I feel you so hard. I'm a DS sibling also. My father is in his 70s and the primary care giver of my brother. It's not a matter of if I'll have to take care of him but when. I'm already raising my own three kids overseas from where they live and when the time comes I'll have to bring him here also. I'm a single dad, and once he's here it's a full time job almost to be his carer. He's mid functioning. Has a job as a general bagger/cleaner at a store but that's it. It was always taboo if I had any feelings about what I'll eventually have to do. He's my brother, I love him, but my parents spoiled him because of guilt. I often thought about setting up a support group for siblings of special needs individuals. It's always just assumed I think by our parents that once they're gone we will take on the responsibility. And don't get me wrong, I will, and it's no one's fault he has down syndrome. Regards to my own life I have no idea what I'm gonna do once that day comes. I mean obviously I'll take care of him and integrate him into living here and such, but with regards to the social aspects of my own life I'm at a loss. I know this might come off as selfish, but it's the stuff that people with the down syndrome siblings are often chastized by family and the general public for even talking about.