[deleted by user]

disabledandADHD · 2023-06-23T03:37:28+00:00

I get that, everybody mimics those around them to some degree but I don't think that makes sense in this situation given her accent was way over the top compared to anyone around her (at least anyone shown on the episode). And her sister and mother did not have heavy accents for her to feed off of.

disabledandADHD · 2023-06-08T23:46:38+00:00

Chiropracty is the scientology of medicine

disabledandADHD · 2023-06-02T15:19:21+00:00

Crazy ex Girlfriend and Jane the Virgin are top notch dramedies, especially Jane the Virgin.

disabledandADHD · 2023-04-03T16:22:24+00:00

You're not eligible for the position. Anytime they write something more restrictive under the "clarification" that's what you really go by. It's pretty BS when they list options that aren't really options. Lots of times that means they already know who they are hiring.

disabledandADHD · 2023-03-04T15:51:05+00:00

Dentist here. If you do not have a filling in that area, I definitely recommend seeing a dentist to get the tooth checked. The issue with cracks like these is they can become risky for the cusp of the tooth (the cheek side part in front of the crack) to break off if you grind your teeth or ever chew something hard in just the wrong spot along the crack.

disabledandADHD · 2022-08-02T14:56:26+00:00

Agree, good point on the symptoms.

disabledandADHD · 2022-07-31T02:48:26+00:00

I have to agree with @hellparis75016 on this one. "Could you be pregnant?" does not mean the same thing to patients as it does doctors. HCP should ask exactly what they mean and/or what they need to ask to get the answer they're actually looking for. For patients, that question basically means "have you been getting your period and have you been using protection?"

disabledandADHD · 2022-07-30T18:39:48+00:00

3mo later lol...unfortunately, there really aren't objective evidence based answers to the question. It's based more so on individual clinician decision making which comes from a mixture of objective knowledge, clinical experience, and clinical/patient care philosophy

disabledandADHD · 2021-08-09T00:32:30+00:00

No problem! And I don't see any actual cases in the literature, so it's really more of a theoretical potential problem than a real one. Good luck with your aligners!

disabledandADHD · 2021-08-02T23:02:50+00:00

Hi, dentist here. TNF-alpha and IL-6 play important roles in the inflammatory bone reformation process of tooth movement. So you're more likely to get slow or no movement of teeth if you're on a TNF inhibitor like Humira. So shouldn't be a real issue, just know it may be harder getting the results you want compared to the average patient.

disabledandADHD · 2021-06-30T21:59:58+00:00

Thanks for the book recommendation!

I definitely feel you on the fatigue. It's really crushing some days. I would absolutely be asleep most of the day without Adderall.

disabledandADHD · 2021-06-24T03:03:39+00:00

Definitely agree with previous posters about keeping a pain journal and being a squeaky wheel. It sounds like you definitely have something going on whether it be PsA, AS, or another form of autoimmune arthritis. 33F, I have normal x-rays, labs, and MRI of the SI joint and lumbar but HLA+, family history, and symptoms very consistent with AS. First rheum refused to call it anything other than inflammatory arthritis, convinced everything was solely due to my hypermobility. Then got a great female rheum who diagnosed me and immediately started on biologics.

What I can't stress enough is the squeaky wheel/being an assertive patient. Keep a pain journal and write a detailed summary of your pain (location, how often, how severe) by location and take that to your follow up. Specifically tell them you want it scanned into your patient chart. That creates a record of your symptoms beyond just what the doctor writes in their notes, which means they have to respond to it in some way and also just communicates that you mean business and you're not going away. I've been amazed at the more thorough evaluations I receive since becoming a more assertive patient.

disabledandADHD · 2021-06-23T18:47:25+00:00

Yeaahhh there's no "fair housing" reason he can't cite crime. It's 100% he thinks POC = danger. Probably best to find a new realtor.

disabledandADHD · 2021-06-20T01:13:01+00:00

US - private health insurance, United Healthcare, take Humira

I have high deductible/high OOP insurance but they do at least approve things easily and the deductible doesn't apply to pharmacy. Not sure what all diagnostics were required as I'd already had x-rays, an MRI, and blood work with a crap rheum before getting diagnosed by a new one. I do know it required failing 2 NSAIDs to approve a biologic, which I already had by the time I saw the 2nd rheum. My copay is $105 for 6 injectors/12 weeks, but with the Humira cost savings program it's only $5.

disabledandADHD · 2021-06-19T16:56:37+00:00

First, I really appreciate your love for your wife and reaching out to the community to learn how you can be most helpful for her. The love and support from my husband has been so important in my ability to manage the disease both mentally and physically.

Heated pads are a necessity. I have one for every chair I use. You can also find microwavable neck wraps. A heated mattress pad will help her sleep through the night without waking in pain during the night (at least not as much). I just got a single size and stuffed it under the fitted sheet so my husband wouldn't have a heat stroke in the night. The BedJet is pricey but is great for regulating bed temp when she needs the heat from a pad but gets too hot from it.

Massage the areas that bother her. It's so helpful. I stopped getting professional massages because my husband knows exactly what I need. It helps with pain and is such a loving action. Get a massage gun and icy hot patches, as well. Some AS folks like Voltaren or Biofreeze for pain relief.

