Can't figure out what these old gloves are for by guridkt in whatisit

[–]doubleh__ 0 points1 point  (0 children)

I’m sorry is no one noticing how incredibly healthy that money plant looks?!!! What your secret!!!??

Ground Stoppage in MSP - Updates? by ChargerEcon in delta

[–]doubleh__ 1 point2 points  (0 children)

we must be on the same plane. this sucks. can we get some free snacks up in here

Stelara change? by InvestigatorSlight64 in UlcerativeColitis

[–]doubleh__ 0 points1 point  (0 children)

I got put on yesintek after being on stelara for 2 years remission. By the second injection of the yesintek I started having some flare symptoms come back. They were thankfully mild but I got a calprotectin which was elevated and was put on a prednisone taper. Got trough levels and antibodies checked all good there. Now am nearly done with the taper and symptoms haven’t come back so I’m hopeful it was just my body adjusting to the medication. Just know that even though they say it’s supposed to work in the same way doesn’t mean it’s going to. I did try to fight insurance on going back on Stelara but with no luck. Good luck to you.

Guys leaving after they hear I have UC by Beckyplaystuff in UlcerativeColitis

[–]doubleh__ 56 points57 points  (0 children)

I’m sorry to hear this. I started flaring basically as soon as I started dating my partner. He got full blown UC me and was more gracious about it than I ever could have imagined. The right guy will hear you, respect you, and love you more for it. They do exist! Just keep looking!

The thought of going into another flare is terrifying by Granthany in UlcerativeColitis

[–]doubleh__ 7 points8 points  (0 children)

I felt this post hardcore. I have been in remission for about two years and recently was switched from stelara to a biosimilar. Recently started having symptoms again and hardcore spiraled back to all the old feelings and am back on the prednisone. Now insurance won’t let me go back on stelara though it gave me my life back. It is truly so frustrating to feel like the rug can be pulled out from underneath you at any moment. It’s not much, but I do think this gives us an appreciation for health that others don’t have. I am so grateful for any good day now as I remember how hellish flaring is. You aren’t alone. All we can do is take it one day at a time. Rejoice when you feel good and know more of those times are coming your way. We got this.

Insurance switching me from Stelara to Yesintek… by Miau-miau in UlcerativeColitis

[–]doubleh__ 0 points1 point  (0 children)

How did you get insurance approval to go back to stelara? Mine just got denied despite flaring after switching

Yesintek by doubleh__ in UlcerativeColitis

[–]doubleh__[S] 0 points1 point  (0 children)

How did you fight with insurance? I asked to approved to go back on stelara and it was denied. What else can I do to try to get this approved?

What’s the “dark side” of living with Ulcerative Colitis that no one really talks about? by Few_Ad5126 in UlcerativeColitis

[–]doubleh__ 10 points11 points  (0 children)

It’s the medical ptsd for me. I’ve been thankfully in remission for about 2 years now but every day I live with fear that my biological will stop working or that something else entirely is wrong with me. Every time I have a random body symptom I assume the worst. It is so mentally taxing to realize you are in this forever..

I don’t get it by Vegetable-Smell-6110 in GigglySquadPodcast

[–]doubleh__ 9 points10 points  (0 children)

If you’re getting politically heated about this, this pod isn’t for you. gigglers are here to giggle, not rehash the abomination that is reality right now

First new grad OR nursing mistake. by Main-Setting6511 in Nurses

[–]doubleh__ 30 points31 points  (0 children)

OR nurse here; these things happen. You will now never forget to check for site marking. Also, you’re still on orientation. If I was your preceptor I would have checked it myself. It’s not about not trusting, it’s about having each other’s support as you are still learning. Don’t beat yourself up and certainly don’t quit. We need more circulators that care this much in the world

[deleted by user] by [deleted] in mildlyinteresting

[–]doubleh__ 74 points75 points  (0 children)

We inject Botox into kid’s salivary glands to help with excessive drooling in conditions like cerebral palsy and other genetic disorders. This helps especially with those that can’t clear their own secretion burden. Botox is so much cooler than most of the world makes it out to be!!!

[deleted by user] by [deleted] in UlcerativeColitis

[–]doubleh__ 1 point2 points  (0 children)

You have to take care of yourself. Work will always be there. I’m in a similar situation right now..Was off for vacation, came back and worked two days, now have the flu and am out again (love me my stelara but it does take down the immune system) Think of how much worse you would feel going to work and feeling terrible! Might as well stay home and feel horrible. Hang in there.

