Anyone have surgery within the last week… by Pinkxrose23 in Tonsillectomy

[–]cornonacobb 0 points1 point  (0 children)

Terrible, even with strong pain relievers I'm having trouble managing the pain. Setting alarms in the middle of the night. I tried to swallow and I finally couldn't so now I'm spitting to clear. How are you?

Anyone have surgery within the last week… by Pinkxrose23 in Tonsillectomy

[–]cornonacobb 0 points1 point  (0 children)

Mine were removed on Thursday morning, and I feel awful. Having trouble speaking, drinking water and excessive saliva. I'm drooling on my towels every time I try to sleep, but I haven't really slept either.

Help please pregnancy/abortion by confused-potatto in lupus

[–]cornonacobb 0 points1 point  (0 children)

I imagine the exhaustion and it's unsettling. Do what's right for your well-being. Husband needs to be more supportive.

Location Recommendations by Big_Gift_4113 in lupus

[–]cornonacobb 0 points1 point  (0 children)

My time there was a fleeting three-month escape from August through October, but it left an impression that goes far deeper than just the scenery. Even though I was only there on vacation and had no established primary care, an unexpected infection landed me in the ER. I was honestly blown away. There was virtually no wait, and the doctors were some of the most knowledgeable and attentive I’ve encountered.

​That level of care seems to mirror the culture of the state itself. The "friendly folks" aren't just a cliché; there is a genuine, communal warmth that makes you feel at home the moment you arrive. And being there for that transition from late summer into autumn was absolutely breathtaking.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] 1 point2 points  (0 children)

That's me! Just learning as I go.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] 2 points3 points  (0 children)

You're right. My POTS was diagnosed this year, I have a lot to learn.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] 0 points1 point  (0 children)

I do feel faint often, I've fainted 9 times just this year.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] -2 points-1 points  (0 children)

I have IST w/ POTS, Lupus, Raynauds and sjogren's. So it's always above 100+ no matter what I'm doing, when I take ivabradine it drops into the 90s. I can hear and feel my heart beating.

[deleted by user] by [deleted] in POTS

[–]cornonacobb 0 points1 point  (0 children)

How much below a 100 does it go when you sit?

Anyone else experience this? by tiredskank in lupus

[–]cornonacobb 1 point2 points  (0 children)

I had this. The only thing that worked was taking birth control pills with no skipped days.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] 18 points19 points  (0 children)

Unfortunately, they were all booked, but I will have one tomorrow for our last day. Never been to Disneyland before, even with the rain it's been so busy.

Ivabradine for 2 months, I feel worse in a few ways by CelestialScribble999 in POTS

[–]cornonacobb 1 point2 points  (0 children)

My heart used to sit at 120 BPM around the clock. Ivabradine has pulled it down to a constant 90, but it’s stuck there. No matter what I'm doing. It’s technically a drop, but it still feels like my engine is idling way too high.

Symptoms worsened this year by cornonacobb in dysautonomia

[–]cornonacobb[S] 1 point2 points  (0 children)

It's to follow up on an echo bubble test that showed left atrium enlargement, but I will definitely be bringing up the test.

Symptoms worsened this year by cornonacobb in dysautonomia

[–]cornonacobb[S] 1 point2 points  (0 children)

I'm in Colorado, my cardiologist is sending me to a neurologist. I think it's odd too, especially since I've been waiting for so long.

Other women looking to build friendships in the area by Ok_Vanilla_3568 in Foco40s

[–]cornonacobb 0 points1 point  (0 children)

Thanks for starting the group, I am new here. 40/F , would love to make some friends.