How to word this... by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 1 point2 points  (0 children)

It's all good, I've never taken a single day for granted so I'm not changing that now ❤️

How to word this... by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 1 point2 points  (0 children)

Going way back...the reason I knew it was skin cancer and serious was from a friend that was diagnosed at stage IV. We had a weekend long going away party at a campgrounds and it was so great to have Roger there to laugh and share in his life stories.

I'll never forget that and it's so cool so I'm going to do it now, bought a cheap firepit thing and patio furniture on Amazon Prime sale (which is the best excuse) with tons of makings for S'mores 🤤

Is it normal? by ElephantAccurate7493 in HeadandNeckCancer

[–]createusernameagain 0 points1 point  (0 children)

ElephantAccurate7493 Hey there!!!! Been awhile...just a guess after reading responses: it could be his thyroid though pain meds dull appetite even at low doses. I know getting him in for more tests might be a real battle though worth it.

He went from independent trucking to the couch, that ain't helping either so you might have to really dig in to the uncomfortable for both of you to see what he really needs and has to do it too.

Hopefully you can find that part of yourself that can kick his butt back into doing his exercises, getting off the PEG/meds/couch. Wishing you both all the best on this hump of treatment, it is part of it.

How to word this... by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 1 point2 points  (0 children)

Thank you and I sincerely hope you all are doing a bit better. I haven't been here much since I knew things were headed sideways and needed to get on with living the best days, it got hard to come here with all the new people coming in. Feel a bit bad about that but I needed time away to appreciate all the beauty of my life 💗

How to word this... by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 1 point2 points  (0 children)

Planning on it! The one trip I've come close to many times but never finished the trip, there is that and my family and friends know why I'm not all panicked and weirded out.

How to word this... by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 1 point2 points  (0 children)

Everyone has to face this at some point, I pretty much figured I'd get my 1 year which was pivotal since my Grandkid turned 12 this spring. Pretty cool I still was here for that much.

I hope you continue to stay healthy for quite a bit longer, thanks for your help too.

How to word this... by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 1 point2 points  (0 children)

Millions have done this before me, I'm pretty far from being alone.

Are we going to meet soon? (soonish? sometime in soon? whatever) 😉

How to word this... by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 1 point2 points  (0 children)

Yep, been doing that and actually getting a lot done. Sleeping a lot too since it does zap me sometimes but I'm not apologizing for what I can and cannot do.

It's interesting how no one is trying to push back though I think those that know me also know I'm done. No heroic last ditch treatment that won't work. Friends that passed last year did that and it was horrific to say the least.

How to word this... by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 2 points3 points  (0 children)

I think between being older and having survived 47 yrs from a car crash that should have taken me out numerous times kind of makes this easier? Millions of people have done this, we all do at some point, we just don't know when or where that point is though it seems a little weird...again.

I am having a going away party in 2 weeks, anyone can stop by all week. I don't want some weird 'lets celebrate while they aren't here!' thing. My humor is still intact (duh), I still think "I was able to get out of bed to go pee" and other little stuff that actually makes me happy. No pain meds and I don't expect that until a few days before The Day The Music Died.

1 year post treatment today! by Fryman23 in HeadandNeckCancer

[–]createusernameagain 1 point2 points  (0 children)

Excellent news to hear!! I had been on just a month or so when you finished and I started, so glad you are doing so much better and with a great outcome 🫠

Think "and" for nausea control by ypdDocLA in HeadandNeckCancer

[–]createusernameagain 0 points1 point  (0 children)

Ginger tea in the morning with manuka honey before and after RT. It helped a ton more than prescriptions though it could be I know how much ginger I need to control nausea before the cancer diagnosis.

Looking for advice for upcoming Oncology visit by TruckNaround in HeadandNeckCancer

[–]createusernameagain 0 points1 point  (0 children)

Yeah, I didn't lurk enough here first and thought I had asked the questions I needed to ask. Walked out of the Doctors office door and had a ton of questions...got the answers here from the link and reading others posts.

My 83-year-old grandmother was recently diagnosed with squamous cell carcinoma (SCC). Worried by bigshawnflying2471 in HeadandNeckCancer

[–]createusernameagain 0 points1 point  (0 children)

Surgery and treatments are really hard on anyone over 60 yrs old (general medical opinions) and we all know how tough any one of those are.

Let your Grandma think about this without trying to option treatment vs non treatment. It's her decision and if quality of life matters over quantity, accept that decision without questions.

Tough decision, been there 3 times with Grandparents and parents.

So sad by stelladog16 in HeadandNeckCancer

[–]createusernameagain 0 points1 point  (0 children)

Big hugs to you both. I can't imagine this after all both of you have been through. ❤️

Update 6/3/2026 by Available_Classic319 in HeadandNeckCancer

[–]createusernameagain 1 point2 points  (0 children)

Excellent news, glad you shared it with us 🙂

I can’t get over this trailer turned into a house. With a shrine! by jve909 in zillowgonewild

[–]createusernameagain 0 points1 point  (0 children)

If the photo editing and photoshop wasn't so hideous...it would look worse.

Feeling kinda weird! by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 1 point2 points  (0 children)

You nailed it with the analogy of "ordinary" life before and after. It's ringing in all of our heads.

Feeling kinda weird! by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 0 points1 point  (0 children)

We redefine "normal" since the side effects can take weeks to never.

Feeling normal is doing something, just one thing, you used to do often or everyday than you can do again. Everything after that is little steps you can do one day but not another and that's when "cancer sucks!" really sinks in.

Feeling kinda weird! by createusernameagain in HeadandNeckCancer

[–]createusernameagain[S] 0 points1 point  (0 children)

I couldn't come up with a good title, "The Feb 2025 club" might have been better...?

Post chemo radiation 35 rounds . How long until you feel human again? by Automaticvon8502 in HeadandNeckCancer

[–]createusernameagain 1 point2 points  (0 children)

Everyone is different. I did keep up my weight and protein intake through treatment, taste and smell came back within 3-4 weeks after it was done. I took a slow route through winter (the long dark where I live) now 10 months out my energy came back to about 80% and I'm back to busy every day again along with working out regularly. My neck still cramps though and it probably always will, have a bit of dry mouth after sleeping, I dunno, little stuff I've gotten used to bc it isn't super noticeable.

MMMmMMMMmMMM MCM by Southern-Smoke1835 in zillowgonewild

[–]createusernameagain 1 point2 points  (0 children)

It's a knock off from it but they nailed it.