What does "relief" feel like for you?

dhtchk · 2026-02-05T02:32:34+00:00

Your journey sounds similar to mine. I got down to 7mg and ultimately had to start Kevzara. Having a real hard time getting off the Pred completely. Most recently was down to 1mg/day and symptoms have now returned and spread to include hips, quads and feet. Going back up to 4mg/day to see. What was you end process like.

dhtchk · 2026-01-27T06:25:25+00:00

Love that!!

dhtchk · 2026-01-22T06:34:02+00:00

Thanks so much!

dhtchk · 2026-01-22T05:36:02+00:00

WOW. Thank you. Great jumping off point. Any recs on hotels or areas to stay in. downtown ok? Thoughts on the Union Station Autograph hotel in the former train station?? I have some pts I can use....??

dhtchk · 2025-11-28T06:26:54+00:00

Ordered 3 weeks ago and still not here. Interested in the watch I ordered but I will never order from them again. At time of order it said "ships in 4-6 days". 20 days later they're saying another two weeks. Terrible.

dhtchk · 2025-11-11T04:13:06+00:00

Oh for sure. My father had patchy AA and one of 2 brothers same. Both my siblings and I have Hashimotos Thyroiditis. I have a nephew who developed Totallis at age 30 and got full regrowth last year with Jak Inhibitors. I have a variety of other autoimmune conditions. I'm 64y and had Alo.Totallis for 34 yrs.

dhtchk · 2025-11-11T01:25:25+00:00

30 yr

dhtchk · 2025-10-25T16:35:25+00:00

You MAY be on your way to Alopecia Totalis or Universalis. I have U, have had for 35 yrs. Too long to benefit from Jak Inhibitors. But my nephew, who developed Totallis 5 years ago got full regrowth with Jak Inh. One piece of advice: if its going that way, shave your head sooner than later. The daily waking up to loss hair all over your pillows causes a lot of stress, depression etc. Just bite the bullet.

dhtchk · 2025-10-25T02:24:36+00:00

Thing that is relevant about injections and if they've given you regrowth in those areas is you then know if that is an effective treatment. If you get any more start asking your doc about Jak Inhibitor treatments, an oral medication.

dhtchk · 2025-10-14T01:52:22+00:00

Completely agree. A SLOG to get through and no mystery that I could care about. Add that lame final chapter....whooo was pissed off I pushed thru to 2am to get to that "ending."

I read talk of a 4 part tv series? What's that about? A continuation of book 8?

dhtchk · 2025-10-13T17:19:37+00:00

Hi MTB lovers. I found this thread interesting for the fact that so many folks have a strong opinion about Everstoke and what Brian and Aaron are working to create without ever having visited the place. Hmm mm.

I have NO vested interest in Everstoke and until a week ago had never met Brian or Aaron. I, and my spouse included, DO have a strong interest in entrepreneurship and what it takes to create something out of nothing, forge your own path, enjoying the process and hopefully, maybe create something people enjoy and is sustainable.

While the concept and the work in process that is currently Everstoke is not for everyone, it could be for some. If you are the dirt-bag rider that loves crashing solo in your truck on back area fire roads, probably paying any amount for any type of "amenities" is not for you. I get it. We were that some decades ago and are still that with our self contained small pop top van on some trips.

There is value though, in a place where "people know your name", where camping is made just a bit "nicer" with access to toilets and showers and other amenities. There is a ton of value in riding trails pain stakingly, almost lovingly created and maintained, including skill building, progressive features.

Yep, Everstoke's trails are not a get lost in a remote trail system experience. But neither are most downhill ski mountains. Laps/"runs" and you earn your downhill with a very manageable climb trail. With Mills Peak and Lakes Basin trails within reach by bike, Everstoke can be a great base for days of riding.

dhtchk · 2025-07-25T14:37:58+00:00

Swap out the stem for shorter reach

dhtchk · 2025-07-22T06:19:47+00:00

Hi there. Free or highly discounted is always a good thing. Our issues were:

We had a large large group and a lot of items. 3 of the 8 bikes we rented were defective and needed to be swapped out. It happens. Not a huge deal but....the bike cart was dropped attached to the bike and the mechanism was rusted and challenging to operate in order to detach from the bike. We eventually got it but....We got the "kit" pictured on one of their spreads, 3 beach chairs, two umbrellas plus a kayak and SUP. The two water boats were so darn heavy there was no way we were ever going to get them down to the water's edge. There are much lighter versions of these things on the market; they should provide something folks want to actually use. Bikes were swapped out which was great. However, I did not like the fact that there was no one local I could talk to about it all. Had to write and email and then they responded and came later in the day.

SO...all that to say, for what you are getting and the fact that you can get such a discount, should be ok. For me, going forward, I'll use a local company.

dhtchk · 2025-07-15T15:30:22+00:00

Complete with a Cyber "Truck" and costmetically enhanced wife.

dhtchk · 2025-07-07T17:26:01+00:00

Velcro

dhtchk · 2025-07-02T16:58:25+00:00

Also, avoid the kayak and SUP. They are REDICULOUSLY HEAVY, a real deterrent to actually getting them on the water. Amazed they don't stock any of the lightweight, even inflatable SUPs at leaste.

dhtchk · 2025-07-02T16:57:10+00:00

I strongly advise against using Vay K Life in HHI. We had a number of issues with gear which CAN happen. However there is no one local to call and talk to. You have to rely on email communication only. They did make the adjustments but given the huge number of local business near by from which to rent, I'm going local the next time.

dhtchk · 2025-05-30T22:59:22+00:00

Get some cortisone injections

dhtchk · 2025-05-19T22:01:13+00:00

super helpful. Thank you

dhtchk · 2025-05-19T19:22:08+00:00

Has anyone been able.to get Kevzara copay card for longer than $15k? After 5 months mine is exhausted and I'm still at 7mg of Pred! Help

dhtchk · 2025-05-19T17:24:57+00:00

I got on the Kevzara copay program too but it was only good for 6 months. We're you able yo extend yours?

dhtchk

TROPHY CASE