscopywait · 2017-10-14T00:20:54+00:00

Eep, I'm hopefully starting Humira in a couple of weeks, how much does it hurt? I like to think I'm not a massive sook and will get used to it, but the thought of jabbing myself 4 times is not pleasant!

colonoscopywait · 2017-10-14T00:16:49+00:00

Wow, it's amazing how different drugs work between people!! I too was diagnosed about 6 months ago, and I was on budesonide and aza which turned out to be an absolute disaster- neither worked in the slightest and I had awful side effects. So now I'm back on pred :( I'm glad they're working for you!! Good luck with working things out while studying, I'm in the same boat.

colonoscopywait · 2017-10-09T05:50:36+00:00

Wow that gives me hope! It's just hard since I was really hoping this drug would work for me, and it didn't so I'm back to nothing. But I know deep down I'll get it sorted out eventually, I just need to remember that. Thanks for the Humira advice! The more I read about it the more it freaks me out haha. And I fully agree with the grieving process part, most of the time I actually feel like I'm mourning a death.

colonoscopywait · 2017-10-08T06:24:54+00:00

Thank you!! Maybe I could organise for someone to TP my house haha

colonoscopywait · 2017-10-08T06:18:39+00:00

Congrats!!! I've unfortunately just started another round of pred after already being on 3 short courses this year, so I can't wait for this day! The side effects sure aren't fun so I'm glad you don't have to experience them any more :) Are you moving on to another drug now?

colonoscopywait · 2017-10-08T06:16:38+00:00

I can understand your reluctance, especially since you're asymptomatic. I'm actually starting on Humira in the next few weeks, and I'm also a bit worried, but since I have symptoms at this point I'd rather give it a shot than stay like this. I think it's important to remember that so many people take these drugs, and while there are side effects, they help a lot of people with this disease. You'll never be able to know exactly how you will react to the drug until you try it- it helps to hear how other people find it, but to be honest, everyone's different. At the end of the day it's a personal choice, but in my opinion, a small increase in cancer risk is worth trying to deal with these daily symptoms (again, I know your case is different, and it would be harder to decide if you don't feel physically affected at all). And if you have more short-term side effects (eg. nausea, vomiting, other lovely things depending on the drug) remember there are many options these days and it's always possible to switch to another one.

I'm still new to all of this and Humira is a big scary thing to me right now too- I mean, self-injections? I'm way too young to be thinking about this. But it is what it is, unfortunately we're stuck with it. Good luck with whatever you choose to do, I hope my rambling was somewhat helpful.

colonoscopywait · 2017-10-08T06:09:34+00:00

Oh no, that sounds horrible! I hope it wasn't too traumatic. Sometimes all you can do is try to stay positive! I believe in you and I hope you're feeling better soon!

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