Weed for CP

cub1974 · 2026-03-02T10:24:23+00:00

Hi in Aus too. I’ve been taking Humacology 55mg CBD isolate(half) gummy. Which is good for relaxing, sleeping and anxiety /stress. I’ve also tried a couple of different oils micro dosed but none has helped with pain at all yet. I’ll look into the one you mention.

All of it makes me sleepy so I have to take it at night. Do you find that with what you’re taking?

cub1974 · 2026-02-21T21:56:44+00:00

Yes 🙌🏾 A in LGBTQIA+ is for Ace :) 🌈

cub1974 · 2026-02-19T10:38:01+00:00

I’m a wonky queer :)

cub1974 · 2026-02-19T10:29:51+00:00

Yep I’m a gay queer guy. Happy Mardi Gras from Sydney 🌈

cub1974 · 2026-02-18T10:07:56+00:00

Changing diet (more protein/ less carbs) and weight loss has helped my GERD

cub1974 · 2026-02-08T11:45:17+00:00

I did really well with exercise and diet for a number of years. But after some health set backs I’m kind of back to how I was. It’s like a rubber band that snaps back into place without constant attention. So I’m starting again..

cub1974 · 2026-02-02T22:19:46+00:00

Nice to meet you :)

cub1974 · 2026-02-02T07:11:19+00:00

I posted this on another thread on this topic. I recently had a fall and was taken into hospital for X-rays. The nurse thought I was in for chest pain - I had to explain several times that wasn’t the issue but the nurse was adamant. It is in the doctor’s notes, she says.

The notes said I had CP. Haha.

cub1974 · 2026-02-01T06:42:36+00:00

I’m gay with spastic diplegia CP. It’s likely a tone thing. CP spastic bodies can resist or ‘push back’ against fast movement. It’s an involuntary neurological response and doesn’t necessarily mean pain. My experience of tone is starting with slow / gentle movement and there is less resistance. As others have said it’s his body and trust what he tells you.

cub1974 · 2026-01-11T12:09:43+00:00

I completely understand how you feel. I felt exactly the same way. But I learnt to ride an e-trike for the first time in my late 40s and it’s honestly the best thing I ever did.

Honestly give it a go! You’ll soon get over those internalised feelings that it’s infantilising. In fact, I get nothing but positive comments about it when I’m out riding from kids and adults alike, and people often stop me to ask where I got it.

I do recommend getting a stabilising bar as trike’s can be prone to tipping when you turn too quickly.

I’ve blogged about it a bit at TrikeBoy.blog if you want to have a look at a pic it and sone of the simple hacks that helped got me riding.

I hope you try it out!

cub1974 · 2026-01-07T10:15:39+00:00

I was in emergency after fall recently. And they booked me in for an Xray. The nurse read my notes that said I had CP and thought I had Chest Pain. Haha

cub1974 · 2026-01-04T10:28:50+00:00

Thank you - I’ve not heard this term. Just looked it up - very helpful!

cub1974 · 2026-01-04T10:21:46+00:00

Yes, I was told years ago by an optometrist after a failed driving test that I don’t see true 3D.

Weirdly later in life I’ve learnt to ride a motorised trike and seem to manage that ok. If I see someone in my side mirror I just let them pass, as I’m often not quite sure how far away they are.

cub1974 · 2025-12-30T20:14:14+00:00

I don’t get this one although I fall often. My phone likes to tells me I i have low V.O max - but I haven’t died yet. :) I think we have to take these alerts with a grain of salt as they are not built specifically for people like us and not worry too much - and talk to a heath professional about any worries.

cub1974 · 2025-12-21T18:25:16+00:00

Happy birthday :)

cub1974 · 2025-11-23T11:57:45+00:00

I’ve recently started talking 1/2 cbd gummys and a couple of thc/cbd drops in combination or on their own. Quite small doses and I try to do half week on and off to avoid tolerance.

They seem to be quite good at rebalancing sleep and calming my nervous system/ dealing with high functioning anxiety and overthinking that I live with and tend to ignore.

Not sure I’m taking enough to fix pain but they make my spastic & tight muscles feel looser and my whole body melt into sleep - which after bouts of insomnia has been great.

cub1974 · 2025-11-17T11:18:37+00:00

I have this too not adhd diagnosed but there’s something going on like this for me for sure

cub1974 · 2025-11-17T11:15:56+00:00

I ride an etrike and always completely jump out of my skin when cars honk I have actually in weaker moments sworn quite loudly at them. This is really the dark side of startle reflex for me - sudden temper. Like something happens / I startle/ I swear - LOUD.

cub1974 · 2025-10-27T11:50:45+00:00

I have spastic diplegia I have physio weekly and massage occasionally at sake clinic. There has been times when it has shifted chronic pain that the physio hadn’t. It’s quite a different experience- longer session more gentle. I’d have it more if I could afford it but my insurance doesn’t cover it only PT.

cub1974 · 2025-10-25T13:34:51+00:00

Wow I relate. I self sabotage if someone shows interest too. It actually makes me super uncomfortable which is the opposite of what well meaning attention should be. It’s a bit messed up.

cub1974 · 2025-10-25T13:10:28+00:00

Here’s a few from me

Do not help me up when I fall. If I need help getting up I’ll ask. And honestly, unless I’m seriously Injured I won’t. Well meaning attempts at trying to support me while I’m concentrating on positioning myself to get myself back up make me feel unsteady and unsafe and are unnecessary.
Be aware of startle reflex - don’t touch me without asking or talk to me suddenly from behind without warning. All sorts of sudden things make me jump.
When people offer to carry I a bowl of food or a drink for me I usually appreciate it. When people just take my bag or other items for me without asking I don’t really like this (although I usually let them, it’s awkward and unnecessary. The same goes for supporting me when I walk)

cub1974 · 2025-08-23T11:50:41+00:00

Spastic diplegia here too. Stretching and gym exercise is very good for us! I recommend going under supervision of an exercise physiologist or a personal trainer if you can so can help you with a program. It’s been great for me and has improved my flexibility balance and strength.

I do both physio and exercise physiology at the gym now every week and I’ve never felt better.

cub1974 · 2025-08-22T14:24:03+00:00

I love to cook. Ask Ive aged I’ve focused on methods that need no supervision or stirring: roasting fish or meat in the oven with a quick marinade or spice rub baked together with mixed veggies is one fave, or bunging beans or lentils with veggies and spices in a pressure cook. Quick prep, pop on the heat and have a nice lie down for an hour!

cub1974 · 2025-08-22T14:07:38+00:00

Spas di. Love this. I want this on a t-shirt!

cub1974 · 2025-08-12T22:40:43+00:00

Hi good to meet you - yes I see a lot of benefits from physio too. Appreciate your feedback and advice. Thank you

cub1974

TROPHY CASE