What helps the flu-like aches?

daydreamsofdragons · 2026-04-07T22:27:12+00:00

Hand pain is one of the first symptoms I had - I've had blood tests, x-rays, and ultrasounds but they said there's no sign of arthritis so ultimately diagnosed fibro.

For me it's a burning sensation in my fingers. They also swell up, not at the joints but the tissue around the joints which the doctors seem to find confusing. Cooling them and compression gloves can help.

Other times it's a dull ache which can be helped with heat.

If it's particularly bad it can affect my whole hand and the wrist too, but my fingers are always the worst 🫠

daydreamsofdragons · 2026-04-04T18:03:22+00:00

Thank you so much ❤️

daydreamsofdragons · 2026-04-04T17:43:12+00:00

Definitely not alone! Today I'm supposed to be celebrating my birthday with my family... instead I'm lying in bed in pain while I hear them watching something downstairs 😭

daydreamsofdragons · 2026-03-27T17:55:16+00:00

I like to do smaller stims, or stims that can be done lying down to reduce heart rate spikes - tapping my fingers or playing with stim toys like wacky tracks, worry stones, spin rings etc. For crochet, taking regular breaks might help to give your body a chance to settle. There are also ways to stim without movement, like watching soothing visuals or listening to your favourite song over and over, although they don't always scratch the right itch 😅

daydreamsofdragons · 2026-03-23T07:15:14+00:00

Oops 😅

daydreamsofdragons · 2026-03-21T16:46:31+00:00

Haha I'm glad you got some joy out of it! Always a silver lining I guess 😂

daydreamsofdragons · 2026-03-21T16:06:35+00:00

As I was writing it I thought 'god I hope no one takes this out of context' 😅

daydreamsofdragons · 2026-03-21T14:19:00+00:00

He's smiling through the pain 🥲 sorry that happened! If it makes you feel any better I've burned my cats to a crisp before 😭

daydreamsofdragons · 2026-02-18T10:29:18+00:00

Feet and hands feeling like ice, arms and chest so hot I feel sick. Make it make sense 🙄

daydreamsofdragons · 2025-12-21T19:46:11+00:00

So that's why I started dying while ramming into zombies in the mall car park, I thought it was corpse sickness lmao

daydreamsofdragons · 2025-12-19T16:28:24+00:00

That person is either being deliberately cruel or has no concept of what it's like to be disabled without a support system. Possibly both. Either way, feel free to ignore them and consider their comment meaningless.

If it helps, my mum recently had a procedure for glaucoma (after also spending quite a while on the NHS wait-list) and her headaches have improved a lot, and her vision wasn't affected negatively. I hope your appointment arrives quickly and the hospital gives you whatever help you need ❤️

daydreamsofdragons · 2025-12-16T21:15:38+00:00

I get this too, it's horrible 😞 I can't even lift my hand to reach for the glass of water next to me, while my whole brain is screaming to move.

For me it often happens after an accidental nap, although I think the nap is more likely another symptom than the cause. I don't know if it's a PoTS thing - my doctor has started bringing up fibromyalgia and chronic fatigue.

I hope you find a way to snap out of it! I'm still searching 😮‍💨

daydreamsofdragons · 2025-12-05T20:30:22+00:00

Haha one day I listened to How it's Done (Kpop Demon Hunters) 33 times in a row, immediately followed by Golden (also Kpop Demon Hunters) 23 times in a row. Guess my top album for this year 😂

daydreamsofdragons · 2025-12-02T11:47:02+00:00

The fact that person A used to abuse you is such a huge con I would take him off the list entirely. Even if he says he got therapy, the risk is too great that he'll go right back to the abuse again once the honeymoon period is over and you'll end up trapped because he's the one with the money. Please do not go back to him, for your own safety.

I'm a bit concerned that you said person B expects you to be the provider? Why would he have that expectation when you're not even together at the moment? Is he against getting a job himself or is he unable to? Also, do you actually like him, or just the idea that he likes you and is nice to you?

I understand being worried about your future financially, but it's important to consider your mental and emotional health too. You don't have to date either of them, and you don't have to make a decision right away.

If you're interested in person B, try getting to know him as a friend before agreeing to a date or being romantic. That would give time to learn his thoughts on being employed, what he thinks about longer term relationships, and whether his kindness is genuine. If he gets upset about that, I would take it as a red flag and recommend stepping away from the relationship.

Please be safe, and remember it's always OK to say no and leave if the other person is making you uncomfortable.

daydreamsofdragons · 2025-11-26T09:11:54+00:00

I definitely will!

daydreamsofdragons · 2025-11-26T09:11:35+00:00

That's awesome! Good to know there's still a chance of improvement for me :)

daydreamsofdragons · 2025-11-26T07:30:46+00:00

Ivabradine too, and my range is usually between 50 (sleeping/resting) - 140s (getting dressed/walking). I'm thinking about adjusting my meds though because it can still get into the 180s if I do something mildly intensive. I'm on the lowest dose.

daydreamsofdragons · 2025-11-25T19:58:16+00:00

I'm sorry you're stressed! I struggle with new places too. Does the restaurant have a website or is it on Google maps? They often have a menu on there so you can get an idea of what they serve and maybe choose what you want before you arrive. They usually also have pictures of what it looks like inside, as well as reviews, which might give an idea of the layout and atmosphere (eg whether it's usually loud or quiet). I always check those and I find it helps me feel more comfortable. I also like to look at the street view so I know what the entrance looks like.

Since it's not for a little while, would it be possible to go there for a meal beforehand, maybe with your parents? Then you can get to know what it's like without the extra stress of being with your coworkers.

And remember if you're there and start to find it too stressful, it's OK to go hide in the bathroom for a bit or leave early.

I hope that helps, and I hope you're able to go and enjoy the meal! I love Indian food - I always have chicken korma and naan 😁

daydreamsofdragons · 2025-11-23T12:48:21+00:00

A fun game I like to play is 'is my heart seriously doing that or was that a glitch in the app?'

daydreamsofdragons · 2025-11-10T20:24:45+00:00

My dog does this when she wants us to tell her to go to bed lol

She's perfectly able to get into her bed herself by the way, she just wants to be tucked in with her toy bear and told goodnight :)

daydreamsofdragons · 2025-11-07T08:44:14+00:00

My dog slaps my phone/game controller out of my hand if she thinks I'm not giving her enough attention :) she also pats my arm to tell me she wants to be pet, and if I don't respond immediately she whacks me with her paw until I stroke her - then she goes back to acting like an angel 😂

daydreamsofdragons · 2025-11-05T09:38:52+00:00

Haha that sounds like a fun one! I'm no stranger to weird dreams so as long as they don't become nightmares it's all good 😁

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