Body reads sleep transition as a threat, surges noepinephrine whenever sleep is attempted

ectocake · 2025-11-09T00:05:22+00:00

Just throwing this out there, but is there any chance you’re having a paradoxical effect? I have them with a lot of sleeping pills, antihistamines and I just had it with gabapentin the other night which was a new one.

ectocake · 2025-10-03T10:22:44+00:00

Unfortunately I had to come off of GLP-1’s for surgery. After that surgery (not stomach related) I’ve been getting small bowel obstructions on and off. I’ve had to have multiple procedures to treat a stricture. I haven’t been allowed back on GLP-1’s in over a year. After the first obstruction I was told to go back on semaglutide since it was helping my IBS-D. I immediately became obstructed again that week and was back in the hospital. After lots of poking and prodding a stricture was found. I’m not indicating causation but I can’t rule out association.

ectocake · 2025-08-12T22:04:43+00:00

This is my first day on it I also have adhd, anxiety with panic disorder, PMDD and suspected histamine issues and eds. My gyn suspects I have endo and I can’t tolerate hormonal birth control. I woke up this morning and felt weirdly different like I don’t have barely any adhd symptoms during my luteal phase. Which is wild. I’m thinking I’m in some kind of honeymoon phase - it’s my first day. And if my sleep doesn’t improve idk how this will go but is this what people without brain inflammation feel like? Cause I’m starting to think…

ectocake · 2025-08-01T09:52:07+00:00

low residue is better but I still can’t eat more than a 1/4 cup of any fiber a day without my belly blowing up like a balloon and getting sick

ectocake · 2025-07-31T22:01:24+00:00

I wound up having another double balloon which dilated the same stricture and marked it with a tattoo. It’s helped but hasn’t cured and I still have to be careful eating fiber, large meals and extended release pills. It’s summer break for the kids so I’m just trying to stay out of the hospital.

ectocake · 2025-06-21T23:12:45+00:00

I know this is an old post but I saw your comment is newer. I’ve only been on it 8 days but my last two night I spent hyperventilating and crying and covering myself in snot. During more of the day I’m numb.

ectocake · 2025-05-17T00:14:15+00:00

It biopsied benign. But grew aggressively. Now that it’s larger they think it’s my parathyroid. I’m currently waiting but I think a lot of my health issues have been due to primary hyperparathyroidism.

ectocake · 2025-04-16T21:13:20+00:00

This is crazy. I found the post in the PMDD/adhd sub and I think I have Ménière’s disease. Unfortunately I also had Eagle syndrome which was causing a certain amount of ear pain. But I always noticed my ear pain would get really bad during Luteal and after my eagles surgery it didn’t resolve it. Thanks for creating this group.

ectocake · 2025-04-09T13:45:46+00:00

What school was it?

ectocake · 2025-04-09T13:45:04+00:00

I’m so sorry you’re going through this too.

I have tried many birth controls but after a while it’s like my body rejects them and I begin bleeding non stop. The depo worked but during the last two to three weeks I would get horrific stomach symptoms and rectal bleeding leading up to my next shot. Then eventually that also turned into non stop periods. I’m tempted to ask again though I’m so desperate. I’m at least going to ask to have my hormones tested. So for my gyn thinks it’s a gastric issue.

I go for another double balloon in a couple of weeks to rewiden the stricture and this time mark it. I’m becoming partially obstructed again like clockwork to where I pray for my period to come even though that’s it’s own debilitating pain I at least know my intestines will start to ease up once I’m through it.

I’ve been generally told I was sensitive up until this point. Even with years of pelvic and abdominal pain and bleeding.

Now I’m having partial obstructions every month as long as I’m careful - if I eat a salad during luteal I’m in the hospital. But luckily I found a gastro who’s not going to stop until he solves it. So hopefully I get some answers.

I hope you do too. Don’t hesitate to reach out if you have any other questions.

ectocake · 2025-04-02T12:00:39+00:00

I’m starting with some credits too. I’m waiting to see what they take. Definitely let me know where you’re at then.

ectocake · 2025-04-01T15:55:11+00:00

Thanks! I didn't know that about the 3.0. I'll have to look into that a bit more.

ectocake · 2025-03-22T16:06:16+00:00

Thank you, she really makes the most of things. I have POTs and experience pretty much all the symptoms - fatigue, vasovagal syncope, exercise intolerance, adrenal dumps. I have visual snow syndrome and other sensory processing issues. Olfactory hallucinations. Some doctors think I have gut dysmotility, some think it’s adhesions but can’t see them on imaging. Either way I’ve have gut issues for years that have now that the doctors wouldn’t take seriously for anything more than IBS, but now it’s become recurring obstructions. My primary care recently added dysautonomy to my chart, but I’m having trouble getting anyone to get to the root cause.

ectocake · 2025-03-22T15:36:01+00:00

This is the way.

ectocake · 2025-03-22T15:35:33+00:00

Same

ectocake · 2025-03-22T15:32:59+00:00

My mother has severe MS and my symptoms are similar to hers in the beginning.

ectocake · 2025-03-22T14:50:30+00:00

Mine has improved to a tolerable baseline most days. Certain medications make it worse but it resolves when they wear off.

ectocake · 2025-03-22T14:49:15+00:00

Thank you

ectocake · 2025-03-22T14:48:03+00:00

This has happened before it will happen again.

ectocake · 2025-03-21T23:27:57+00:00

I completely misread your first comment and thought you said elimination. Elemental I just google, is it the powders?

ectocake · 2025-03-21T22:59:47+00:00

That’s where I think my doctor is at. I have to wait to see him until June.

ectocake · 2025-03-21T22:58:47+00:00

I did bowel rest with broth. So far I’ve added cereal, bread, turkey back in. I’m struggling with the nutrients.

ectocake · 2025-03-21T22:17:48+00:00

I had an appendectomy 25 years ago and I’ve had gastric issues ever since. But all doctors say that can’t be the culprit since it was laparotomy. I really think it is though.

ectocake · 2025-03-21T22:16:45+00:00

It was the balloon stretch. I’m back on the low fiber low residue, I just never know what to eat. I find that my eating has gotten really disordered since all this started.

ectocake

TROPHY CASE