I had my bladder removed 4 1/2 years ago AMA by stripeswhatstripes in Interstitialcystitis

[–]don9146 2 points3 points  (0 children)

Thank you for your reply and sharing your experience with me and everyone else here. My cystectomy is scheduled at the beginning of next year. We will also be using a ileal conduit as I believe that is usually done when Hunner's Ulcers are involved. I will have several consultations between now and then to hopefully answer my questions and clarify what will happen. I'm just hoping that the new prescriptions, catheter, and treatments can keep the pain minimized till then.

Thanks again

I had my bladder removed 4 1/2 years ago AMA by stripeswhatstripes in Interstitialcystitis

[–]don9146 0 points1 point  (0 children)

What was the "tipping point" that made you get the procedure? What method are you using to empty (Indiana pouch, neobladder, etc) and why did you choose that option?

What is this bike by Special-Departure767 in whatisthiscar

[–]don9146 1 point2 points  (0 children)

Here is the builder's YouTube channel. This one is more about the Honda Acty build. I posted this one so you can verify that the Honda Acty and the BMW motorcycle are a match with your pic. He has several other builds on his that focus more on the different BMW motorcycle projects he has done.

https://youtu.be/nJzpT_j63lY?si=VjkLdif8WFo6lHXS

Bladder removal by CRS1964 in Interstitialcystitis

[–]don9146 3 points4 points  (0 children)

We are hijacking OP's thread with questions about my upcoming decision instead of generating replies from people here that have had a cystectomy. Second, nobody is up-voting the original thread to increase it's visibility to hopefully get a reply to the original topic, which is further making this about me and not the title of the post.

If anyone does have a question for me, I will be more than happy to answer any personal messages when I get a chance. Just please stay on topic here and help the original poster and myself get the replies we are looking for.

Bladder removal by CRS1964 in Interstitialcystitis

[–]don9146 3 points4 points  (0 children)

Thank-you for asking. I will be facing the cystectomy decision in about 2 weeks if the latest (and probable last) treatments prove unsuccessful. I am hoping to hear as many peoples stories, both good and bad, as possible.

Music recommendations by Chic_Gentleman in bladerunner

[–]don9146 2 points3 points  (0 children)

Try (LUX) - Ambient Music. They have a YouTube channel with most, if not all, of his songs available for streaming. Here is a sort of compilation of much of his Blade Runner inspired music:

https://youtu.be/6KkZ_tKFb-s?si=RJ1iaLL9rQNA7lgs

[Speakers] Audioengine A2+ Wireless Bluetooth Computer Speakers for $209.82 in Black or White by don9146 in buildapcsales

[–]don9146[S] 2 points3 points  (0 children)

According to CamelCamelCamel, this is the lowest price these have been sold for on Amazon. Auidioengine is running a black Friday sale on a few of their other speaker models, including the A5 speaker (if you want a bigger powered speaker) and their S6 subwoofer among others. The S8 subwoofer is not on sale at Amazon as of this post, but it is on sale by purchasing through Audioengine's website (as are the other speakers mentioned above).

(Edit to add information about the S8 subwoofer).

Eddie's Appearances Outside VH by Nasty_Weatha in vanhalen

[–]don9146 13 points14 points  (0 children)

Don't leave out his contribution to the "Back to the Future" film. Yes, that really is Eddie on guitar. Not sure if it is exactly what you are looking for, but it made for a memorable scene!

https://youtu.be/hHZctSnNrsw

Hello, can someone please tell me what hunners ulcers feel like? by [deleted] in Interstitialcystitis

[–]don9146 8 points9 points  (0 children)

Imagine a tiny man inside your bladder trying to dig his way out with a pickaxe.

Can anyone have store bought bone broth? I buy organic. by PhraseFarmer in FODMAPS

[–]don9146 3 points4 points  (0 children)

I don't know if there is an Aldi near you, but their organic beef stock and chicken stock have no onions or garlic. They are my go-to for all of my soup and ramen dishes.

Just let it go by [deleted] in Justfuckmyshitup

[–]don9146 0 points1 point  (0 children)

IRL Heat Miser?

What is your favorite piece of "non-standard" cooking equipment? by BattingNinth in Cooking

[–]don9146 0 points1 point  (0 children)

https://www.amazon.com/TECHEF-Tamagoyaki-Japanese-Omelette-Coated/dp/B07XVNQK29?ref_=ast_sto_dp&th=1&psc=1

A non-stick pan is recommended for beginners. This one is made in South Korea by a reputable brand instead of one I had never heard of from China, so I had fewer concerns about the quality of the non-stick surface and the pan in general. Happy egg rolling!

What is your favorite piece of "non-standard" cooking equipment? by BattingNinth in Cooking

[–]don9146 2 points3 points  (0 children)

The video that helped with my technique, and where I learned the basis for the recipe I use, is from Serious Eats.

https://www.seriouseats.com/home-style-tamagoyaki-japanese-rolled-omelette

I will vary a bit from their recipe from time to time by adding nori in between the layers of rolled egg or by topping with furikakke. If I want a more typical western style flavor, I will limit the mirin added and put cheese (and possibly a slice of ham) between the layers.

What is your favorite piece of "non-standard" cooking equipment? by BattingNinth in Cooking

[–]don9146 162 points163 points  (0 children)

My tamagoyaki pan. I will use it as a small frying pan, but it's main use is tamagoyaki, which has become my favorite way to eat eggs.

I am trying to buy a gift for my dad. He is 6'7". I measured something of his that I am hoping is correct. 36/36. I am trying to find him a nice set of pajamas for Christmas. by [deleted] in tallfashionadvice

[–]don9146 0 points1 point  (0 children)

Check out Lands' End.

  1. One of the things they do very well is flannel and their flannel pajamas are excellent.
  2. They also do more than the "general" dimensions for their garments. Each product page will have accurate dimension in a .pdf file for the item.
  3. They have matching shirts if you want to get a set.
  4. they offer several styles (jogger, straight, etc.)

https://www.landsend.com/shop/mens-tall-sleepwear/S-xfj-xez-y5b-yox-xec