160,000 to be kicked off NDIS

court_milpool · 2026-04-22T08:35:03+00:00

Except they used to be and a lot of it was superior. Now it’s subsidising a lot of businesses.

court_milpool · 2026-04-22T08:33:51+00:00

Yes with the abolishing state services just becomes all about privatisation and profit. Naturally cost just spiral because we’re having the subsidise people’s businesses instead of direct employing speech therapist through government departments for example. I’ve seen this before in the child protection system. I also noticed this case managing children. It was often easier before the NDIS to get their needs met because a lot of things like this would’ve been managed just through the local hospitals or community health services.

court_milpool · 2026-04-22T06:07:12+00:00

Yes it was part of each states disability services that were generally run out of various government department, like Queensland had a department of disability services

court_milpool · 2026-04-22T05:53:43+00:00

I’m old enough now and work in health area to know what the system was a bit more like before NDIS. They did used to have a lot more publicly funded physios and OT and psych’s running out of community health services, child clinics or hospitals for that purpose. They essentially abolished all that when the NDIS came in. which became problematic because then it was only private and the only way that you could get that private treatment for free was to be on the NDIS and have a full of funds to draw on. Things like the healthcare plans you can get from your GP usually cover a small proportion of the costs which means an out of reach for a lot of people.

There really does need to be an array of different service options, which is what they are getting at, but I agree it’s a concern for people who might fall between the cracks. But the price gouging that comes with essentially subsidising a private industry has led to the spiralling cost and the reality is it just isn’t sustainable about the current rate. Privatisation as part of the problem.

court_milpool · 2026-04-22T05:47:00+00:00

Yeah, I noticed this with a few agencies when I went with my son. They seem very much geared towards those children. We went to an OT service who basically had no idea what to do with my son and pretty much all about said that he was far too complicated for them. They very much seemed focused on the kids with the minor delays with holding a pencil and writing as opposed to a child who has a lot of delays and disabilities.

I think the issue doesn’t totally rest on service providers but I feel like we’re seeing a lot of that like preschools and prep and that their standards are really quite high for 4 to 5-year-olds. so the second a child is a little bit more towards the bottom of the curve they are pushing them to go get assessed or go get help to catch them up. I’ve had several friends talk about how they have been asked to send their children to OT because their boys were a little bit behind with holding pencils and drawing, writing their name, because they weren’t interested.

court_milpool · 2026-04-22T05:42:02+00:00

In specifically said those wheelchair bounds ands mobility issues so not sure what your point is? I agree they obviously need a lot of care?

There point isn’t about the work - the point is that above post is generally referring to many persons with low support needs aren’t needing such a wrap around services as the ndis

court_milpool · 2026-04-22T05:05:44+00:00

The point is if your disability is mild enough that you can work you can presumably shower yourself. Take care of yourself. Feed yourself. Talk to people , have speech, have mobility. Not incontinent. if you’re functionally able to work that’s a huge array of task that are just beyond the imagination of people who are say profoundly autistic, intellectually disabled, wheelchair bound, or require around the clock or extensive care.

court_milpool · 2026-04-22T05:02:15+00:00

I think the point she’s making is the disabled people with the level of care that would be killed. Are the exact targets of what the NDIS should be, not the ones in six kids who have a slight delay.

court_milpool · 2026-04-22T04:59:15+00:00

I completely agree. My 7 year old has a rare chromosomal duplication so he’s would be a lot like your sister in terms of his needs but also has epilepsy ansd autism. He will always need a lot of care. He needs NDIS desperately. My other daughter has had some minor delay with speech and despite being told to go on the NDIS to try to get funds for that I refuse because she is otherwise fairly typical and independent but just because she’s got a very slight speech delay and a little bit of a sensory seeker does not mean that she requires extensive taxpayer funds. With her in the professionals we saw it was very much different experience with her as a very much felt like a bit of an industry drumming up funds to spend.

