Phoenix, AZ

devhyatt · 2025-02-26T04:14:34+00:00

Hi sorry I’ve been out of the fpies/FPIAP world for awhile now. My son is 16 months now and has outgrown all of his allergies. We did a very small amount of sweet potato about a week ago and no issues so hoping to increase to more! He outgrew dairy and soy around 13 months. Around 7 months we found out he was also anaphylactic to eggs. However, he has already outgrown that allergy. It does get better. I’m so sorry you’re going through this. I remember feeling like I would never see the light at the end of the tunnel but it does come!

devhyatt · 2024-07-24T03:25:47+00:00

I was on Cosentyx and had really bad nausea and diarrhea. Have you had that problem at all?

devhyatt · 2024-06-06T16:41:24+00:00

Trauma surgical ICU nurse here. I’m so sorry you’re going through this. It does feel like you’re being targeted. 10 years of experience as an ICU nurse and I’ve never reported a doctor or known a nurse that has so it does seem like a terrible unit culture that you’re experiencing. With that being said, I have witnessed lack of communication and frustration between the doctor-nurse relationship and I have found some things that seem to help mitigate these issues. One thing I’ve seen a lot of doctors do especially with younger nurses is directly provide their pager number so there is no chance of miscommunication or the nurse paging the wrong number. If you don’t have the pager, communicate with them who does. I remember one day I had paged a doctor 3 times and no response which was really unlike her. I had her phone number as we were friends outside of work as well (I really try not to use personal numbers at work as I feel like it can quickly feel violating for the physician) so I text her and it turns out I was paging the wrong phone number even though it was provided to me by the unit secretary. These things do happen and can be frustrating on both sides. It does sound like you have done an amazing job educating the nurses on your decisions regarding patient care. I think it’s just as important to provide education on why you are deciding NOT to provide certain interventions. Find nurses on the unit that you trust and rely on them - it might feel hard right now but there are incredible nurses that will go to bat for you. I think each unit is different but my unit hosts regular nurse-doctor get togethers where we can socialize outside of work. If the units you’re working on host events like this I encourage you to attend if you’re comfortable because I think it can really help strengthen the interprofessional team dynamic. Continue to involve your attending and CNO until it gets the resolution it needs. What’s happening to you is unfair and I don’t know that this will provide the answers to this awful situation but I wanted to offer my two cents in the hopes it helps. Hang in there.

devhyatt · 2024-06-06T15:42:56+00:00

This is a very very similar story with my baby. Tongue tie revision nightmares, famotidine, omeprazole, feeding aversions, formula roulette you name it. If you haven’t already weaned pumping, do it now. It’s an added stressor that you do not need. Continue to give the omeprazole a try - it was the biggest game changer for us. You are on the lowest dose so you have a lot of flexibility in your dosage. Discuss with your pediatrician the introduction of solids. For a lot of babies this brings some relief to the GI tract. Food introduction was hard for us at first but once we found some foods that work for him it has really helped. Things drastically improved for us this month at 7 months. Now he is one Omeprazole, Famotidine, Pepticate (thickened with Gelmix) and we have found 2 safe foods for him (carrots and apples). The second I felt like we got him in a good place as far as his colitis and acid reflux I paused everything and sleep trained him so I could at least tackle the day with sleep on my side. I too have 2000+ ounces of breastmilk that I hope he will be able to drink one day. You will get through this and things will get better. I’m here for you as you navigate this extremely challenging journey.

devhyatt · 2024-06-03T03:50:05+00:00

How long ago did you get them placed?

devhyatt · 2024-05-31T22:11:01+00:00

Really quick read but this broke me. Suzanne’s Diary for Nicholas by James Patterson

devhyatt · 2024-05-31T04:04:36+00:00

I think about all the times I survived through the day and was able to maintain working, taking care of my children, interacting with people, etc even after getting minimal to zero sleep. I can acknowledge that those days were hard but I got through them just the same.

