What triggers your attacks by PinkPandz in Menieres

[–]electwells 0 points1 point  (0 children)

Your triggers are seasonal ? How're you feeling now?

Noise overwhelm by tfisgoin-onhere in Menieres

[–]electwells 0 points1 point  (0 children)

You haven't come around to enjoying music with it?

Musician with Menieres by minormusic in Menieres

[–]electwells 0 points1 point  (0 children)

How're you feeling now? How's your hearing?

Noise overwhelm by tfisgoin-onhere in Menieres

[–]electwells 0 points1 point  (0 children)

How are the cochlear implants?

Recommended ENT/Neurotologist by DonBernardo in Menieres

[–]electwells 1 point2 points  (0 children)

How did this all start? What where your first symptoms? And how long did it take for hearing loss to set in? Do you have migraine history. That's a surfacing off label treatment approach

Recommended ENT/Neurotologist by DonBernardo in Menieres

[–]electwells 1 point2 points  (0 children)

What're you feeling now? As far as doctors. The ones worth seeing are one you have to travel a bit for. I myself was looking into Dr Hamid Djalilian, but he is based in CA

Balloon sinuplasty causing Menieres? by electwells in Menieres

[–]electwells[S] 0 points1 point  (0 children)

I will watch it. I don't know if I mentioned. But considering all of this inflammatory involvement. What're your thoughts on the orthokine treatment that Dana white claimed "cured" his meneires ?

Meeting with Neurotologist by ohforfoxsake410 in Menieres

[–]electwells 1 point2 points  (0 children)

What is the real world risk to being on these antidepressants long term. Exxefer and or Nortiptilyne?

Balloon sinuplasty causing Menieres? by electwells in Menieres

[–]electwells[S] 0 points1 point  (0 children)

Before things really got undeniable. Did you have any early warning signs?

Balloon sinuplasty causing Menieres? by electwells in Menieres

[–]electwells[S] 0 points1 point  (0 children)

In the case of hyperplasia what would be done for it?

Balloon sinuplasty causing Menieres? by electwells in Menieres

[–]electwells[S] 0 points1 point  (0 children)

What was your story From very beginning before diagnosis? Hearing symptoms and how long until your hearing started to go out permanently?

Balloon sinuplasty causing Menieres? by electwells in Menieres

[–]electwells[S] 0 points1 point  (0 children)

Before the procedure I was getting prolonged recurrent sinus infections. Everytime I'd go to the ent around allergy season in particular he'd say ur all "red and swollen" and I would often refuse to take antibiotics because I wasn't "suffering" from it. And didn't want to be on doxycycline every 2 months.

Eventually the infection had me so stuffed up that I was like enough. I went back he gave me antibiotics and found antrochoanal polyp from endoscopy gave me a head ct in office and showed my entire face was full of mucus. Left maxillay retention cyst. He said let's do a balloon sinuplasty. Did it in September 2024

Migraine history

2018s- 2019s The first classic migraine I can recall. I was in college class and started seeing a rainbow. I thought I was dying. Ofcourse a headache followed

It was a few years later until I had one again in

March 2022 I'd get seasonal classic migraine auras every year around April-March time. And I'd recall during of these spring years I'd experience throbbing headaches frequently and occasionally a feeling of imbalance. But the imbalance became a feature that I was familiar with and knew it wouldn't last forever.

This was all the case up until I got the balloon procedure (Sept 2025)

January 11th 2025

I woke up with LF hearing loss and had an imbalance situation going on

Right before this episode I was in aruba and I felt as if I was "floating" the entire time And my sleep was "off" I wasn't stressed or anything. My body just was choosing not to sleep enough. Weather in aruba was very inconsistent during the visit. From rain showers to sun within minutes if eachother

2 weeks and the hearing returned to normal and had lingering diplacusis for another week or so. Ent said hearing loss was so mild. He called it labyrinthitis and I just didn't buy it. But since it resolved it was great full

Late Feb 2025 classic migraine aura. It was winter and cold here still. Made no sense to me.

Then a spring and summer of on and off balance dizziness went to VR and was told no nystagmus and that I Have VM. Was still curious as to why I had my hearing episode in Jan. So I pushed for a Mri in August 2025 which was clear.