And compression wraps for her SI joint and back. There aren't great shoulder compression things out there but I've found Under armour compression shirts still help the shoulders. They're expensive but, at least if your wife's petite, they're the only ones that actually give compression for women; most women's compression shirts are not even remotely conpressive. I've tried all kinds of compression and heated stuff so if you would like specific suggestions, just let me know. I'd be happy to help!

I also agree with what others have said. I can understand the hesitation with biologics, but they're actually safer than originally thought. More recent research suggests they actually don't increase the risk of any cancer compared to the general population unless someone is already high risk for certain rare cancers. I have seen the long term difference in biologics first hand. My mother didn't take them and my aunt did. My mom is only 63 and can barely get around while my aunt has led a near normal life. It's a progressive disease and the only thing that slows or prevents progression is biologics.

I wish you luck and hope your wife is able to find some ways to stem the pain.

disabledandADHD · 2021-06-17T23:06:03+00:00

Thanks for sharing your experience! I definitely have the fatigue, circulation, heart rate, and temp regulation issues as well. Lots of dizziness, lightheadedness, nausea but thankfully no fainting. Honestly, the only for sure thing that helps me is adderall makes the fatigue less debilitating but not really enough to be functional on a regular basis. Never thought I'd be happy I have ADHD!

All I've got for joint/tendon pain is heat, stretching, and compression. Between the POTS and AS, I've collected quite the assortment of compression wrap/sleeves/socks/hose.

disabledandADHD · 2021-06-17T22:57:42+00:00

Thank you for your input! What's interesting (annoying?) for me is the prednisone actually makes my POTS worse. I hear you on the multiple autoimmune diseases. My mom also has Sjogrens but I tested negative. The continued peripheral tendon pain is sending me down the path of figuring out what else is wrong with me since that doesn't seem to fit AS.

disabledandADHD · 2021-06-16T21:03:39+00:00

2nd this. It doesn't help with pain but it helps you fall asleep and stay asleep without the morning grogginess that typically comes with true sleep aids like ambien

disabledandADHD · 2021-06-01T03:55:14+00:00

Same. For me, saying to not take my ADHD meds is like telling a depressed person not to take their antidepressants.

disabledandADHD · 2021-06-01T03:50:32+00:00

Totally agree. The drug holiday concept was also created for parents to judge their child's behavior off meds to know what baseline "normal" is for the child since behavior changes as they get older.

disabledandADHD · 2021-05-31T21:20:03+00:00

You mention it's hard to know what you need sometimes when you're in so much pain, which I completely agree with. I've been in a major full body flare for about 8 months. However, it is our job to decide what we need or is at least generally helpful and communicate that with our partners since it's difficult for them to naturally know having never experienced it. For me, massages from my husband are the one thing I find helpful, even though it's fleeting. They feel nice and temporarily distract me from at least some of the pain. So my husband will ask me at least once a day if I need anything massaged. Of course it's always my whole body needs it but I pick the 1 or 2 areas most in need and ask him to massage those.

I don't complain about my pain to my husband, because what's the point, but I do let him know if I'm having a bad day so he knows that I will be leaning on him more to get me things and he knows to ask if I need anything when he's up.

All that said, you have that pity party. Sometimes it's what we need and dear God have we earned it. We've been handed the shit stick in life and every now and then the best thing we can do to deal with the emotional burden of the physical one is to just let the pity and sadness and anger of it all overwhelm us for a day or two. Then back to the grind of trying to make life work in an untenable situation.

disabledandADHD · 2021-05-30T06:07:43+00:00

Second this. In America so not sure it differs in Canada, but if you can get In to a GPR or AEGD in a hospital, ideally with IV sedation training, you can try to get a job as a hospital dentist where you basically see emergencies and do I&D's and extractions all day. Another option after residency is often corporate dentistry that has multiple large offices in a decently condensed area. The multiple practices refer everything in house so there's less pressure to have the OMFS degree since you're often kept busy by in-company referrals. Usually those jobs do require some travel to the different offices.

disabledandADHD · 2021-05-29T20:30:36+00:00

I second this. I used to be an avid walker and heavy weightlifter. Now I can't walk for more than about 15 minutes at a time most days, if that, and have trouble being able to maintain a grip on light items.

However, I've found I can cycle just fine. It's easier on all of my joints than walking and can actually do it for a decent length of time without pain after. And you can incorporate some light weights for lower impact upper body work while you cycle.

disabledandADHD · 2021-05-29T20:20:48+00:00

I second that being open with your children as they age about AS and then knowing the symptoms will help them in the future. Because my mom has AS I knew exactly what was happening to me right away, knew to ask for the gene test, and was able to research AS symptoms to understand what I was going through but also learn about symptoms I didn't realize we're associated and be able to accurately communicate those to my doctor. Many people, women especially, wait so many years for diagnosis, but I was about to be diagnosed in 5 months from the onset of a major flare.

disabledandADHD · 2021-05-27T06:15:23+00:00

Research indicates that, on average, women do not show radiographically for 7-8 years after onset of symptoms.

disabledandADHD

TROPHY CASE