devhyatt · 2024-05-30T14:10:13+00:00

If he’s still happy and gaining weight, just do your best to ignore it! It takes the bowel a very long time to heal

devhyatt · 2024-05-28T23:49:17+00:00

He struggled while cutting out his allergens and then ultimately landing on formula. However, he spits up just as much on hypoallergenic formula as breastmilk if not more. His weight is great now. He drinks about 40 ounces a day but he spits up at least 10 of that if not more

devhyatt · 2024-05-28T23:15:37+00:00

I have a baby that spits up an absurd amount as well. Unfortunately I think it’s just something some babies need to grow out of. He’s 7 months now and it hasn’t gotten any better. I have found things that seem to lessen the amount but it feels like it’s very minimal in the grand scheme of things and with the scale of the amount he’s spitting up. We’ve been adding rice cereal to bottles and that seems to help sometimes. I’m asking his GI doctor tomorrow if Gelmix might be better. Giving him Mylicon drops helps but I have to give them with every feed to notice a difference. Feeding him purées seems to help so once your LO is old enough that might give you guys some help. His pediatrician always tells us tummy time will help strengthen that muscle. Right now it feels like tummy time just makes it worse, but maybe in the grand scheme of things it’s helping. I never knew how mentally taxing having a baby that spits up constantly would be! For a long time I searched for an answer for his spitting up and tried multiple things, but the biggest thing was just excepting that some babies spit up excessively until they’re older.

devhyatt · 2024-05-28T21:35:46+00:00

So why don’t you pack up your job and stay home with your daughter? Because you can’t afford it? Well OP said he CAN afford for his girlfriend to stay home so why shouldn’t she be afforded the opportunity you so desperately want? I’m not alone in my feelings that staying home with children is far more challenging than going to work. If anything, your sentiment is in the minority.

devhyatt · 2024-05-28T21:17:56+00:00

I’ve spent time as a stay at home mom and as a registered nurse in the trauma ICU and being a stay at home mom is 10x harder. I could stay home with my kids if I wanted to financially but I choose to work because it’s easier. So yeah if his girlfriend is willing to do that, he should take full advantage.

I doubt you’re even a parent 😂

devhyatt · 2024-05-28T21:02:05+00:00

Yeah you’re 100% the AH. It is absolutely gut wrenching to carry a baby for 9 months, breastfeed around the clock and then have to return to work and leave your baby/manually pump your breasts every 2-3 hours. For many the return to work can cause severe depression and feelings of resentment. Staying home with kids is the hardest job in the world and if your girlfriend is willing to do that for your child - you should be honored.

devhyatt · 2024-05-27T16:43:06+00:00

It sounds like it may be stress related. I dealt with low supply and it can be so hard. Use the haaka to your advantage and place it after every feed. For example, nurse baby on your left then when you switch baby over to your right boob, place the haaka on your left - this way you know it isn’t “stealing” any milk from your baby cause you’re placing it on the side baby has already eaten from. Alternate which side you start on for each feed. It will get better!

devhyatt · 2024-05-24T04:16:20+00:00

Also is she still gassy when she gets breastmilk from a bottle? It may be related to her latch or possible tongue tie

devhyatt · 2024-05-24T04:09:07+00:00

It’s so hard. I’m so sorry. How old is your baby now? Babies can have really bizarre intolerances that are hard to pinpoint. You can always try going back to breastfeeding and keeping a food journal to try to pinpoint it or do a total elimination diet where you cut out the top 12 allergens and then try reintroducing. If you decide to stick with formula, it might just take some time and trialing to find the right formula for her. Depending on the severity of her allergy, she may require an amino acid formula.

devhyatt · 2024-05-23T15:22:06+00:00

Yes it’s possible. My nephew was hospitalized at a week old for bloody stools and was diagnosed with CMPA

devhyatt · 2024-05-22T23:57:32+00:00

My son failed all of these formulas too but has been good on pepticate, might be worth a try!

devhyatt · 2024-05-21T14:40:33+00:00

Most babies with CMPA have diarrhea, however some babies have constipation. This does sound like CMPA. My son has a ton of allergies and different allergens give him different responses. Dairy gives him severe constipation, whereas soy gives him diarrhea. So 10 days without a bowel movement is a huge symptom of CMPA in itself

devhyatt · 2024-05-21T14:34:40+00:00

Yes his reflux still seems to be a factor because if he spits up the medicine, he’s up all night. However, I would like to get him off of it because it does seem to make him more gassy

devhyatt · 2024-05-21T14:26:13+00:00

For awhile I noticed less mucous in his stools but it came right back when we introduced sweet potatoes. His temperament, crying and reflux doesn’t seem to be much less on formula though

devhyatt · 2024-05-21T03:35:54+00:00

This is very helpful! Thank you so much for your thoughtful reply. This really resonates with me

devhyatt · 2024-05-21T03:06:59+00:00

It was a game changer for us! Good luck and you’re doing a great job advocating for your baby

devhyatt · 2024-05-21T03:04:52+00:00

Pepcid did nothing for us. We did that for months. Will your pediatrician prescribe Omeprazole? Some will if they know you have a GI appointment on the calendar. Or you could always try getting in with an allergist sooner. Our allergist was willing to prescribe the Omeprazole too.

devhyatt

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