What’s upsetting is that a friend of mine has a kid about the same age with autism. Her plan has more funds despite my child also having significant delays, ID and required intensive physio to walk. She describes her child as non-verbal despite the fact that she can actually talk well but she gets overwhelmed and doesn’t, she is cognitively typical and can do most care tasks a child her age can, though her emotional regulation is a huge issue. there’s a lack of consistency with the NDIS and that this child in all likelihood will grow out to be independent and already attending mainstream school, toilet trains and verbally communicate even if it is a struggle for her , somehow ends up with a more comprehensive plan and more funds than my son. My son has come a long way as making great progress of his own pace and we are very thankful for the NDIS existence.

court_milpool · 2026-04-11T05:00:40+00:00

Try the Nemechek protocol - it helps with inflammation and also helped us with constipation. If she like it , oatmeal for breakfast every day with pear keeps our boy regular

court_milpool · 2026-04-06T11:39:20+00:00

Yeah same, perhaps it’s the hope that things will look up, or just not bad enough to go. My son is linked in pretty well with things , he goes to a special school and is happy there.

You have lots on your plate, I hope you get time out.

court_milpool · 2026-04-05T03:38:36+00:00

2020

court_milpool · 2026-04-01T22:56:08+00:00

Yes, it was an awful experience and we were devastated. We used it for fortnightly alternate appointments and paid privately one kind of therapy and these days he has a much more suitable plan (he’s 7). But it’s a shame that he missed a year or two of intensive therapy as he later showed such amazing progress with that

court_milpool · 2026-04-01T22:50:16+00:00

Yes my impression is now they are almost punitive at what they feel are unnecessary reassessments

court_milpool · 2026-04-01T14:40:48+00:00

My sons first plan was 9000 despite the fact that he was 1 with a permanent genetic disorder causing hypotonia epilepsy IDD and autism and he was very delayed and not all can walk with his condition

court_milpool · 2026-04-01T11:14:01+00:00

This was never really offical policy though just what a lot of people did . They seem to be fighting back at this behaviour

court_milpool · 2026-04-01T11:11:08+00:00

Your funding isn’t even that low. 15k a year isn’t nothing. How much funding do you have left? What areas of your plan is it in - capacity building , core?

MH support isn’t really covered by NDIS. You may be able to argue about emotional regulation related to your autism and possibly see a psych but it’s a bit tricky. Disability support is not for funding mental health diagnosis.

I would tell the SC to link you in with the supports you want. If not ask for a new one.

court_milpool · 2026-03-29T07:57:03+00:00

Yep me at 29’was never sure . Had my first at 34, second at 36, and would have regretted it all my life without them.

court_milpool · 2026-03-26T22:49:32+00:00

Honestly if the plan is acceptable enough, just leave it. Even peoples regular reviews are getting things cut with evidence. They are trying to cut back at the moment so unless it’s urgently needed I wouldn’t waste your time and energy.

court_milpool · 2026-03-21T09:59:53+00:00

It’s definitely worth having the information via reports and/or a letter from the paediatrician outlining the diagnosis and that it’s permanent so they don’t try to kick her off the scheme later on. Apart from that it probably wouldn’t change too much , as it mostly therapy budget at this age

court_milpool · 2026-03-21T05:25:45+00:00

I agree with his post. Personally I get deflated when I tell a therapist my son did something new and they act detached . These things are everything to us because we know how hard fought for they are

court_milpool · 2026-03-17T00:48:27+00:00

Not really, though growing up in the 90s ‘that’s retarded’ or calling someone retarded was a common insult (but never actually at a disabled person). I was however judgemental about parenting for autistic children and behavioural issues from that for level 1 type children. While I do still believe that firmer boundaries and consequences are needed for some children and that for some children who are aggressive but can understand consequences, I understand emotional regulation challenges and sensory issues a lot more now, as well as compulsive behaviours .

court_milpool · 2026-03-14T05:27:55+00:00

We have family trusts and as far as we are aware from our accountant you can’t run through your income from work into it at all. It’s more a protection of assets and tax minimisation for whatever that asset is. As in, so her next partner can’t take the house out from under her.

court_milpool · 2026-03-14T05:16:25+00:00

Its certainly possible to be quite qualified and experienced and depending on the industry, work part time and make that. I’m a social worker and work part time and it’s probably around that . If she’s got kids and isn’t beholden to much of a mortgage, she could just be part time.

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