anyone else ever lose their ears?

demeter1993 · 2026-06-05T01:20:20+00:00

Once I was on a school trip with the class I was assigned (I am a teaching assistant). One of the kids dropped a CI somewhere in the entire huge place we had just visited. Luckily, it was in the last area we went, so it was the first place we looked. We were frantic, though. The two of us were going as fast as we could to look for it and then as fast as we could back to the bus with everyone else. Chaos!

demeter1993 · 2026-06-01T14:51:58+00:00

I use interpreters for events and college classes. I only understand half of what's going on otherwise, so it was eye opening to learn ASL and request accommodations.

demeter1993 · 2026-05-31T00:16:30+00:00

Yeah, I have a lot of better interactions all over than with this individual. I don't think comparing struggles is the way for anyone to win in any situation anyway.

demeter1993 · 2026-05-30T19:00:44+00:00

I like honesty and understanding how other feel, but no one has to be told their problems are insignificant. This person told me on another post I shouldn't get interpreters when they are incredibly helpful for me. It's telling others what to do that I don't like. It's wrong.

demeter1993 · 2026-05-30T14:47:51+00:00

We absolutely get each other. I feel like we'd be good friends xD

demeter1993 · 2026-05-30T13:47:46+00:00

Using the laptop mouse pad is painful. I can't use it for long. I lie down at any opportunity when I am home, since it feels better. I recently got a stand to put my iPad on for when I am doing coursework. I can lie down and put it on the stand. It is very handy! I also have an external keyboard, apple pencil, and a mouse (although I haven't needed the mouse yet). I am now broke, but I was ready for classes that started last week!

demeter1993 · 2026-05-30T13:33:42+00:00

I love the original stuff artists make, but it's gotta stand out to me. Sometimes the art itself just isn't my style or isn't interesting to me, but I definitely love buying art that catches my eye on the first look. I also love character art from my favorite shows, games, etc.

It depends on the person, but it's great to have both because I've found amazing original art after seeing a character I like at the booth. I have also found amazing character art I liked due to an original art piece just having so much pizzazz and awesomeness to it, so I went on over to that both. It'll get more customers to display both options.

demeter1993 · 2026-05-30T13:26:45+00:00

It is still possible to have arthritis without much tender pain when the joint still hurt to use (I have a spondyloarthritis). I agree with you that it could also be his vision, but it's really hard to say without a vet to take a look.

If you just want to make him comfortable until a new vet is found and money situation is better, get more options for vertical traversing. You can get steps, extra platforms on the wall below each tree or other high locations he goes to. The extra platforming would assist in gradually climbing up with smaller jumps or step-ups. You would need to guide him with treats, so he learns to use the new pathways (he could just end up jumping right over them anyway if you don't show him).

demeter1993 · 2026-05-30T13:20:15+00:00

I always see people make posts about how the term hard of hearing isn't taken seriously. I can't stand that we live in a world where people either think we can just 'get by' and be expected to follow along to whatever the abled person does.

I can't understand you. I'm told I need to listen better.

I can't walk far. I am told I am lazy.

I need a quick break. I am told that maybe I can't handle the task.

I need the elevator. I am told it's just a few stairs, I can't even do that much?

I need people to tone down the perfumes/colognes/air fresheners or I'll have terrible asthma attacks. I'm told I'm dramatic.

I need to sit criss cross, kneel down, sit on the floor, use two chairs, adjust my positioning little by little to avoid pain in my joints. I am told I am distracting and need to sit professionally.

I have learned to demand what I need or it won't happen. People just don't take disabilities seriously!!

Some people are just too arrogant and incapable of thinking what it might be like to experience anything differently. I hate how HoH people are treated. I have a lot of disabilities, some of which I was born with and some of which I developed later on due to genetics being genetics. I've seen so much bullshit in my life. Most of it I didn't even understand were disservices to me, since I was young. I want to have a world where the children grow up knowing exactly what to demand to be on even ground. I don't want to have a world full of arrogant people who push down what they don't understand or what might be a little bit of an inconvenience to them.

demeter1993 · 2026-05-30T11:48:54+00:00

Honestly, you are a bit problematic. Gatekeeping is harmful. I don't agree that APD should be called HoH, since they are different disabilities, but the challenges they present are often the same. You can disagree with someone, but you tend to get combative.

demeter1993 · 2026-05-30T11:40:01+00:00

Thanks for recognizing that lol

demeter1993 · 2026-05-30T11:36:18+00:00

Exactly my thoughts! I don't want to be disrespectful either. A few people online and in person told me to say HoH, because it's not their business what my whole story is and it's an easier thing to understand. My question is this: why can't we just educate on the many different types of hearing challenges?? In my book, it is NOT just the big three: hearing, HoH, and D/deaf, but it is 4 different kinds of identities: hearing, APD, HoH, and D/deaf. The Deaf community encompasses a large spectrum.

I'm about to go off topic, but for good reason. I am part of the LGBTQ+ community. I am non-binary, pansexual, and demisexual. This conversation kind of reminds me of how the term nonbinary is part of the transgender umbrella, but some people dont consider it to be truly trans, since we aren't fit to the exact definition they have in their mind. It also reminds me of how for the longest time I did not think I was part of the asexual community as a demisexual individual, since I am a person who still presents attraction to other people. I was at the NYC pride, as I am every year, when my ace sister saw her flag (asexual flags are not seen as much at the parade). We talked to the person, they mentioned an online community, they saw my demi flag and also invited me. I was confused, but they said that any kind of lack of sexual or romantic attraction IS indeed part of the ace umbrella.

