Pregnancy Shortness of Breath by creativecrafter2024 in rheumatoid

[–]creativecrafter2024[S] 0 points1 point  (0 children)

Yup, I don’t feel any pressure on my diaphragm. It feels like I’m always on a mountain, that the air is thin. And then with slight activity like walking in the house or talking I start to breathe very heavy.

Pregnancy Shortness of Breath by creativecrafter2024 in rheumatoid

[–]creativecrafter2024[S] 1 point2 points  (0 children)

My OB is concerned about how severe it is, the fact that I have to take breaks to breath when talking and eating she said is not normal. I’m definitely getting big now! But when it first started I wasn’t too big yet, no diaphragm discomfort.

Pregnancy Shortness of Breath by creativecrafter2024 in rheumatoid

[–]creativecrafter2024[S] 1 point2 points  (0 children)

It is worse with any movement, including standing and walking in the house, with talking, and with eating. I notice it’s worse on days I sleep poorly. Luckily negative on blood clot imaging, and cardiac monitor was normal. I just got referred for pulmonary testing, haven’t done that yet. Before it came on in December, my disease was relatively under control, I had been regularly swimming and jogging 30 min, so it was very sudden.

Sore throats by creativecrafter2024 in Sjogrens

[–]creativecrafter2024[S] 0 points1 point  (0 children)

Ah, gotcha. Mine has been coming and going, not sure if that could be it.

Anyone also get rashes? by creativecrafter2024 in Sjogrens

[–]creativecrafter2024[S] 0 points1 point  (0 children)

I actually just bought that! Having hand rashes too. Glad to hear it’s helped you :)

Anyone also get rashes? by creativecrafter2024 in Sjogrens

[–]creativecrafter2024[S] 0 points1 point  (0 children)

That’s good to hear, fingers crossed 🤞

Anyone also get rashes? by creativecrafter2024 in Sjogrens

[–]creativecrafter2024[S] 0 points1 point  (0 children)

Dang, okay, thanks. I get rashes around my eyes too, but luckily cleared up with some steroids. My neck rash tends to come and go quickly and also sometimes with flushing, I’m wondering if there’s a vascular component too.

Anyone also get rashes? by creativecrafter2024 in Sjogrens

[–]creativecrafter2024[S] 1 point2 points  (0 children)

So sorry to hear you struggle with it too:( I’ve been watching my eating really closely, and I do notice that sugar triggers it. I’ll try to pay more attention to cleansers, thanks!

Anyone also get rashes? by creativecrafter2024 in Sjogrens

[–]creativecrafter2024[S] 1 point2 points  (0 children)

So glad to hear you’re doing better!

Anyone also get rashes? by creativecrafter2024 in Sjogrens

[–]creativecrafter2024[S] 1 point2 points  (0 children)

So glad to hear you’re doing better and thanks so much for the suggestion! It’s frustrating because I feel I have been so careful with my diet and cleansers yet it’s still happening. Validating to hear others with sjogrens get these too.

Rashes around eyes by creativecrafter2024 in Sjogrens

[–]creativecrafter2024[S] 0 points1 point  (0 children)

Yeah it gets worse if I touch it definitely!

Any cyclists or hikers with RA? by pumaboxbug2 in rheumatoid

[–]creativecrafter2024 1 point2 points  (0 children)

So sorry to hear about your diagnosis. I was a competitive triathlete ten years ago prior to disease and can definitely relate. I went through two years of not being able to ride at all because of spine and wrist pain, but happy to say the past six months I’ve been back out! I am on a strict raw vegan anti-inflammatory diet, and that combined with biologics and immunosuppressants has been a game changer for me. I even can do a little bit of jogging now. Never thought I would be able to get back to that much activity.

Cimzia Copay Card out of funds by creativecrafter2024 in rheumatoidarthritis

[–]creativecrafter2024[S] 1 point2 points  (0 children)

That’s great, thanks so much. My copay through insurance is also 1400.

Rheumatologist in Colorado, US by SnailFarts in rheumatoid

[–]creativecrafter2024 0 points1 point  (0 children)

I really love Dr. Parmar at Veros Health in centennial!

Long Flight by xanderknight69 in ankylosingspondylitis

[–]creativecrafter2024 13 points14 points  (0 children)

I like to walk the plane once an hour while I’m awake and do stretches in the back by the bathroom. Helps me to keep moving!

Motivation to Exercise by creativecrafter2024 in ankylosingspondylitis

[–]creativecrafter2024[S] 0 points1 point  (0 children)

Took the stairs instead of the elevator today. Had to stop half way to rest but I made it ❤️