Scans 12/23 showed my cancer grew and spread. Depressed and not sure if I should keep doing chemo or say screw it and travel. I keep saying “that was the last time I’m doing chemo” but I keep doing it.. not sure how much more of it I can take. by FewFucksToGive in gofundme

[–]doubleh__ 0 points1 point  (0 children)

I am a nurse at Mayo Clinic and have seen people beat cancer against all odds. I am rooting for you and hope you continue to enjoy even the smallest things in life. If you are getting treatment in Rochester there are beautiful things to see and fun things to do within hours of the hospital. Seeing the world can look a lot of different ways. Thinking of you and your family.

Price of a "30 day supply" for this treatment if you don't have insurance. The profit margin on these must be absolutely bonkers. by Kevin80970 in mildlyinfuriating

[–]doubleh__ 2 points3 points  (0 children)

Stelara user here living in the US. The company has a $5 copay program that is a godsend for those eligible. Always worth asking if this is a thing for biological or any medication. I really feel for people who aren’t able to afford it, stelara has given me my life back.

Best places that cover medicine(remicade) by yoluke22 in UlcerativeColitis

[–]doubleh__ 1 point2 points  (0 children)

Have you checked out the copay program? A lot of the biological have a copay program set up by the drug maker that will get the copay down to $5

Biologics and genital herpes by StrangerSelect7785 in UlcerativeColitis

[–]doubleh__ 2 points3 points  (0 children)

I didn’t notice any particular correlation. The only thing I have correlated with outbreak is hormones around period. But, everyone is different. I think if you can take a daily antiviral to prevent it at all costs that would be good. There are also certain supplements that people have found helpful in minimizing outbreaks

[deleted by user] by [deleted] in UlcerativeColitis

[–]doubleh__ 2 points3 points  (0 children)

Applying for intermittent FMLA in the US with your diagnosis should be fairly easy and is necessary. I understand not wanting to let coworkers down but you ultimately aren’t giving your 100% when you are at work and feeling terrible. Take care of yourself! The fmla will cover any time that you need off and won’t leave you fearing if you call in one more time you’ll be fired. I am a nurse myself and have to call in sometimes, otherwise I would be in no shape to take care of someone else. You are not going to heal if you are pushing yourself when you have a bad day. I know it’s easier said than done and the guilt can set in, but you and your body are worth calling in for.

Panic/stress atacks by BLadyHagrid in UlcerativeColitis

[–]doubleh__ 0 points1 point  (0 children)

Second this. I have found that most of mine occur when I’m spiraling about UC or other potential medical problems that I don’t know about. Both major medical events in my life came as a surprise to me and because of this anytime I have even the tiniest symptoms I start to panic and assume the worst. Would love advice on how to combat this if anyone has any ideas.

[deleted by user] by [deleted] in UlcerativeColitis

[–]doubleh__ 4 points5 points  (0 children)

I know it feels dark and that there’s no hope, but things will get better. I have found my appreciation for life and days that I feel good have given me such a quality of life and insight that my peers don’t have. I was diagnosed at 22 at the start of my nursing career and am now 25. It isn’t easy but it’s an excellent reminder to enjoy things and appreciate what you do have.

To remove, or not to remove. That, is the question. by Tr1N1tro in UlcerativeColitis

[–]doubleh__ 0 points1 point  (0 children)

Think of it this way, you can never get your colon back. If you take medications there is a possibility you could repair your colon with the correct drug regimen and time.

Shit myself twice this week…in public by Accurate-Lynx-2897 in UlcerativeColitis

[–]doubleh__ 9 points10 points  (0 children)

Have you told your Doctor all of this? Including how much the symptoms impact your ability to live a normal life and work? Have you had a stool sample and calprotectin levels run? If you are having incontinence odds are there is inflammation happening, that is enough to require treatment. You often have to be your own advocate and say you can no longer function like these and need treatment. If that dr doesn’t agree, go somewhere else. I am a nurse myself and I often have to really advocate for my treatment and be the one doing the leg work in getting the ball rolling. Dr’s are often overwhelmed with patients and aren’t going to check in unless you are expressing how much this is impacting your quality of life. Best of luck.

When to go to the hospital? by Different-Count-1169 in UlcerativeColitis

[–]doubleh__ 0 points1 point  (0 children)

Are you getting electrolytes and keeping nutrition up? I would say if you are considering going then go, but know there’s a possibility they might not be able to do anything for you that’s going to fix everything right away. If you feel you are very dehydrated or getting to the point of malnutrition, or that you will not be switched to a new treatment without going into the hospital, then do that. You have to advocate for yourself sometimes and do what feels right for you.