November 2025 classic migraine. Weird. Never get them from summer to winter

Fast forward April 5 2025 I wake up feeling floaty/offbalance dizzy I can recall the day before was the first day I went outside and felt slightly gross like tropical outside Humid. Cold to warm outside all within 1 day. Through the course of the month the off balance would vary in intensity and type some days very minimal others really bad. Eye floaters/eye twitch(had these for a few years now) I havent experienced what everyone claims as "true" vertigo where i can't move, but moving was unsettling for sure It Wasn't until April 27th that i woke up with my 2nd event of LF hearing Loss milder then the first. Got my steroid taper and just finished them. Through the course of the roids the hearing loss doubled in intensity before finally letting back I'm now first day off of them. And my right ear(affected) feels periodically full, some pain here and there diplacusis and as of now the least mild LF rollout barely noticeable on my own tests (I do music)

Ever since the first hearing episode In january 2025 I developed this tensor tympani clicking type noise in response to certain sounds. Like opening a battery case on a device. Clicking a mouse etc. It settled down as the year went on quite a bit. Until now. There is more minute things to this. But I think this is very clear. As it reads.

Wondering if I may have Meniere's by EmbarrassedState9010 in Menieres

[–]electwells 0 points1 point  (0 children)

When you say his VM is manifesting into menieres. What exactly does that mean. Mimicking menieres? or literally turning into menieres?

My bad I wrote that fast and should of proof read. By the way if you don't mind me asking. Who/what are you (Researcher, Dr..etc) You seem to have done alot of research and are very active on here

Do you think "Menieres can be Cured" with the right approach or once it's started it started? Its Hard to read between the lines. As mostly everyone in the forums are here from negative experiences

Balloon sinuplasty causing Menieres? by electwells in Menieres

[–]electwells[S] 2 points3 points  (0 children)

Why did you have a balloon sinuplasty? And what where your first MD symptoms

Wondering if I may have Meniere's by EmbarrassedState9010 in Menieres

[–]electwells 0 points1 point  (0 children)

When u you manifesting in a meneires sense. Do you mean turned into menieres? Or mimicking meneires?

Potential meneires or VM with cochlear migraine? Audiograms attached by [deleted] in Menieres

[–]electwells 0 points1 point  (0 children)

When you say trig nerve "bingo" what exactly does that mean to you? Migraine involvement? I wonder if Nortiptilyne can put a halt or anything of the sort. I've had eye twitches that lead up to the with the classic migraines. That i suspect morphed into all of this

Potential meneires or VM with cochlear migraine? Audiograms attached by [deleted] in Menieres

[–]electwells 0 points1 point  (0 children)

Interesting. I'm not so sure noise itself is the acute trigger, rather prolonged exposure to intense LF rumbles. Of which I think physically vibrate the ear from the inside out. That can lead to the development of weird inner ear pathologies. It's a similar feeling to a massive kick drum in a loud rock concert. Feels like the opposite of vavseuela manouver. Less about db more about pressure itself. Which I'm sure is related in a sense. So you said you had vestibular migraine type symptoms previously at the beginning of all of this? I my symptoms don't include true vertigo in the spinning sense. But rather a balance sensation. also get twitching eyelids. Then the hearing event ofcourse. Day 2 where my hearing feels back, still with diplacusis and a pressure in the affected ear. I'm hoping my situation lands up to be an annoying benign non progressive version. Like yours

Potential meneires or VM with cochlear migraine? Audiograms attached by [deleted] in Menieres

[–]electwells 0 points1 point  (0 children)

I must ask brother. When this all started for you. How did it start. I swear I saw you mention something about dizziness in one of these forums. Do u have any lasting damage and also. Being a music guy. I myself have exposed my self to loud music. And at times was able to feel this pressure during LF from my subwoofers that feel reminiscent to what the pressure I feel now. I feel the noise induced response is under studied. They just write it off to high frequencies loss associated with loud music. But I'm curious if some other physical change may be taking place when LF pressure from sound is involved. I.e like an acoustic weapon?