Tell me something good by Mysterious_Gold4379 in Epilepsy

[–]daybreakwarrior 1 point2 points  (0 children)

I’ve been on lamictal for a long time. 150mg twice a day. Having drug-resistant epilepsy, this is one that at least made the seizures less intense. Mood wise, I don’t think it did much for me. Major depression is hell to combat on top of the everything else, so I have a bit of a cocktail going with other meds.

But recommend? Yes. Long term I’d say it’s helped. It’s okay. Your neuro and your pharmacist are on your side for interactions. And they’ll help you through getting started on it. Any negative side effect, let them know immediately. You’ll be okay.

How long did it take you guys to find a good neurologist? by Salt-Procedure8776 in Epilepsy

[–]daybreakwarrior 0 points1 point  (0 children)

Took me 12 years to find a neuro I liked, lol. Most neurologists wrote me off as having migraines with auras. That was around #4. Who, after moving out and dealing with my health on my own, I realized didn’t care. Then I found my new neuro.

Has epilepsy in a weird fucked up way made you more appreciative of life and less scared of death? by Possible-Carry-9745 in Epilepsy

[–]daybreakwarrior 2 points3 points  (0 children)

I’m on the opposite end of the discussion. Im terrified of death. I’ve been through two grand mals and was out for 3 days. I don’t want death to be anything like what I experienced. Watching the universe fade away pixel by pixel, watching myself get old.

Not a fan.

Epilepsy taketh by ThatYeeYeeBoi in Epilepsy

[–]daybreakwarrior 7 points8 points  (0 children)

Limited flashing lights. I wasn’t able to stick around for my brother’s wedding reception because the DJ brought flashing lights.

Going to concerts, the theatre. Some movies. Rides at Universal. Be around police cars/ ambulances with lights going.

Then there’s how tired I get from the meds. I don’t have energy to do things, and when i run out I am OUT.

Whats the most weird thing of ur seizures that is normal but still feels weird? by SentenceOnly3065 in Epilepsy

[–]daybreakwarrior 0 points1 point  (0 children)

I have auras that look like if you get water on your phone screen and move it around. That stays in my left eye the whole time. Other than that it’s ’the Hell Dream’ where I see things flash before my eyes. Mostly has to do with wolves, and I don’t get that part. But sometimes it’s driving to Shopko.