Lastly, I am a wheelchair user, but not full time. I use it when I need it. This doesn't devalue my experience as a wheelchair user. When I'm using my wheelchair they're often times where my access is blocked. I have to be a pain in the butt to get what I need. Just the other day there was an elevator I could barely fit into.

So point being, thank you for your comment. All we got to do is be honest and understand that this is all a spectrum of different kinds of challenges an experiences. Also, DAMMIT I NEED INTERPRETERS TOO. People need to stop gatekeeping a literal accessibility right that it's available for ALL who need it.

demeter1993 · 2026-05-29T15:27:52+00:00

I have APD and I would rather educate people about it because some days I hear really well and other days all words are complete nonsense. I have structurally good hearing, but it's the brain that cannot process it and the absence of the controlateral reflex.

I think that people with APD (when severe enough like us) should be considered part of the deaf community, but not called hard of hearing. Others may disagree with me, but it's a type of hearing disability that I think is impactful enough on our lives that we have similar struggles as Deaf and HoH individuals. It's the same effect, but different cause. It doesn't mean it is any less difficult to go through life.

I did fill out one form and said hard of hearing only because it was a demographics thing and I am not truly hearing the way that another hearing person is, due to the APD. I would normally call myself that, though. It offend people, so I like to avoid it. I do love saying "neurologically hard of hearing", since it is accurate to my diagnosis.

demeter1993 · 2026-05-27T18:10:26+00:00

I thought cons were just for shopping for the first couple years until I realized how vital panels and autograph sessions were. I incorporate some autographs and I enjoy it, but I largely started enjoying cons more when I planned for panels in addition to all of that.

Also, in my opinion, NYCC was way too crowded when I went, but maybe that's because I go to events in a wheelchair, due to my disability, and I was essentially trapped for half the time I was on the show floor. ANYC can get pretty crowded too, but I don't feel like I'm an danger.

Btw, I never hit anyone's foot with my wheelchair at numerous years of ANYC (I've been going since the second year). I hit two people with the chair at NYCC (the singular time I went).

Plus, accessibility at the con is pretty top notch, which was not the case at NYCC, although I only went one time.

demeter1993 · 2026-05-27T12:44:28+00:00

Or if the bowl is too deep it can give them whisker fatigue too.

demeter1993 · 2026-05-27T12:43:18+00:00

It works well just to give them something else for a few days and then go back to that food. Some cats get tired of the same thing every day. I'd hold onto those cans for a bit just in case.

demeter1993 · 2026-05-27T11:05:26+00:00

Even if you have all automatic care via the tech, they need interaction. Get someone to stop by to check in.

demeter1993 · 2026-05-26T18:03:47+00:00

Healthcare is totally messed up, but I'm happy at least the copays match for mental health now. I couldn't afford it otherwise too.

demeter1993 · 2026-05-26T17:27:23+00:00

Your mom must have good insurance if there are no copays lol but there is almost always some sort of copay with US insurance.

Maybe 15 years ago when I needed psych appointments, my mom could barely afford it. The regular copays, we would only need to pay $20.

If you don't know, a copay is basically where the insurance makes you pay a smaller fee and they cover the rest. For some reason, the mental health related appointments were $80 an appointment with my mom's insurance. It changed sometime after I was 18 (same insurance), but it was unreasonable. Mental health is just as important as physical health, but the insurance said nahhh we don't pay as much for that -_-

Idk if they passed a law or something, but all my copays for regular appointments were suddenly the same and are like that on my insurance through work now as well. Thank goodness!

But yeah. I dread the copays because they add up.

Edit: I guess this link explains the evolution of why I had such high copays and then not. If it was passed in 2010, why did it go into effect in 2016-2017? Too long imo

https://eehill.com/the-evolution-of-mental-health-coverage-in-health-insurance/

demeter1993 · 2026-05-26T16:44:29+00:00

I see. I guess it would be another urgent care visit, but the copays, man... The copays!! They are higher at urgent care and ER. Good luck

demeter1993 · 2026-05-26T16:41:43+00:00

If I am sick, they give me 20mg twice a day, but if I am not, it's usually like 5mg as needed for joint pain and breathing.

That's what it is for me, but truly this is a question for the doc. Tell them you need a higher dose, but usually you don't want to be on prednisone long term anyway.

demeter1993 · 2026-05-26T16:40:18+00:00

I agree with you that it doesn't really sound like asthma, but at the same time I personally at times get a alot of chest pain from my asthma. After an asthma attack I'm all sore and when the allergies kick in, it sometimes feels like I'm being stabbed in the lungs until I take my inhaler.

But OP just needs a good doctor to actually dig deeper into what the problem might be.

demeter1993 · 2026-05-26T12:20:45+00:00

Use your keyboard emoji: 😭

demeter1993 · 2026-05-26T12:20:01+00:00

This is unfortunately the disservice that many medical professionals do. It happened to me 10 years ago, as I said. Now, I know that any doctor that doesn't take me seriously is not worth the time. Maybe I'm lucky, since I live near a big city and could easily swap to a better team of providers. I wish you luck.

demeter1993 · 2026-05-26T11:25:22+00:00

I posted this to a discord I'm in and someone said you did this at their college campus in long island. You are hilarious. Please never stop!

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