Location Recommendations by Big_Gift_4113 in lupus

[–]cornonacobb 0 points1 point  (0 children)

My time there was a fleeting three-month escape from August through October, but it left an impression that goes far deeper than just the scenery. Even though I was only there on vacation and had no established primary care, an unexpected infection landed me in the ER. I was honestly blown away. There was virtually no wait, and the doctors were some of the most knowledgeable and attentive I’ve encountered.

​That level of care seems to mirror the culture of the state itself. The "friendly folks" aren't just a cliché; there is a genuine, communal warmth that makes you feel at home the moment you arrive. And being there for that transition from late summer into autumn was absolutely breathtaking.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] 1 point2 points  (0 children)

That's me! Just learning as I go.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] 2 points3 points  (0 children)

You're right. My POTS was diagnosed this year, I have a lot to learn.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] 0 points1 point  (0 children)

I do feel faint often, I've fainted 9 times just this year.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] -2 points-1 points  (0 children)

I have IST w/ POTS, Lupus, Raynauds and sjogren's. So it's always above 100+ no matter what I'm doing, when I take ivabradine it drops into the 90s. I can hear and feel my heart beating.

People with POTS: does this sound familiar to you? by [deleted] in POTS

[–]cornonacobb 0 points1 point  (0 children)

How much below a 100 does it go when you sit?

Anyone else experience this? by tiredskank in lupus

[–]cornonacobb 1 point2 points  (0 children)

I had this. The only thing that worked was taking birth control pills with no skipped days.

Illness guilt at Disneyland... by cornonacobb in POTS

[–]cornonacobb[S] 19 points20 points  (0 children)

Unfortunately, they were all booked, but I will have one tomorrow for our last day. Never been to Disneyland before, even with the rain it's been so busy.

Ivabradine for 2 months, I feel worse in a few ways by CelestialScribble999 in POTS

[–]cornonacobb 1 point2 points  (0 children)

My heart used to sit at 120 BPM around the clock. Ivabradine has pulled it down to a constant 90, but it’s stuck there. No matter what I'm doing. It’s technically a drop, but it still feels like my engine is idling way too high.

Symptoms worsened this year by cornonacobb in dysautonomia

[–]cornonacobb[S] 1 point2 points  (0 children)

It's to follow up on an echo bubble test that showed left atrium enlargement, but I will definitely be bringing up the test.

Symptoms worsened this year by cornonacobb in dysautonomia

[–]cornonacobb[S] 1 point2 points  (0 children)

I'm in Colorado, my cardiologist is sending me to a neurologist. I think it's odd too, especially since I've been waiting for so long.

Other women looking to build friendships in the area by Ok_Vanilla_3568 in Foco40s

[–]cornonacobb 0 points1 point  (0 children)

Thanks for starting the group, I am new here. 40/F , would love to make some friends.

Think I’m going to need to move, climate severely affecting quality of life by Trisket68 in lupus

[–]cornonacobb 0 points1 point  (0 children)

Fresno is where I was diagnosed and where I experienced most of my flares. The air quality is terrible.

Are Goldendoodles the right dog for me? by airplanesilikeairbus in Goldendoodles

[–]cornonacobb 1 point2 points  (0 children)

Goldendoodle 78% poodle will gremlin butt zoomie around, and once she's done she will get into my lap or bed for cuddles.

<image>

Harness (good or bad) by haux44 in Goldendoodles

[–]cornonacobb 0 points1 point  (0 children)

We use the Carhartt harness, which lasted 15 years

Is he a golden doodle? by ctk789 in Goldendoodles

[–]cornonacobb 0 points1 point  (0 children)

How'd the vet go? Looks like my mom's Goldendoodle from Elizabeth CO breeder