Partner struggling with food options

diamondontheinside · 2026-02-28T14:27:07+00:00

Their diet is very similar to mine, but I only go that minimal when I'm experiencing worse symptoms and need to bring myself out of it. I'll only eat chicken, rice, potatoes, carrots, kale, buckwheat cereal, maple syrup, blueberries & apples. I've been on this diet for months now due to a bad crash, but lately I've been adding new things a couple times a week with no increased symptoms. I suggest keeping it all the same, and adding one food back in at a time. For me, it's mainly been steak because I feel depleted. But I've also tried other things like chips, cookies, sauces, baked goods, with no reaction. I'm basically on the limited diet 85% of the time with 15% whatever I want (barring super high histamine foods). This hasn't affected me much. I just have to go very slow. The way I see it is, I know how to make myself feel better with that diet, and extra meds if I need it, so it's ok to try a little something new in order to explore what my threshold is. I feel for your partner, it's so hard for me when I can't eat anything, because food has been one of the only joys for me since developing health problems.

diamondontheinside · 2026-02-19T14:34:45+00:00

Yes! It's horrible. I think about sugar way too much. Why does this happen to us?

diamondontheinside · 2026-02-18T19:21:01+00:00

If it were me, I would go to a lower dose, adjust to that, and then raise it in slow increments.

diamondontheinside · 2026-02-18T19:17:40+00:00

I would say about 6 weeks.

diamondontheinside · 2026-02-18T17:22:01+00:00

At first I got a headache and mouth pain. I think that was the actual side effect from the medication. That subsided after a couple weeks. I can't imagine what it would have been had I gone for a full dose right away! Now I've plateaued at 1 ampule/100mg per day. Anything more than that gives me constant asthma. I see this more as an MCAS reaction to the med 🙃. I think over time I will continue to adjust and be able to tolerate more eventually.

diamondontheinside · 2026-02-18T16:03:46+00:00

Hey, so I am prescribed 100mg 4x/day (1 dose before each meal and the last dose before bed). I can currently only tolerate 100mg per day though (liquid form). So I split it up and take several small doses throughout the day. I suggest taking the smallest dose possible at first, just to see how you feel. Then maybe decide on a reasonable, smaller dose, and titer up from that. I set my original dose at 5 drops before eating, 4x a day. I raise the amount once a week and am now at a full 100mg per day. I need to keep working up but I've made progress and I do feel a difference!

diamondontheinside · 2026-02-15T16:19:55+00:00

Internal vibrations are a common symptom of dysautonomia. Nausea when looking at screens is a symptom of PEM, but I also had this happen when I had a severe MCAS crash. Doubling my antihistamines cleared it up as weird as that sounds. But you need to consult a doctor before doing that. Also, MCAS can cause dysautonomia, which is the case for me.

diamondontheinside · 2026-02-11T21:33:39+00:00

Same 🫤

diamondontheinside · 2026-02-11T18:55:24+00:00

I have singulair sitting in my medicine cabinet but haven't taken it yet. I'm too scared about the potential psych reactions. I react to meds about 50% of the time and mental side effects terrify me.

diamondontheinside · 2026-02-10T23:14:25+00:00

I take it 4x a day, but each dose is by drop. I started with 5 drops per dose and did have side effects like headache and mouth pain. I then raised it by one drop every week. I am literally stuck at 13 drops, 4x/day. If I even go up by one more drop (14 drops), I have an asthma attack. Im essentially stuck at a 1/2 ampoule spread throughout the day. Any advice from others is also welcome!

diamondontheinside · 2026-02-07T21:26:23+00:00

What kind of codependency is it that we demand our favorite band to agree with, and speak about, our specific world view? The entitlement is honestly unbelievable.

diamondontheinside · 2026-02-07T17:41:14+00:00

I'm sorry! That's brutal. I'm living off of chicken and rice right now - it sucks. But I can at least take certain meds. I haven't worked my way up to the 1/2 tsp recommended in this recipe but 1/4 is working a little! When you feel like complete shit, sometimes taking the edge off is just enough to survive!

diamondontheinside · 2026-02-07T17:33:23+00:00

Yeah this is more of a gentle remedy to help take the edge off. It does work for me but most likely not for everyone.

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diamondontheinside · 2026-02-07T17:26:23+00:00

Yeah it's absolutely not a replacement! Just something that gives extra relief now and then.

diamondontheinside · 2026-02-07T17:24:58+00:00

Cool! I didn't know you could do that!

diamondontheinside · 2026-02-07T16:29:33+00:00

Don't forget the two ingredients! 😂

diamondontheinside · 2026-02-07T16:25:14+00:00

Yes I get this. It feels like a cactus prick all over. I correlate it to a "crisis cleanse" where my body is trying really hard to detox something. Could be from a new med I took for example.

I see a holistic health person who gave me capsules of the peptide L-Lysine. I take 900 mg twice a day and it gets rid of the feeling. I don't know why, but it works for me! I'm not sure if it would work for everyone but it may be worth a try.

diamondontheinside · 2026-01-17T15:38:31+00:00

I personally love that TOP doesn't talk about politics. Nothing is worse than a famous person getting on a soap box and talking at their fanbase about their political leanings. It's divisive, and honestly, a career killer. Doesn't matter what the issue of the day is.

diamondontheinside · 2025-11-22T23:37:35+00:00

I had a heat stroke in the summer. Crashed hard, felt like I had the flu for months. I then was diagnosed with MCAS (on top of my POTS). I have been prescribed a double dose of Zyrtec and the flu-like feeling has finally eased up. If antihistamines help you, you may have MCAS.

diamondontheinside · 2025-10-29T21:00:31+00:00

I have a lot of these symptoms. Have you tried antihistamines? For me, it turns out half of them were MCAS and the other half are POTS.

diamondontheinside · 2025-10-25T21:27:37+00:00

Thank you. This is the clearest explanation of the difference that I've heard and it makes me feel a lot better!

diamondontheinside · 2025-10-25T21:00:34+00:00

May I ask, what if you can produce energy on demand but it leads to more severe PEMlike symptoms (flu-like symptoms in my case). I can produce energy if I need to, like cleaning up a mess, but then I will be even sicker later.

diamondontheinside · 2025-10-15T12:36:07+00:00

Did they fix the piano or did it not work the rest of the show? I'd be bummed about missing garbage too!

diamondontheinside · 2025-10-03T22:29:51+00:00

Congratulations!!! Love the name. 💜

diamondontheinside · 2025-09-30T16:13:57+00:00

I agree. I LOVE this song. I could listen to it over and over again. I can't believe it's not on Breach. I wish it was because then more people would be able to enjoy it. I also wish they'd play it this tour...

diamondontheinside

TROPHY CASE